Jo - posted on 07/10/2012 ( 4 moms have responded )
My daughter was diagnosed with CP spastic diplegia in March this year. Since then it's not been an easy time for her due to physiotherapy and all the appointments etc. It's not been easy for us either because at some point we had to realise that there is actually something wrong with our baby's health. Not mentioning the backache (Emily is 24 months old and carrying her is hard especially for me). But they say she will walk unassisted one day and this keeps me up !! She's such a lovely and bright child. The thing is that I don't know anyone else who would have a child with spastic diplegia. Most of my friends seem to have healthy children so most of the time they just don't understand. Sometimes it is so frustrating when you go to the playground and everyone is looking at you because they can see she's a big girl now and doesn't walk and then they try to find out what's wrong. But they wouldn't give support, they just want the gossip. And because their children run around they think they are experts and will ask you questions like - Did you go to the doctors?
Was wondering if other moms of children with spastic dilegia have similar feelings. Don't you feel a bit isolated sometimes?