dandy walker syndrome

Lakisha - posted on 05/30/2011 ( 8 moms have responded )

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After nine years of not knowing what was going with my daughter i finally got an answer. She has severe developmental delay caused by dandy walker syndrome. I am still learning about this syndrome and wonder do anyone have any insight.

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Sandy - posted on 04/18/2012

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I've never heard of it but Dr.Mackinnon said that its a development of a cyst in the cerebellum
https://www.healthtap.com/user_questions/12901

I hope everything is ok in the end!

Jennifer - posted on 04/14/2012

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Ladies,
I'm in the same boat as well. My son was diagnosed with dw varient and partial charge syndrome and i have no answers about dandy. The doctors told me we have to wait and see. My son is excelling, praise God!

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No one gave us much information either and I'm not sure what kind of prenatal care my stepdaughter's mom got so I'm not sure if she could have found out before. We are kind of winging in day by day.

Penny - posted on 06/01/2011

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I did most of my research online and in medical books no one really told me what to expect when they gave me the diagnosis either i am still winging it till this day lol

Lakisha - posted on 06/01/2011

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I was told that my daughter could have been daignosed during my pregnancy. My doctor's didnt notice it. Within the first year of her life she had several CT scans and MRI done but no one could ever find anything. I finally found a great doctor that gave me all the answered i needed.

Penny - posted on 05/31/2011

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My 5 yr old has Dandy Walker Syndrome and was diagnosed prior to birth she also walks on her toes and has balance issues. She use to have what they called mini- seizures in her sleep when she was a baby but has been lucky to not have them any more.

Lakisha - posted on 05/31/2011

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My daughter also walk on her toes. She doesn't suffer from any seizures. She doesn't talk at all just make sounds. It bothers me that she cant tell me whenever she is in pain.

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We are also learning more about it as we go. Our daughter was 8 when she was diagnosed with it. She has developmental delays, walks on her toes, and seizures. We see the neuro every 3 months.

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