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bladder exstrophy

Amanda - posted on 11/15/2008 ( 3 moms have responded )

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my daughter was born with bladder exstrophy .. just wondering if anyone else on here is the mom of a bladder exstrophy kid

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Ashley - posted on 05/10/2012

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I am currently 13 weeks pregnant and learned from last u/s that the baby has bladder exstrophy,possible developemental delay to left leg,and the heart is lower in chest due to bladder not being there to "hold everything else up" the dr said that the spine looks good, and no sign of spinabifida, so far but it's hard to tell since it's still so early, i go back in three weeks for another u/s and a possible amnio,just depending on how everything looks... i am desperate to find other mom's going through/or that have went through similar situations like ours and any words of encouragement/advice would greatly be appreciated! Thank you in advance :)

Rhianna - posted on 12/28/2009

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my son has bladder exstrophy as well. we have a bladder exstrophy group here if you would like to join! feel free to message me anytime if you would like to talk!

Julia - posted on 07/21/2009

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My son was born with BE in April 2008. drop me a line if you want, :)

Julie

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