Heather - posted on 07/17/2009 ( 47 moms have responded )
my 5 yr old has microcephaly- small brain, vision issues, global dev delay, reflux and asthma. He also has low oral motor tone/skills, and feeding/getting fluid into him can be a challenge. We went to Boston Children's Gastro dept today, and they suggested a g-tube as a back up of sorts for the days he won't eat, or take his meds. I was wondering what other people's experiences have been with g-tubes. right now it takes 1 1/2-2 hrs to get a meal into him, which is food and 8 oz of fluid, 3 x/day, and an afternoon snack.