Does anyone else here have a child with Down Syndrome?

Rowena - posted on 03/22/2012

I have a son with Down Syndrome and now he is 10, and not talking, is there anybody out there that has a downs child that are not talking? HELP!!!

Cheryl - posted on 12/22/2011

17 month old daughter with DS !!! my princess!

Amber - posted on 11/10/2011

My boyfriend's son that we have custody of will be 4 next month. Let me know if anyone wants to talk!!

Penny - posted on 10/23/2011

I have a daughter whos 10

Liz - posted on 10/20/2011

Hi my name is Liz and my son Connor is also 15 with DS. Have you had any issues at school where his behaviour is quite silly? It is affecting his education and making friends because the school staff is so busy trying to correct his behaviour. Any suggestions?

Edith - posted on 07/20/2011

I was told by a grandmother of a child with CP one time when I said Joey is Downs "he has Downs not is Downs. He has a disability not is a disability" She was so right. I have to watch myself with that. That said I think all of us have been told to expect the very worse. When Joey was 2 weeks a doctor called us to her office 100 miles from our home. We were told she would help us get services started that we needed. That is not what she did. We were advised to put him in a "home". He would never be able to do a thing for himself, talk, feed himself or walk. That doctor needs to go back to school with parents like us as teachers. There are things he can not do that his 17 year old pers do but he does somethings some of them do not do. I live the story about the time a teacher (not his teacher) fussed because I let him follow the other children in play. He had to be a boy before he can be an adult. The other children helped him climb a hill and saw to it he got in line to slide. I stood at the foot of the slide keeping an eye on them. Every one had a great time. It taught him something and the other children too. My sister- in- law met us with our nephew after he spent the night with her. Her son is 2 months older than Joey They were about 18 and 20 months old. Joey was playing giving eskimeo sugar and doing hand motions to song like wheels on the bus and itsy bitsy spider. She got a funny look on her face and said Nick could not do that. It is all in what we teach them and what they like to do that helps them learn. Joey had a friend with DS that was almost 40 when he cought Swine Flue and died. Do not let a doctor get you down telling you how little your child will learn and how long they will live. They do not know. We live by a teaching hospital and I refuse to take Joey there for treatment because they are not taught to treat humans. We are just a body to learn on to "many" of the doctors there. They my try that on me but not on by child.

Edith - posted on 07/20/2011

I was told by a grandmother of a child with CP one time when I said Joey is Downs "he has Downs not is Downs. He has a disability not is a disability" She was so right. I have to watch myself with that. That said I think all of us have been told to expect the very worse. When Joey was 2 weeks a doctor called us to her office 100 miles from our home. We were told she would help us get services started that we needed. That is not what she did. We were advised to put him in a "home". He would never be able to do a thing for himself, talk, feed himself or walk. That doctor needs to go back to school with parents like us as teachers. There are things he can not do that his 17 year old pers do but he does somethings some of them do not do. I live the story about the time a teacher (not his teacher) fussed because I let him follow the other children in play. He had to be a boy before he can be an adult. The other children helped him climb a hill and saw to it he got in line to slide. I stood at the foot of the slide keeping an eye on them. Every one had a great time. It taught him something and the other children too. My sister- in- law met us with our nephew after he spent the night with her. Her son is 2 months older than Joey They were about 18 and 20 months old. Joey was playing giving eskimeo sugar and doing hand motions to song like wheels on the bus and itsy bitsy spider. She got a funny look on her face and said Nick could not do that. It is all in what we teach them and what they like to do that helps them learn. Joey had a friend with DS that was almost 40 when he cought Swine Flue and died. Do not let a doctor get you down telling you how little your child will learn and how long they will live. They do not know. We live by a teaching hospital and I refuse to take Joey there for treatment because they are not taught to treat humans. We are just a body to learn on to "many" of the doctors there. They my try that on me but not on by child.

Brigid - posted on 07/19/2011

I have an 8 year old daughter with DS. Talk anytime!

Amanda - posted on 07/18/2011

My son is 3 and had Down Syndrome

Pam - posted on 07/18/2011

Hi, I have a son who is 9 years old and has down synddrome. I'd be happy to keep in touch.

Kari - posted on 07/17/2011

I have a daughter thats 3 and has Mosaic DS, her name is Lily, I am more than happy to talk to you..:)

Alison - posted on 06/03/2011

Hi my son Bobby is down syndrome, he is 5 now. He had heart surgery at 9 months, but doing really well now, he'll be 6 on July 1st, would love to chat to anyone

Jennifer - posted on 07/08/2010

hi lisa i have a son named eli. i had him at the age of 16 he is gonna turn 11 on sept3,, he has downs,,, you really do have a blessing! he is my world and i wouldnt change a day that goes by he is such sweet child full of love and loves to hug and smile he is always gonna b a kids at heart no matter what age he turns! when i took him home from the hospital days after he was born they told me we wouldnt make it past the age of 21!! he has no heart problems no nothing so far so good!! if you ever want to talk im here with any questions you might have,,, oh and by the way he also has type 1 diabetes and needs insulin everytime he eats

