Dealing with Angelman Syndrome

Stephanie - posted on 01/11/2010 ( 1 mom has responded )

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My 2 year old daughter, Annabell, has a genetic condition called Angelman Syndrome. It effects her development on a wide basis but severely in the area of language/communication. I am looking for mothers(parents) of other angels so talk with and trade ideas, stories, etc... This can be a difficult condition to live with and we all need support. Please contact me if you have a loved one or know someone with this condition.

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Angie - posted on 01/19/2010

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hello i have a daughter who is going to turn 3 years old in february. her delays are also in the communication and eating issues. she doesnt walk or talk. you are the first parent that i have actually have tried to contact. it seems like there are not alot of angels out there or places to go and talk to someone who knows what you are talking about. it is very very difficult and frustrating and even extremely scarry feel free to email me back i am also interested in talking with you.

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