Does anyone have a child with mild Cerebral Palsy?

Sheryl - posted on 07/05/2011 ( 157 moms have responded )

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Hello everyone! I have a 14-month-old daughter with Spastic Hemiplegic with right side weakness. She has been diagnosed for about a month. We are riding a roller coaster of emotions. One moment we are "She is great, she is fine" the other moment we are "Why can't this go away!". It is a tough transition to our new normal.



She has trouble with her right hand, arm, and leg. She can grasp a little bit with her right hand, but it is difficult. She isn't walking yet, but is pulling up and trying to cruise. We have been going to OT for a few months now and with that work, she is able to pull her thumb out and crawl!!!! We are also going to PT, while we have not seen results yet, it has been helpful. We are just hoping that with prayer, love, and support she will be the very best that she can be.



This new world feels a little lonely. My husband and I would love to hear of other families who have a mildly affected child with CP.

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Carol - posted on 06/10/2013

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I came across this site while looking up exercising with cerebral palsy. I am a 46 yr old woman who was diagnosed with CP shortly after birth. I was born weighing a little over 2 lbs physically I was much smaller than my peers until my teenage years.

My gate is noticeable when I walk. My left leg is the weak one. From the waste up my body functions normally.

My parents were very instrumental in making sure I lived as normal life as possible by having me attend regular school and participating in activities such as horseback riding and piano playing.

I have led a very productive life. I graduated from college as an accountant and later graduated from law school. I have worked in a small accounting/law firm for almost 20 years.

I been married for 21 years and have two great boys ages 15 and 12.

I went to physical therapy weekly as a child. I stopped going to therapy around age eleven. Although I was active by riding a bike and swimming during the warm months during the cold weather I was much more sedentary. I did not do any regular physical activity over the years and when I was in my late 30’s realized I needed to incorporate a regular exercise routine. I found a trainer at a local gym who was willing to work with me and over the years has helped me to maintain my mobility and to even regain some mobility I had lost.

It is hard to say with certainty the challenges a child with CP will face but I can say from my own experience that having a few loving people who saw my potential and allowed me to grow at my own pace was my greatest gift.

Put away the preconceived notions of what you thought you wanted in life and embrace this new notion; the one that lets you value the simple things in life. I always say that my goal in the morning is to get up and make it down stairs for my first cup of coffee anything beyond that is more than I could have hoped for.

Over the years I have obtained much more than that first cup of coffee in the morning but as sip the coffee I get to reflect on how lucky I have been and how much more in life I have to give.

I hope this gives you some peace of mind.

Carol M.

Tracy - posted on 09/27/2013

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My 19 year old son has cerebral palsy. The best advice I ever received was this: If you want to move into the acceptance phase to help your child understand how to cope, how to overcome, you first have to give yourself permission to grieve for the child you dreamed she would be when you first found out you were pregnant with her. Once you grieve for the dream of the child that is lost, then you can see your child for the glorious, wonderful, amazing blessing she is and all the hidden potential for greatness that is locked inside her. Then you can move into the "let's kick cerebral palsy's butt" phase!

Eileen - posted on 04/22/2013

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Hi I just saw your post , my son has mild cerebral palsy . I know the emotional roller coaster. I still cry sometimes and he is 19 now .He has done it all , pt ot, swim, karate, Botox. ... Etc. he is doing wonderful in college today.

Maria - posted on 08/20/2013

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Hi I Have just read your post. Can you please tell me what supplements you gave your child.

Xushiyue - posted on 08/03/2013

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I have a 26y son with CP.He was very flopy until 4y. He was more and more spastic after 4y and could walk.We lived in China.At that time,no hospitals could help us.We did everything at home wiht help of the book_"handling the young cerebaral palsed child at home" which was given by American pediartrics.At 8y,he went to regular school where there were no special services.He fell sometimes and had writting challenge.I was nevous to his safety and faced teacher's scold at school,but he must go to school,In fact,it is the hardest time for me.I was alone and not sure what was happening to him.I woke up from bad dreams from time to time.Now he has some scars on his head from that time.Fortunately he has not a big problems.

