Are there any moms out there who has a child with Torticollis Plagiocephaly?

Christy - posted on 09/04/2009 ( 3 moms have responded )

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My daughter is getting ready to be assessed for a helmet.

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My son had Torticollis as an infant, and the Dr. would not listen to me that he was only turning his head in one direction. He ended up with positional plagiocephaly...and was the oldest child in Oregon to be put into a helmet ..he was 18 months at the time...his age was a big factor as to the fact of would it work or not. His helmet caused him allot of pain and discomfort, and he would end up with sores under the helmet. This is a rare problem and they think it happened because he was to old to shift the plates in his head, and because he has microcephaly (small brain mass). We ended giving up on the helmet, because of his age and the pain it caused..as well as the fact that he has allot more medical problems beside the shape of his head. In most cases the helmet is highly successful....there was a People magazine article on them a few years back..you may be able to google it and see if you can read it...I found it helpful at the time...good luck with your little girl and in the mean time massage her neck muscles/ have her see a therapist to help her neck muscles loosen up. And for heavens sake keep her from laying on her back..which is causing most our kids to have this problem..this has become allot more prevelent since "Back to Sleep" and SIDS...hope you baby ends up just fine, and I am confident she will!

Cindy - posted on 11/09/2009

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My son has had a helmet since August and the improvement that has come along with it have no words to describe it! He first had to have the craniosyntesis surgery to undo two bones in his skull that were fused together and then recieved the helmet about a month afterward. It's a lengthy process but well worth it.

Janet - posted on 09/04/2009

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Hi Christy! I will also forward this to my friend whose daughter just began wearing a helmet as well!

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