Amanda - posted on 01/12/2012 ( 1 mom has responded )
My youngest son, who will be 11 next week, has Marfan Syndrome. He has never met another Marf before, I have only met 1 adult very briefly. I'm wondering if there are any Marfan adults or Mom's in WI or MN? It sure would be nice to get in contact with some, to talk with about frustrations, hopes, and fears.