Kylie - posted on 07/08/2010

Hi - I have a daughter who is 10 months and has downs. She is doing fairly well - able to roll, almost sitting and saying a few words - she is the light of my life :)

Stacy - posted on 07/07/2010

Hi! my name is Stacy and i just joined circle of moms. i have a 8 yr who is Downs with ADHD, OCD and anxiety. dr thinks we need to test him for autism also. does anyone here have a service dog for their child? i am looking into one for my son to help with him wandering away (we have a real problem with him being a flight risk all the time. i havent slept fully in years because i worry about him wanting to just go outside) and with issuses like hitting himself in the head repeatly when he gets mad.

i love to talk about my son and it helps me to talk

Wilma - posted on 07/07/2010

Hi My son Charlie will be 38 this year. He is such a joy. Love to talk to you anytime

Kim - posted on 07/06/2010

Hi I have a little boy (w/DS) who will be 10 July 26th. We have had lots of challenges with him medical and social wise. We are so glad to have this special little boy in our lives. You can get in touch with my on FB @ Kimberly Seward Luctman (let me know its through Circle of friends ) or e-mail me @ kaluctman@aol.com (subject: Circle of Moms)

Terry - posted on 07/02/2010

I have a son, Jake, who has Downs and is 31 years old. Would love to talk to you. Terry

Mary - posted on 06/28/2010

Hi Lisa,
My son with Downs turned 5 today. We didn't know before he was born, so it was a bit of a surprise, but what joy he brings. There have been moments of anger, pain, sadness, and lots of laughs and joy. David also has Central Auditory Processing Disorder (CAPD), ADHD and Epilepsy, but he has been healthy and always happy. He is in a normal preprimary with his peers despite his significant speech delays due to the CAPD, and all the kids and teachers adore him. He's a special boy who influences everyone he meets. Enjoy the journey!

Kay - posted on 06/25/2010

I know that there are many questions. I started with a group for Moms of mentally disabled children called new beginnings. The next step is the public school. I was fortunated to have my daughter in a skills for living class for about 8 years. The skills our special needs children need to survive are numerous. As a Mother we all have a tendency to pamper and baby our special children. Do so but the teaching should go on continually.

Josephine - posted on 06/23/2010

Hi, me too have a girl with Down Syndrome and I would like to talk to you. My girl is nearly 6 years old.

Lynn - posted on 06/21/2010

I have a daughter with Down Syndrome, she just finished first grade and will be eight this weekend. She has three grown siblings. I don't get online very often, but will check back with you - there are endless questions as you move down this road!

Melissa - posted on 06/21/2010

i have a 2 yr old with down syndrome. would love to talk.. email or fb me any time..melisa2008@ aol.com

Kelli - posted on 06/21/2010

Hi Lisa My name is kelli . I do have n angel(down syndrome) I love him with all my heart i wouldn't change him for the world.My son is 9 yrs old. he loves music n swimming. Plz dont hesitate let me know if i can be any help to u.god bless lisa keep your head up.

Linda - posted on 06/20/2010

My daughter Nikki has Downs and is now 23, she still lives at home with me I think she always will, she goes to college three times a week and is the light of my life. Sometimes life can be a challenge and I have had to fight for her but wouldn't be without her for the world

Kay - posted on 06/19/2010

My daughter is 37 and a joy. There is so much available for our special children today. My child is functioning pretty good. She holds a job and lives in a group home with 5 other ladies. My main statement is know that these children are special and it takes much patience. I tried to teach my daughter as many skills for living as possible. Any questions I will be happy to reply

Angela - posted on 06/18/2010

Hey, i have a 19month old daughter who has downs. I would love to talk to and anyone else who has a kid with downs. Kendra is such a blessing to our family and she is the smartest little girl ever. Please send me a message.

Keli - posted on 06/18/2010

My beautiful little 13 month old princess has Down Syndrome and i can not believe only today she had the tallest most muscly man in a grocery shop nearly crying with laughter not to mention the women behind the counter, the lady at the deli and the women waiting for our parking space!! She is a absolute joy, cherrish every moment be strong and dont let anyone treat you or your child differently!!!! x x

Dana - posted on 06/17/2010

Hello, I have an 8 year old son with Down Syndrome. It is a joy and a lot of stress,lol!
Dana

Kelli - posted on 06/17/2010

Hello! I do! My son is almost a year and a half. I'd LOVE to talk to your!

Michelle - posted on 06/16/2010

Wow, if any of us felt alone, we certainly don't need to. Just look at how many of us have a child with Down Syndrome! This is the hot topic on Circle of Moms right now.
My son's name is Benjamin and he turned 3 in March. When he was born they took him away right away - I'm still sad at the thought. He was shipped to another hospital to be monitored. After 2 weeks we took him home, but at 8 weeks old his heart failed. We stayed at Sick Kids in Toronto until he was 10 months old (surgery at 9 months saved his little heart). Although that prolonged hospital "visit" caused a ton of health complications, I can honestly say that Ben is an amazing kid. What a fight he has in him! Just today he took 4 steps on his own! But the thing that impresses me most about him, is that despite all that life has thrown at him in his short 3 years, his number one goal is to laugh, and to make those around him laugh. As frustrating as our kids can be, they bring so much joy.