He is very smart and used computer at 13y.

He finished colloge education 3y ago.No company would employ him because of his disability.Now he does the work at developing software at home and independent life.
Hope it is helpful to you.

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Shiyan - posted on 07/03/2014

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Grace Heather's comment was really helpful to me. I am also eighteen, just graduated, and will be going to college in the fall. I took drivers ed last year with my younger brother. Passed the written but never got tested on the driving, as I wasn't ready and wouldn't have passed and probably still won't. I also have trouble staying in the correct lane and in the center of it, I seem to veer off to the right. I also have trouble getting the correct timing on braking and turning. Just several months ago looked up specific kind of cp, as I wasn't really sure what it really was. And found out that a lot of it matches how I react to certain things and how I feel. I was really glad to read what I found out then, and glad to read your comment and know it's not just me.

Katie - posted on 06/20/2014

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I can completely understand the I need to be strong but right now I'm just not statement you made. I too hope that one day I can be strong. I admire all of the strong mommas that work hard and love strong for their children.

Theresa - posted on 06/02/2014

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My daughter has CP and epilepsy and it's been a lot of ups and downs. She is an extremely intelligent child meaning she was moved up two grades in school and has an awesome cognitive ability. She suffers from gross and fine motor issues but fights through it all. She's a strong willed child and is finding her own way through her diagnosis. We have had a lot of setbacks over the years especially growth spurts which seem to affect her more than anything. They have tried to ease her spasticity through all types of medications and Botox between 18 and 24 shots at every visit every three months....she has been in OT PT since baby days. She has come a long way though and as a mom of a child with CP my advice is stay positive encourage your child to get through therapies right now at her young age it's probably fun. When she starts getting older it's going to be harder and a lot of work she may not even want to do it at all...that's how my daughter was...even now she hates therapy because she has to work...she hates casting because it hurts..but in the house she wants to try to do everything herself and I let her try to find a way that works for her to become moré independent. She is a tween now and has a ton of friends everywhere she goes and is one of the friendliest children I have ever seen. Just be her number 1 person for love attention help and support and the reward is huge. Just remember growth spurts are usually the most frustrating part of dealing with CP all the hard work she has done and all she is able to do May regress when she goes through those spurts. I have already dealt with that several times and honestly I hate seeing her walk with a walker and after the growth spurt we are back to sqare 1....I was told its a part of CP....another piece of advice check out the Shriners hospital they are a huge help and great with the kids.

Ali - posted on 05/26/2014

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We have a CP kid

and we would like to have her treatment on UK or USA.

But we dont have enough money to be there, i have heard from some one, UK Hospitals have this policy to take patients who do not have money on there own.

We live in pakistan and want to be in UK just for our Princess to be FIT.

Pls advise is there any possibility for that.

Ali Raza

Joanne - posted on 05/23/2014

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hi tracey turner... thankyou for replying to me everything u are saying is just how i have felt ,i have cried ,been shocked,and kate was born 5weeks early and was in hospital for only a week but did so well, and no doctors were concerned only till she started doing PE at school , it feels very lonely at times as people dont understand how u feel ,its just nice to meet somebody that understands thankyou.

Carson - posted on 05/07/2014

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US Soccer has an international program for players with mild CP . I found the them on Facebook and the US Soccer website under : US Paralympic Soccer Team


It's an elite program but it's great for our kids to have relevant roles models you are representing the US.

Hope his helps and is interesting!!!

Ricki Jill - posted on 04/28/2014

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I have a daughter with mild spastic diplegia. We were devastated when she was diagnosed at around 18 months, but she has been the hardest worker, and has the best work ethic of all the high schoolers at her Montessori School according to her teachers. She rides competitively on a HS Interscholastic Equestrian Team, and she'll probably ride for a college team.

She is a successful student and has won several academic awards, but she does have a learning disability in math.

