Jennifer - posted on 10/09/2010 ( 13 moms have responded )
My 10 yr old was 27 week preemie at 1lb 7oz, he had GERD, constantly had problem with feeding him... he would gag,projectile vomit, wretch, around almost 3yrs he was dx failure to thrive, put on hospital, (17lbs). They said he had pyloric stenosis. He was too frail to perform surgery due to his weight. So we went months with NGtube, medications. So we had the surgery of pyloroplasty, nissen-funloplication, and gastrostomy. The gastrostomy would only be done with nissen. I was told that eventually he would be weened off feedings by pump and go to bolus feedings. I always told doctors he was not tolerating the bolus feedings and he would still throw up (post-op). I think they thought i was exaggerating the retching, vomiting, and gaging continued. Over the yrs I told them, they would just decrease volume rate during feedings. His symptoms were worse post surgery. We kept him on feeding pump.
At 9 yrs old he was diagnosed with gastroparesis. He still has the nissen, even though he is unable to throw up or burp now he still retches, gags, has pain in his stomach after eating.
I think that if they just performed the pyloroplasty that they would be able to determine if the pyloric stenosis is what was forcing his food to come up and not reflux.( if food was unable to pass through stomach, of coarse the esophogus is not going to be able to hold it down, if it was allowed to flow then the pressure would not be on esophogus)
I am wondering if he even needs the nissen. Has anyone ever requested nissen be reversed? If so did the child improve?
I have a GI appointment coming up soon and would like some advice. Thank you.