Cerebral Palsy

Tomeka - posted on 01/16/2009

Hi my name is Tomeka and my 5 year old son was diagnosis with CP right after is 1st birthday. It was all do to birth not enough oxygen to the brain. He receive speech, physical and occupational therapy since he was 6 or 7 months old. 

Crystal - posted on 01/16/2009

No, but I actually had to get them to diagnose her with floppy baby syndrome/hypotonia. One doctor told me she might have it from seeing her in the hospital and assessing her situation...so I asked her regular doctors because her therapists at home were saying the same thing and they said "could be since she also wakes up slow with anesthesia." They must have diagnosed her with it though because the next hospital stay the take home papers listed it under some of her diagnoses.

Sarah - posted on 01/15/2009

Sorry to hear about your situation, unfortunately I can't say whether your daughter has CP or not. If the doctors have done tests (MRI'S) & they haven't shown up anything, I guess she most likely doesn't, especailly if the doc's have made a diagnoses of floppy baby syndrome/hypotonia. My son had a couple of MRI'S also which showed damage to the area of his brain which controls his movement, speech, etc. Have there ever been any mention from the doctors that she may have CP?

Sarah - posted on 01/15/2009

Sorry to hear about your situation, unfortunately I can't say whether your daughter has CP or not. If the doctors have done tests (MRI'S) & they haven't shown up anything, I guess she most likely doesn't, especailly if the doc's have made a diagnoses of floppy baby syndrome/hypotonia. My son had a couple of MRI'S also which showed damage to the area of his brain which controls his movement, speech, etc. Have there ever been any mention from the doctors that she may have CP?

Crystal - posted on 01/15/2009

Could my daughter have CP?? She never has been diagnosed it by any of her docs and has had multiple MRIs. My daughter had a brain tumor resected at 8 months of age. It caused her to be totally blind and have a whole slew of endocrine issues. She is 5 years old and still not ambulatory on her own. She also doesn't like to sit for prolonged periods of time on her own and she would prefer it if she were in her various seats supported instead. She has been diagnosed with floppy baby syndrome / hypotonia.

Anne - posted on 11/18/2008

Hi all, my 14yo daughter Belinda was born 3weeks 2days early (which is nothing), but like most of you others, her problems were caused at birth. Long story short. She had half an hour of manually pumped oxygen before they declared her deceased.Her heart started on its own. Was given anti seizure meds etc. Result is Severe Global Developmental Delay and mild ataxic cerebal palsy. In other words a 14 yo with infant intellect, no speech and still (and probably forever) in nappies. But boy can she run!!

Danielle - posted on 11/18/2008

Hey guys!

My son Ethan has severe cerebral palsy as a result of oxygen deprivation at birth. It is great to stay connected with other moms!

Danielle- mom to the best 7 year old on earth!
Ethan 7 CP
Hannah 6 typical

Misty - posted on 11/18/2008

Hi guys, my son, Jake, was born 3 1/2 months prematurely, and weighed 1 lb 11 ounces at birth. He was hanging in there until the 3rd day, when he had a severe stroke in both sides of his brain. The 10 neonatologists at the neonatal intensive care unit recommended discontinuing treatment (ie. taking him off of the ventilator). My husband and I believed that if he could enjoy anything, it was better than taking away everything. He is such a sweet boy :) He has tone, which will probably be diagnosed CP sooner rather than later. He has hydrocephalus, and has a VP shunt for that. Luckily, he did not stay on the feeding tube for more than 3 months, and because it kept popping out, he had it removed in September. He has a cortical visual impairment, but it seems to be improving. So good to meet moms who are a little farther along in the process than me. It has been so tough to accept what happened to my poor little guy, but I want to make the most of every day for all of us.

Tracy - posted on 11/17/2008

Hi Sarah, so sorry for the traumatic birth of Tylah. My son will be 2 in a few weeks, and has cerebral palsy, mental retardation and is severely hard of eating and wears hearing aids. He is also not able to sit on his own, crawl or walk. He doesn't have any type of communication either. I'd love to catch up with other moms who have an idea about what it is like. My AJ did not have any oxygen either when he was born for atleast 8 minutes. uuugghhh. Good luck to you!

Andrea - posted on 11/17/2008

Hi Sarah, I also have a little boy with cerebral palsy, which was caused at birth, he also cannot walk, talk or feed himself, i would love to talk to other mums that are in a similar situation, my name is Andrea and my little boy is called noah and he is three.