Any Mothers who have children with Duchenne or Other Forms or Muscular Dystrophy?

Stacey - posted on 06/11/2012 ( 6 moms have responded )

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I have a 14 month old son who has Duchenne Muscular Dystrophy we are from Cincinnati,Ohio

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Nida - posted on 03/10/2016

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How's your son doing Stacey. My 5 year old was diagnosed with Muscular Dystrophy. They are running genetic tests to see which one. Th doctor said its most likely Duchenne. His CK levels were very high around 17,800. I'm just absolutely devastated. No one in my family has the disease so I'm in complete shock. I can't sleep. I just don't know how to cope.

Selvi - posted on 01/11/2016

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My son also dmd.... i am trying stemcell trial also some traditional treatments

Sharlene - posted on 06/14/2012

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Try this community. Mothers who have a child with Duchenne Muscula... .good luck

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