Any moms with a child with type 1 diabetes?

Dori - posted on 01/30/2012

My son was recently diagnosed and my head spun and sometimes it still does. He is doing really well and we are lucky that his Endo is very proactive and in only a few months she would prescribe a pump to him but he is in the honeymoon stage. Right now my husband and I are juggling doses at daycare and we are fortunate to both work out of our home. We are all managing though I still get stressed and scared. I have to remind myself I have a long time to educate him. He is still the same mr. giggles who loves to play, laugh and read. Now... babysitter for a type 1 diabetic ???

Karen - posted on 05/04/2010

I was dxd as a child @ 8 yrs old. Insulin has come a long way in the past 21yrs as well as knowledge and treatment of diabetes. I have been lucky thus far with my 2 children. Things will work for the better, we just gota have faith.

Melody - posted on 05/01/2010

Well, at first he was wanting to eat everything in sight right after he was diagnosed. But now that his hunger has calmed down he is giving me trouble. I have been trying to get him to drink juice to make up for the carbs he didn't eat, but sometimes that doesn't work either. He is very hard headed. Today he wouldn't eat his chicken nuggets, so I gave him cheerios and he threw them all over the place.

Angie - posted on 05/01/2010

I'm sorry I can't help you with judging what your child will eat. I was very fortunate in that my boys always ate everything they were given. The only time I run into problems is when they're not feeling the best. Then I scramble around trying to make up the carbs for what they didn't eat with anything they are "willing" to eat. Even if it means something I would prefer them not to have. Does he have any favorite foods that he rarely says "no" to? It does get easier when they get older because they better understand why they have to eat to cover their insulin.

Melody - posted on 05/01/2010

For my situation the carb counting is really difficult. It's like how do you really know what a 2 yr. old will eat? Then after I give him his shot and he won't eat, it's a big fight trying to make him eat other things to make up for what he didn't eat. It's all so confusing!

Jackie - posted on 05/01/2010

My 10 year old son was just diagnosed 3 days ago and just came home from the hospital last night so my brain is still spinning. He has other developmental delays and am not sure really has a concept of what this "means" (but I guess what kid does). Looking forward to hearing more from the experience of other parents. Jumping into the world of carb counting, bs testing and insulin!

Angie - posted on 04/29/2010

My one twin was dx right before his 3rd bday and the other one 1 1/2 mos. after. It is a struggle in the beginning, but I'm actually glad they were dx at a young age. I didn't have the problems with adjusting their diet as did my friends that had older kids dx with diabetes. My twins are now 7 yrs old and they have been on the pump for 2 yrs. Their numbers are a lot better. For the most part, they lead a very normal life, but you will always have those moments when they look at you and ask why they have diabetes or they ask when there's gonna be a cure. Just do the best you can, attend all the classes that they offer, and your son will lead a normal and healthy life with diabetes.

Melody - posted on 04/28/2010

I want my son to get a pump ASAP. I hate him having to take so many injections. I'm not really sure how they work. The doctors are making me wait 6 months to get him on one, so maybe by July he'll have it.

Jennifer - posted on 04/27/2010

my son eli, was diagnosed when he was 9 he is gonna be 11 now!! he got really badly ill went in to the hospital with a blood sugar of 1250 they said if i wouldnt have taken him in that night he would have went in to a coma,, he takes insulin 4 times a day! he also has DS! in the begining it was the hardest thing in the world just seeing my baby like that but as time went on i knew i was doing the right thing for my baby he is the love of my life and i will do anything for! its going to get easyer and easyer everyday

Mayme - posted on 04/25/2010

There are a lot of doctors that are dead set against a pump and I don't know why! It does take work but it works the closest to the way your body should. My pump saved my life. I was having such trouble with control and within 3 months of getting my pump my control was amazing. Not to mention I really like only having to get a needle stuck in me once every three days as opposed to 4 and 5 of them a day. I am a diabetic of 30 years and I STILL hate needles. One of the things that always frustrated me as I was growing up was people saying they imagined I was used to it by now. No. It STILL hurts and I STILL don't like it. You don't get used to pain. You learn to tolerate it.

Elizabeth - posted on 04/24/2010

Yes! A pump is a LIFESAVER!!! Ainsley would be so lost without hers... her dr didn't want her to pump (weird southern drs...) but she insisted on pumping and it has made their life so much easier.

Mayme - posted on 04/24/2010

I don't have a child with type 1 diabetes, but I have it. I was diagnosed when I was 10. I'm 41 now. When I was diagnosed the only options for insulin were beef and pork N and R. Fingersticks were not available and all testing was urine and done in a test tube. Now I can accurately check my blood sugar at home and on the go and have an insulin pump instead of having to take shots. Shots used to be a once a day deal back then. Good control was virtually non existant because they only did the one shot a day thing and only had urine tests to go by. There have been so many advances in my lifetime. Just imagine the advances that might be made in your child's. Perhaps we will find that elusive cure. I have taken part in research studies for 30 years now in the hopes that some day some child won't have to do what I've done my whole life. It does become routine but it also gets to be frustrating. You will have ups and downs as your son grows and changes. His emotions and his physical changes will all affect it. There will be times he doesn't even think about the diabetes and times he gets so mad at it he cries. I know all of those things from being the child and growing into the adult with type 1 diabetes. When he is old enough definately sign hiim up for diabetes camp. Best experiences of a lifetime.

Elizabeth - posted on 04/24/2010

My best friend's little girl was dxd at 17 months. ((HUGS!)) I know it's so scary, but eventually, it does just become life. She's almost 3 and is doing WONDERFUL. There's a website that has offered her great support over the past 18 months... http://childrenwithdiabetes.com/ Have you found a good endo?