Nicky - posted on 01/14/2009
i have friends with a daughter with angelmans . please do a facebook group search .
that is just one of the groups to start you off. my friend is jeramy webb he is chairman of the anglemans uk website.
im sure you will be helped loads by them .
Jane - posted on 01/13/2009
My son was thought to have angelmans for 12 yrs but this yr diagnosed with pitt-hopkins syndrome,there is a really good and helpful angelmans site with parents all with angelmans children that i came across many years ago they are really friendly and offer good advice
good luck x
Alison - posted on 11/23/2008
Hi. I've learned that Angelman Syndrome is a pretty rare condition. I hope you'll find someone else who can share their experience with you. But regardless, from its description it sounds like you will have lots of common concerns with people in this group. For example, kids with CP like my son Aidan have very similar motor control issues and speech delays.
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