Ashley - posted on 04/20/2011 ( 2 moms have responded )
My daughter was diagnosed last Oct. She has been tested multiple times for this syndrome & everytime it has come back negative. The test is only 30% accurate. Due to her having some many of the characteristic they placed her into this syndrome. She also had alot of congenital diagnosis which could be the reason for these characteristics also. Any advice of what to look for if your child does have this syndrome.