daughter with epilepsy, autism, add just need someone to talk too

Dawn - posted on 05/08/2012

Thank you!

Dawn - posted on 05/08/2012

Thank you sooo much! for your encouraging words it made me cry. You have a beautiful family! God bless you! You know It took me a while to get to your message but it was at just the right time, funny how things work out sometime. I had just got some bad news and i can't find the words or keep the tears out of my eyes to really talk about at the moment. But know that I really appreicate your post! Your kids are so lucky to have such a great moma!

Erica - posted on 04/11/2012

Hi Dawn,

My name is Erica. I just started posted to day. I read your post and it toushed mu heart. You remind me of myself in some ways when my son was younger. HE is 11 with CP. I contracted a virus called CMV. Most people around small children or cats get it BUT it only causses harm to an unborm child, such as mine was and I was around cats AND worked at a day care. I brought my son home and NO ONE had told me that by the time he was 1-1/2, he owuld not be walking or even trying to talk. I took him to the doctor to discover that he would NEVER be what we wish these babies were; Normal. I was hurt, angry, sad, depressed etc. It wasn't because I didn't love him, it was because I BELIEVED that all the hospital visits, sick stays, birth with a dislocated hip (due to the CMV), were all things that he would conquer over time. People would look at my miracle baby with all of these cords from an apnea monitor, oxygen and breathing machine and you would think that they had just seen an alien. I was very angry at how narrow minded people were. It took a few years but now I don't care what people think, I KNOW that some will treat him like he is a harm to them, stare at him like HE is crazy, and that he will never be so called NORMAL. I realized all of these things through one hard fact....that I could never change who he is, there was nothing that I could have done to protect him from this virus and that I am NOT the blame. I am blessed to have this child. A very long itme ago, which is during the time that I started to accept the fact that he would be special needs ALL of his life, a friend of mine once told me, after expressing to him how I felt, that God allows this to happen to people becasue only special people can take care of special people. We should be so thankful. I KNOW that it gets hard at times, both emotionally and physically but I am thankful that he is HERE and not just a memory. What you feel Dawn is SO normal Sweetie! Most if not all of us go through something of the sorts. It WILL pass once YOU become stronger. I'm not saying that it doesn't hurt me to the core of my soul that my pride and joy will NEVER have a wife, drive a car, attend college, live on his own, have kids or even speak, but I am saying that I HAVE to stay strong and know that I AM his future and that's okay. Sweetie you are brave for even caring for a child that has special needs so give yourself a pat on the back. They call us Super Woman because we as Mother's do SO much but some of us, such as ourselves, truly knows what it's like to be Super Woman, day in and day out. If you EVER want to chat, we are all here for you!! Many blessings. Stay positive :)

Bonnie-Fay - posted on 04/10/2012

Hi Dawn,

I just came across your post. I'm quite new on here too. I just wanted to say that you are doing an amazing job and that your little girl is blessed to have you in her life. I too have worried a lot about why my kids are like they are, whether I could have done something differently. I get guilty but I know that really it was all out of my hands, that this is our life and we're going to live it.

I also wonder about schooling for my kids because they will seem different to the other kids.

Both my 3.5 year old son and my 13 month old daughter have a condition called Ehlers Danlos Syndrome but my daughter is in the midst of being diagnosed with Spinal Muscular Atrophy as well. There's a good chance she'll never walk. It's so overwhelming some days I desperately want to cry but those days pass.

I guess I just wanted to let you know that you're not alone.

Good luck.