Any Mothers who have children with Duchenne or Other Forms or Muscular Dystrophy?
Nida - posted on 03/10/2016
How's your son doing Stacey. My 5 year old was diagnosed with Muscular Dystrophy. They are running genetic tests to see which one. Th doctor said its most likely Duchenne. His CK levels were very high around 17,800. I'm just absolutely devastated. No one in my family has the disease so I'm in complete shock. I can't sleep. I just don't know how to cope.
Join Circle of Moms
Sign up for Circle of Moms and be a part of this community! Membership is just one click away.Join Circle of Moms