Shelley's success is primarily due to extensive early intervention. She took classes in ballet, gymnastics, swimming, and horseback riding when she was a toddler. She also had therapy for sensory integration dysfunction at Children's Hospital. We've employed many speech therapists, and she now speaks like a speech therapist.

We were not happy with the lack of services in the public school system, and felt like it would be best to put her in private school. We are also considering homeschooling her next year because we want to travel to more horse shows. Shelley wants to be a horse trainer and perhaps a therapy trainer as well.

Her big sister is a senior at the University of Alabama majoring in Communicative Disorders. She will be a fantastic speech therapist one day!

If I can give parents advice, the first thing I'd tell you is to get a copy of Wrightslaw Special Education Law. Learn it! It's very important.

I also can't stress the importance of horseback riding especially if your child has speech/language issues. This is called hippotherapy, and it works. Plus many kiddos with CP can train and compete against neuro-typical kids.

I know I've put a lot of info into this post, but I hope it helps! Only special people are blessed with special kids! :)

Grace - posted on 04/17/2014

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I'm not a mother, but a girl with mild CP. I am an eighteen year old high school senior. I have mild spastic cerebral palsy which affects my right arm and leg. I never had any speech problems. I had a prenatal stroke affecting my right arm and leg. My basal ganglia was damaged so it is weaker. I have poor visual/spatial skills though my physical vision is fine. I also struggle with math and science. I still have special ed, but it's mainly for math and extra time on test taking. I have been taking vocal lessons since I was a sophomore, and I love language arts. I used to have seizures, but I haven't had one without medications since I was six. I no longer take seizure medication for seizures. I just got my Learner's permit, and I drove a specialized car for an evaluation for the first time. I had trouble making turns, putting the breaks on in time, and staying in the right lane without veering or hitting a curve. I want to learn how to drive so I can commute from college next year. I just worry that I'll never be able to do it. I really am sick of having others drive me from place to place. What do you think?

Sonia - posted on 03/28/2014

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Hi lovely mums,

Our son has spastic mild right hemiplegic. It causes tightness in his right arm. He's now 7 months and now has a confirmed diagnosis of having cerebral palsy. Im in pieces. I find all the services provided here in Australia confusing. I feel completely alone. There are options, choosing the right ones with confidence I find difficult. I especially find a lot of anger and heartache toward the way people announced it to us. It seemed they said it like oh well your son probably has allergies. I fight everyday to find the right sources for him. How do I raise him now? Does he go do "special activities" does he need a balance between both or through him in the deep end of "normalcy" we have physio every 2 weeks. We get told that's enough, for me it doesn't feel like enough. Now he has a speech pathologist and he's only 7 months old because he's not making sounds correctly. He's not rolling over..yet. I find my enjoyment of all those first times quickly get replaced by is he doing that right, nope ok how do we try to provoke him. I feel as if I'm continuously mourning the death of my child when he's alive we'll and happy which then feels like a lifelong torture. It's unfair, I know one day ill wake up and just get on with it. I need to be strong for our son but right now I'm not.

Clare - posted on 03/22/2014

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Hi ya my daughter has been having problems at school when it comes to writing she has trouble putting her thumbs up and has in toeing the docs checked her reflects on her upper body and she doesn't respond . Any ideas what this could be . She also walks with her arm raised up she is 7 yrs old I thought they diagnosed cp at birth ??

Roshni - posted on 03/19/2014

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Hi Rebecca.

