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Cardio-Facio Cutaneous Syndrome

Jennifer - posted on 01/27/2009 ( 1 mom has responded )

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My name is Jennifer and my daughter Natalie was diagnosed with this rare genetic syndrome around age 1. From my understanding there are approx 200 cases documented worldwide. Am wondering if there are any moms out there who have a child with this syndrome??

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Cheryl - posted on 09/12/2009

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my child has a syndrome with no name, what way is ur child affected?

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