Chiropractors

Kimberly - posted on 09/16/2010 ( 13 moms have responded )

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A new friend that I met on the Inspire website has been getting chiropractic treatment for her daughter that is hypotonic. Anyone else have great things to say this therapy?

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Miranda - posted on 02/16/2011

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I do have great things to say. I see this was posted a while back but I have to share my experience. Isabel was born 9 mo ago with severe hypotonia, hypermobility and torticollis. Spent 10 days in NICU. Her torticollis did not resolve with any stretching or therapy and I really felt this was holding us back from working on other things. So we decided to take her to the chiropractor. He adjusted her and immediately we saw results on the torticollis. We went weekly for a while then biweekly. with in the couple of visits we saw a dramatic increase in her mobility. She went from not being able to lift her legs off the bed to lifting them up and rolling over with in a week of her 2nd adjustment. The Chiro said that the torticollis was hindering the connection between the brain and muscles. So we now see the chiropractor weekly and she is doing great. A few of the benefits we have seen: constipation is no longer an issue, sleeps better, not fussy, head and neck control is advancing, arm and legs are strengthening, trunk is getting stronger, he also gives us tips like "on the muscles you want to strengthen massage them, tickle them, run toys up and down her back gently, the more sensations the more your making the brain to muscle connection work." Now I don't care about a diagnosis I am seeing her get better before my eyes.

Kimberly - posted on 09/22/2010

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Hmmm The other support groups I belong to throw around the term "hypotonia" left and right as their child's label. Most only have low trunk tone as well. My daughter was 2 months premature. Was your son early? Insurance coverage was a joke after her 3 month initial NICU stay, she was picked up by SSI Medicaid for low birth weight. She's our million dollar baby. I'm pretty sure their kids are on the same medical plan for the same reasons. I can see why your doctor wouldn't do that to you with private insurance. Give it your best shot Obama!

My daughter has always maintained her own growth curve off the chart as well. She fought me on purees until a couple of months ago and is doing much better, She's not eating solids yet but we're working on that and have a speech appointment in a couple of weeks through the Texas Children's, not ECI. Glad to hear your son started turning around after his eating improved- gives me hope. But I know nutrition has everything to do with her improvement.

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Kimberly - posted on 02/16/2011

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If you haven't already, check out my link to the Anat Baniel Method or Google it. I believe that ABM, pedi chiro and changing PT & OT services to a private company that comes out twice a week each, (as opposed to ECI which PT came once a week and OT twice a month) have all pushed her over the hump to get where she is- before these changes, she wasn't sitting unassisted, getting into the sitting position, crawling, pulling to stand and cruising- which she is now doing.

You're not crazy at all. I always asked about my daughter's spine, hips and all around skeletal structure that always looked "off" to me and was always dismissed by doctors and PT. As I mentioned, the chiro pin-pointed every single thing that I had questioned in regard to her skeletal structure without me pointing it out. One shoulder always looked dipped and her hip as well. To where I was concerned about Scoliosis. She now sits with terrific posture and her pelvis is much looser- enabling her to have better movement all around. It really is amazing.

Miranda - posted on 02/16/2011

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Oh that is so great! I am amazed at what they can do. I am glad to hear someone else is having good results too because I was begining to wonder if I was crazy. None of the doctors or specialists will even acknowledge the chiropractic care as helping at all. But honestly I feel like the chiropractor is the only one who has been able to give us any answers or even theories that make sense. And also the only one to get results. We are going weekly now because she is increasing her physical therapy and I want to make sure she is well adjusted through out. Thank you for posting back!

Kimberly - posted on 02/16/2011

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Thanks for posting the update Miranda! That is all great news! I have been taking Kylie to the pedi chiro since my last post and also saw wonderful results. The chiro pointed out all the trouble areas that I had been concerned about without me even mentioning them. We saw her weekly for the first few weeks and are now seeing her once a month and I keep seeing improvements in her as well.

Kimberly - posted on 09/23/2010

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You should be able to qualify for your local Early Childhood Intervention program. your doctor ordering these services should be able to give you the contact information. These are all wonderful therapies to help your son in all areas. I know it is scary but you have come to the right place. There was a hypotonia community here but it was a ghost town and no one ever replied to my posts. Maybe I will start a new one for us. Also, join Inspire,com - a lot of preemie moms have hypotonic kids and have good advice. Yahoo groups has a Hypotonia board and from there I got information on the Anat Baniel Method. From that website you can find a practitioner in your area. I have seen a lot of good results so far. You might look into social security disability for him. Things will get better.

I'm here for you so send me a message anytime you need me :)

Here's the website:
http://www.anatbanielmethod.com/help-chi...

And PA early intervention sites:

http://www.dpw.state.pa.us/About/OCDEL/

http://www.firstsigns.org/treatment/EI.h...

