Anything I can do about problems with the social security office?

Heather - posted on 07/08/2010 ( 14 moms have responded )

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social secruity office is not helpping me out when it comes to my daughter who is special needs. i work full time and make under the alowed wages for the state. i just dont get it. dont they know i need the help and i dont quilfy for any other assistance.

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Linda - posted on 07/22/2010

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Appeal, appeal, then appeal! We had the same problem. It was hard and they ask for so much information that alot of people give up. Don't give up! My son is 19 now and I am finally getting monies to take care of him at home. He is also of age now that he gets SSI. We struggled for many years and it payed off. Keep plugging away.....and bring your child to your appeal so they can see for themselves what you have to deal with! We did. That's when we got approved!

Mandy - posted on 07/12/2010

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No matter how many times they deny you keep appealing it. Get your physician and thereapists involved. Good Luck!!

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Linda - posted on 07/22/2010

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I had someone tell me a long time ago that the earlier you apply for SSI, the easier it is to get it. I had a DES (Dept of Economic Security) tell me to apply for SSI for my grandson when he was young even though I really didn't need the money then. He said if I waited until he got older, it would be harder to get.

Maralene - posted on 07/22/2010

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I'm not sure what state you are in...but the benefits are there and you need to continue to add up the documentation...doctors, school, psychologists, etc... also go to your local Social Services and find out what programs your state has... some states have Managed Care for Long Term Support/Family Care...Depending on the disability, be sure to go to the organizations that serve that population of disability ie., United Cerebral Palsy, Autism Organizations, Special Olympics...etc...they all have people who can help you navigate and know many of the key people even in the Social Security offices... contact Ombudsman, etc...and if all else fails contact your local state legislatures...their offices should also help you navigate... get a convergance of resources... I trust this assists you...I work for non-profit that serves adults and children with disabilities in WI as the marketing director... and there are other organizations like ours in other states... even early childhood programs often know key agencies... Maralene

User - posted on 07/22/2010

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I feel your pain; I have applied for my daughter about 5 times now. At one time, I wasn't employed but receiving child support which they count as income and it made my income too high. Can you imagine that??? I cannot afford an attorney so I have given up at this point

Brenda - posted on 07/22/2010

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Having a child with special needs can be a dbl whammy! Not only does it take time from work, they need special equipment. People with kids w/ special needs need to stop apologizing for needing extra financial help.

Jennifer - posted on 07/21/2010

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reapply, appeal etc. also ask the school for referrals to specialists, consider your local mental health center for counseling for the child. all those records can be used in your appeal process by the reviewer. have someone who is familiar with your childs needs and NOT related write a letter in reference to your childs needs. good luck. if all else fails, get a lawyer and fight them. most states have free legal aide or you may be able to talk an attorney into probono.

Gloria - posted on 07/17/2010

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Someone has to stand up for your daughter and it has to be you. I know i have 2 special needs boys and believe me i stand up and talk for them. Hang in there it all will be worth it. GOOD LUCK

Autumn - posted on 07/17/2010

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yes never let the appeal lapse boy you can get money for all the back pay they owe you ... it is frustrating but keep plugging along

Heather - posted on 07/12/2010

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wish me luck im heading to the office tomorrow. i hate this feeling like im doing something so horrible just because i have to do something to help not only me but my daughter. this sucks

Heather - posted on 07/11/2010

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this is an on going problem for the last 4 years, first they tell me i make too much, and i get that taken care of and now they keep estimating the wages and still. if i didnt think i need the money to help her out in any way i would just give up. thank you for the wonderful advice.

Becky - posted on 07/10/2010

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Go get a lawyer for s.s. benefits. They can get you the benefits your child needs.They get results faster than you can get on your own. Good luck with everything. Becky

Iridescent - posted on 07/09/2010

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Social Security nearly 100% of the time will deny any application the first time. My daughter's disease is a 100% approval rate, but they still denied it initially. I had to appeal twice. Keep appealing!!! Be stubborn. Some states also have programs which allow for state health insurance for those applying for SSI if the state determines the child is disabled - ask about this and apply. In Minnesota it's called SMRT. Each state is likely to have their own name for it. Once SSI approves, they go onto Medicaid in general, as a secondary insurance if other insurance is available, primary if not. Show you are serious, keep them up to date with changes, doctor appointments, etc. Request a social worker assist you with appeals to SSI if necessary. The programs are out there, but getting started is really the hardest part.

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