Marcia - posted on 06/16/2010

I have a son, will be 7 in August and a new grandson two months. They both have down syndrome. My son has never had any complications, except tubes, but my grandson has reflux. You can email me at marcypalos@hotmail.com. Just post it is concerning downs so I will look for it. Thanks.

Jackie - posted on 06/16/2010

Hi, my daughter Danielle is 20 and has Down Syndrome. Glad to talk to anyone about it.

Jane - posted on 06/15/2010

Makaton can be bought on cdrom together with instruction books so you can learn it as you need at home.

Dawna - posted on 06/15/2010

Hi Lisa, My younger daughter is now 30yrs. I was 21yrs. when I had her. I call her my spitfire woman. I am here if you need someone.

Pam - posted on 06/15/2010

Hi, yes, I have an 8 year old son who has down syndrome and I would be happy to talk to you.

Dawna - posted on 06/15/2010

Hi Lisa, My younger daughter who now is 30yrs. had Downs. I am here when your ready.

Buffy - posted on 06/15/2010

My daughter Bailey has Down syndrome and just turned 6. Would love to help, listen, or whatever.

Shannon - posted on 06/15/2010

To those of you who live in more rural areas, like I do, with very little resources, you can always make a donation to your local library of books on DS. Our parent support group is planning to do just this and in Oct. we will put those books on display as an exhibit on DS for DS Awareness Month.

Shannon - posted on 06/15/2010

Hi Lisa! My son, Logan, is 4 and has DS. I would love to connect with you!!

Floreta - posted on 06/15/2010

Hell,I have daughter Down Syndrome. Oana 30 years.

Floreta

Samira - posted on 06/14/2010

Hi Lisa i have 3years old with Down Syndrome.So what is problem,?

Denise - posted on 06/13/2010

Hello, my son just turned 4 & has downs. He is a wonderful, smart, caring, happy, stubborn, loving little boy. He goes to preschool that is integrated with "typical" children & has made many friends. The teachers love him like crazy & call him their little love bug.

Sharon - posted on 06/13/2010

I have a twenty year old so with downs. You got support Lisa, any questions, you are not alone!
It was really cool when my son was diagnosed many years ago they didn't have Hippa -health care privacy act, the nurse called the intermediate school district-no releases signed but they came up and shown me a picture of kids with siblings - showing me that kids with siblings and how the child with downs bears some resemblance to others in the family members. BYW I think Hippa is good because it protects families of info getting blabbed all over the place but when there is some really good networking things that need to happen...we now have facebook and circle of moms, etc. Even my immediate family members were... we have a neighbor with downs, there was a girl we grew up with I think it was downs -similiar characteristics.

Alison - posted on 06/13/2010

hahaha, Bobby has a very stubborn streak, i too end up carrying him around when he throws a strop!!!! he still uses his pushchair and he is not a very good walker, and it makes life alot easier. im sure he enjoys the attention, especially when we go out for something to eat, he has to create, and when he is told off he seems to get louder and more stubborn

Julie - posted on 06/13/2010

I have a 16 year old daughter with Down Syndrome, I was told when she was born that she would not live for more than a few days, and that she would never walk and talk. She never sits down, never shuts up, and is a dancer and performer! If you need to chat, I am here every day x

DawnDe - posted on 06/12/2010

You are so right!

Mary - posted on 06/12/2010

my daughter Lucy is 19,she was born with Down Syndrome and she is doing wonderfully,she is a joy in my life and everyone she touches,scary at first but you will find out,our children are like all other children,they just learn at a different pace..the love comes natural from them and the smiles are endless...they will figure out anything if they want it,ha ha and smart they truely are...God Bless our children!

DawnDe - posted on 06/12/2010

Thanks for the tips, Our daughter started getting therapy when she was jsut 6 months old, here in MO there is a program called First Steps that is wonderful and you don't have to have insurance or use your insurance, it is fully funded. We also have respite care available so we get a break from the constant care & supervision she needs. We use it for date night. It has done a world of good for the whole family.

Tammie - posted on 06/11/2010

Hi, Lisa. I have a set of twins that are 4-years-old. My son has autism. My daughter has Down syndrome. Children with Down's are loving and wonderful kids. If you make sure that he gets regular therapy and get him into a good preschool, he'll be fine. My daughter is a little behind with her potty training, and her speech is still very delayed. However, she loves to dance and sing, she knows her shapes and colors, she can picture read a book, she engages in imaginative play, and she is very social. Just like any other preschooler. Your son will be okay. Just make sure that you get the therapy in place. He will probably be approved for speech, occupational, and physical therapy. Make sure you get the services in place and then monitor the therapists closely. Also, expose him to social situations like the playground, the park, the zoo, the museum, the library, church, etc. I find that my daughter is learning from social interactions as well. Please feel free to chat with me whenever you want to talk. Peace.