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Children with spastic diplegia. How are you moms doing?

Jo - posted on 07/10/2012 ( 4 moms have responded )

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Hi there.



My daughter was diagnosed with CP spastic diplegia in March this year. Since then it's not been an easy time for her due to physiotherapy and all the appointments etc. It's not been easy for us either because at some point we had to realise that there is actually something wrong with our baby's health. Not mentioning the backache (Emily is 24 months old and carrying her is hard especially for me). But they say she will walk unassisted one day and this keeps me up !! She's such a lovely and bright child. The thing is that I don't know anyone else who would have a child with spastic diplegia. Most of my friends seem to have healthy children so most of the time they just don't understand. Sometimes it is so frustrating when you go to the playground and everyone is looking at you because they can see she's a big girl now and doesn't walk and then they try to find out what's wrong. But they wouldn't give support, they just want the gossip. And because their children run around they think they are experts and will ask you questions like - Did you go to the doctors?

Was wondering if other moms of children with spastic dilegia have similar feelings. Don't you feel a bit isolated sometimes?

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Joan - posted on 08/28/2012

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Hi Jo. I have a soon to be 2 year old daughter with spastic diplegia. We live here in Ireland and attend an early intervention clinic. Through this I have met other parents with children with the same diagnoses. A cannot get into or out of sitting. But she can sit up. She also only commando crawls not on all fours yet. She has recently got splints and a standing frame and is doing well in these. She is a very happy child and very intelligent. She talks with wee little sentences and is very funny... She can self feed and drinks from a cup with a straw. How are you doing now? I know some days I'm ok others I feel like crying all day, for her and for what her future holds... Anyhoo maybe you'll log on here soon & reply :)

Sharlene - posted on 07/19/2012

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Hi jo, We have our good days and we have our bad days .It's hard to explain to people of having a special needs children. But at the end of the day with all the invention she in and other proigrams were happy lol

Jo - posted on 07/19/2012

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Hi Sharlene,
she was diagnosed this year. Probably she was born with it, however the symptoms were very mild and evolving, so it wasn't obvious. How about your daughter? How are you doing? It gets hard at times as for me (backache).

Sharlene - posted on 07/17/2012

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Hi, My daughter that's 2 yr's old has mild CP and other GDD's . she cant walk either but sometimes with assistance she seems unsteady at times. May I ask was your daughter born with this or did you just get diagnoise. take care

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