I also have a 6 year old little boy, who was diagnosed with mild Cp at 4. He had his first seizure at one and a half years. He has the toe walking but only his right foot. It has been a roller coaster ride for us, but I thank God everyday that he gives us both the strenghth. He give me so much courage, when I look at him and how strong and determined he is, I feel so encouraged to do whatever it takes to help. He climbs and jumps and does everything every other kids does, he doesnt let anything get him down. He goes For Physio, for OT and is currently seeing a speech therapist. He would be needing the tendon extension as well, but his Orho feels, he been through too much already, so will wait a bit. At the moment we doing alot of streching excercise as well, and that helps. He is still on epilum 3 times a day for the Seizures, but I thank God that it is under control now. We are however having quitean issue with potty training, he just refuses to go to the loo....we tried so many things, anyone have any suggestions. I read that special needs kids usually have to feel confident enough, and that they usually start later. His OT is also assisting with that. He is in a montessori school at the moment, and doing so well. He has brilliant teachers, and even though, they were not equipped for special needs, they took him on board and been doing all they can to assist him. My frustration at the moment, is it is so sad, that not a lot of monterssori schools here in South Africa accommodate special needs kids. I have read and believe that montessori is the best schooling for special needs kids, as they have the opportunity of working at their own pace, as well as working one on one with their teachers. They not pressured and they are exposed to so many different ways of teaching. Their minds are more stimulated. It is a real roller coaster ride looking for another school at the moment, as the school he is in, only teach up to 5 year olds.

Tracy - posted on 03/13/2014

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Joanne Roper: my daughter who is 7 was just diagnosed with CP. We were/are in shock. Has always walked on her tip toes, been clumsy. She was also diagnosed with auditory processing disorder. The school she attends has never provided services to a child with these diagnoses. We are trying to find out what services she will need at school. We have a long road ahead of us. Every pediatrician she has ever seen missed it even though she was premature, could not suck, spent five days in NICU and developed late in all her milestones including speech delay.

Sarah - posted on 03/07/2014

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I have a 4 year old also with the same it's nice to no there is some support out there x

Claire - posted on 02/24/2014

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Hi, my son has mild CP. he didn't walk until he was 2, but once he did there was no stopping him! He now attends a mainstream primary school, and is doing fantastic. He has some problems walking long distances, and uses a wheelchair for these. He is about to have corrective surgery on his left foot, as the AFOS and corrective footwear have not been effective. It's very hard, but stay positive, I look at him now and can't believe the progress he has made!!

Arturo - posted on 02/21/2014

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I have a son with this condition,when he was 6 months old, some specialist told me that we wasn't gonna walk! she was right; he doesn't walk!! today he's 13 plays soccer(good at it) and does average at school, He loves video games, basketball and is pretty much like any other child but with a condition. We as parents need to tell things inside like they are outside, there's cruel and ignorant people everywhere! my son's been called, T-Rex because his left hand looks smaller and a lot of others things. I know it hurts as a parent to deal with that, but we don't live in neverland and we have been bullied without a condition. your job is to encourage him but far away of felling sorry for himself. Ive prepared my kid for some of the stuff that he may encounter and he reacted pretty good; he got back to the kid like this ... pray and thank God everyday that you are impairment free!!
God always has its ways of moving around, worry about getting your kids therapy and for the rest... Cross the bridge when you get there! I have a 7 year old daughter and they get treated and loved the same! they won't feel different if the people that loved them the most...always makes them feel special!
Good Bless

Alexis - posted on 02/13/2014

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Hi everyone! My son is 20months old and we seen 3 Dr's and the last one the neurologist is positive he has mild cerebral palsy. I started noticing he wasn't using it his left arm or hand at the age of 2months of age. He always held his arm up and close to him and his left shoulder seemed higher then the right one and always had a close fist. We mentioned it to a local service where they did home visits and checked him out and seen the concerns I had that I didn't think was right, so after that visit they had started PT every week and eventually referred him to a OT and every week he did pool therapy for about a month then went to the gym part and has been going every week along with PT
so therapy twice a week since 4months of age, thinking it was mild brachial plexus. He has achieved a lot of things he couldn't do before he didn't start rolling over till 7months on both sides, he didn't crawl till 9months using both hands and didn't start walking till 17months old. He couldn't roll on his left side back to stomach needed help he crawled using more right arm and used legs to push himself and walking he had a balance issue but soon started walking. He is 20 months now and is doing very well since we had started doing OT And PT therapy but now he knows his left arm is weak and goes and does everything with the right arm that's his dominate arm if he can't do it with the left he goes right to the right arm immediately! The left arm is very weak they have been using little 1/4 pound wieghts for him 1/2 pound is too heavy for his left! He has been given a MRI and EEG and came back normal and we seen a neurologist to tell us the results and he thinks my son has mild cerebral palsy monoplegia and to continue with therapy because he thinks if we stop doing therapy he is going to be more weakness and won't use it as much as he does now. He still has problems grasping Cheerios or anything small with the left only and has much more weakness in the left arm then right arm. I hope this helps anyone one with the child that have mild case of cerbal palsy I know I left a lot out of his sympotoms out but hope this helps. I'm praying for everyone and your children, keeping positive is a major roller coaster it's hard and need to be positive for our little angels!