Best of luck Mom.

Lucy - posted on 09/22/2010

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I cant believe i read this post, my son Tyler age 2 was just diagnosed with Hypotonia. I put a post just tonight asking for help, he cant eat right, walk or talk, and the neurologist ordered all this therapy, ot, pt, feeding therapy, speech, i know nothing about it, and scared can you give me some advice what to expect, will it get better? I live in Pa. and insurance wont really cover anything or help find a place to do all this therapy. i feel better knowing i am not alone. but i feel stuck, not knowing what to do .

Fern - posted on 09/21/2010

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Oops you are right, I misread that as hypnotic. That's funny! I have never heard of a chiropractor doing hynosis, now I know why, LOL. And yes hypotonic is low muscle tone, but they usually don't call a child hypotonic unless its a severe case. Most doctors don't like to label children unless its severe and is required to get services so they don't prevent the child from obtaining insurance. Although Obama is trying to change that.

I don't know what the issue with double services is with EIC, but they don't like to do two for some reason. I guess they are trying to provide services to as many children as possible and since their therapists are cross trained, they want to have one therapist do a child's therapy. It worked well for us, but Ben's hypotonia is isn't as severe as some children's. He's pretty much overcome that issue.

Has your daughter had problems eating due to the hypotonia of the jaw? Ben had a terrible time with eating and barely stayed on the growth chart until he was 18 months old. Then once his therapist worked with him and he finally started eating things that were harder to chew (mainly proteins), he finally started gaining weight.

His speech was also affected by the hypotonia, but its much better. His therapist worked with him for almost a year before getting a major breakthrough and since then he has been doing really well. There are still some sounds he has great difficulty with, but for the most part, we can understand just about everything he says even if its not correct. When we started, he couldn't communicate verbally hardly at all!

The school has changed his speech class, so I really hope I can get him into Head Start!

Kimberly - posted on 09/21/2010

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Thanks for the info. My daughter has been getting PT and OT from ECI since she was 3 months old. She also has an ECI dietitian that follows her as well. We're trying to add Speech too. She has also been receiving Anat Baniel Method lessons locally for the last two months. I took her to a pediatric chiropractor for a consultation last week but have not had her examined or adjusted yet. I was trying to get some feedback on the results parents have seen afterwards. So far the results from the ABM lessons were almost immediate and have made a major difference. Low tone in the trunk and jaw is also what my daughter has. Hypotonia is just another blanket term for low tone. Ah, I now see where you misread...hypotonic not hypnotic. ha
ECI OT recently decided not to recommend services because they felt they were duplicating the same treatment as PT- so I went elsewhere for it. Medcare Pediatrics has picked us up and is now coming out to the house twice a week as apposed to ECI's twice a month. I may add Speech with these guys instead of ECI. They are really lacking funding right now and boy does it show.

Fern - posted on 09/21/2010

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@Kimberly: I have several pieces of information for you. First a chiropractor will assess your daughter to see if she needs to be adjusted, most kids do. The first place that a subluxation can occur is the delivery room, especially if they are tugged or pulled on or if the delivery is hard. Then kids take all kinds of falls, tumbles, bumps, etc. and this can cause their spine to be out of alignment. I think chiropractic care is a great idea and I do think it could help your daughter. However I am not sure it would solve all her problems. Has your daughter been evaluated by Early Childhood Intervention? If not, then you should refer her. I can help you find your local program if you live in the US.

As far as the adjustments go, they are very gentle. They can be done manually with the chiropractor's hands, with an instrument, or with a drop table. There are different techniques depending on which bones are out of alignment, how your child tolerates it and what the chiropractor thinks will be beneficial. You definitely need to find a chiro that works with kids! But other than that, its no big deal. Most kids love their adjustments. My son has had several in his 3 years of life and never was bothered by it and it did help him with certain issues.

Early Childhood Intervention is a Federally funded program in the US that is run by each individual county in each state. It is a program to that is designed for evaluation and treatment of children from birth to 3 years of age, who have any type of physical, mental, emotional, or developmental delay. My son has a speech delay and low muscle tone in his jaw and trunk that was treated by this program. He is now too old for it and has phased into his local public school system. I am looking into getting him into the Head Start Program.

Kimberly - posted on 09/21/2010

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Hi Fern,

Being hypotonic with some global delays, my daughter is not crawling or walking yet at 18 months. Another mother that has a child with similarities to my daughter suggested a chiropractor. I guess I should say I am interested in information on pediatric chiropractor care.

Thanks!

Fern - posted on 09/21/2010

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I don't much about hypnotic therapy, except that I went to a doctor (not a chiropractor) who I was not comfortable with so I didn't continue. But I do love my chiropractic care. It is a life saver for helping to reduce my pain! What is the reason your child needs this therapy. I may be able to help if I know more about what is needed and why.

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