Child born with Spina Bifida

Janine - posted on 03/06/2011 ( 9 moms have responded )

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I have a 15 year old son born with spina bifida (meningomyelocele) the most severe case of spina bifida.

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Janine - posted on 01/02/2014

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My son now will be 18, on January 9th. Take care. If you need any info let me know, I will be there for you.

Janine - posted on 01/02/2014

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I live in Wisconsin, Red Cliff which is a reservation, 3 miles north of Bayfield.

Alexandria - posted on 03/17/2011

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hi janine,
i have a son with spina bifida same form and hes 3 1/2 yrs. : )

Lola - posted on 03/08/2011

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Thankfully none of mine were born with Spina bifida, but I had a brother who was severely paralyzed at birth (apparently it runs very strongly in our family). Although he only lived to be 24, he surpassed the doctors' belief that he wouldn't live 24 hours. He had a full life with the family. He was my best friend and I miss him terribly.

Kate - posted on 03/08/2011

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I have a 13 year old grandson I am raising with spina bifida. am in West Virginia.

Trish - posted on 03/08/2011

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I also have a 15 yo son born with spina bifida myelomeningocele....originally from the west coast...but currently live on the east coast...where are you?

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