Kelyn - posted on 02/11/2014

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Me n my partner have a daughter who will be 3 in may, she was diagnosed with spastic hemiplegia cp last year in January. It's in her left side, ATM she is going through the serial casting progress and will be having the Botox meddles done n maybe surgery on her muscles. There are days where I have my down moments as its really hard to have some one on one te with her coz we have 4 other daughters to attended. She only started to walk at the end of October last year (2013). She was 13 months old when found she left leg was shorter then her right leg. She started crawling at 18-19 months old n started pulling herself up on furniture at 21-22 months old. So ur not alone Hun. My name is Kelyn by the way n if u need to add me on Facebook I'm under Kelyn Darren Graetz

Vanessa N Gabriel - posted on 02/03/2014

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My daughter has mild symptoms of cp she's 18 months and says only 2 word's n crawls with her bottom she reaches out for toys n plays she's a very happy baby she has development delay and doesn't like texture on food i have to puree it Super good she gets pt twice a week and is low on weight there's times that she gags n has reflux

Linda A - posted on 01/31/2014

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Thank you so much for your encouraging, kind words. Have you had a difficult time making friends and/or dating? I know my son gets very down about this issue. Do you have a healthy support group of people? Any help you can provide would be greatly appreciated.
Thank you!

Michael - posted on 01/22/2014

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I have a 14 month old son who was diagonised with cp at 7 months and as we speak now, he cannot sit, crawl or grasp any objects. The paed said he has a high muscle tone as he has a siffness on both arms and legs. he always keeps his palms in a fist form and he is so small for a child his age. We have been going for pt exercises with him for the past 6 months but we cant notice any changes in him. Im encouraged from what i have read from other parents who also have their children with cp.

Rebecca - posted on 01/14/2014

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My son Tyler was Diagnosed with Cerebral Palsy at age 2yrs. He has spastic hemiplegic with left side paralyses. He's been doing OT, & PT since a few months old ,and had speech up until he was 7yrs. He is 11 yrs old now. He gets therapy at school twice a week & has Therapy out side of school for an hr every Tuesday. He has come along way. We were told he wouldn't do a lot of things, but we wouldn't settle for that. He has had one left leg tendon extension do to righting when he was 10yrs. He is doing well now. He use to have to wear two leg braces on both legs then his right got stronger and now only wears a left leg AFO brace. He is in regular school with an IEP doing 5th grade work. I went through a lot of emotions like you. The unknown is what is so scary. He started crawling close to 8 months old, he would use his arms to pull him self around. Then he was walking close to 2yrs using a walker. Then one day he stopped using the walker & before we knew it he was trying to run. We tried Botox shots in left leg with castings. He had allergic reaction to Botox so we had to stop them. At 10yrs his left leg had gotten so tight his foot was flipping backward. If we didn't do something he would have to go in wheel chair. So we found a great orthopedic dr & they did a tendon extension. Now we make sure he keeps his legs stretched to prevent tightening. Swimming is the best exercise. We have 4 boys & Tyler is no different then they are. He just has to work harder to do some things. We don't let CP define who he is & what he wants to be when he grows up. We always tell him he can become any thing he sets his mind to. He isn't a child with disability, he is a wonderful little boy that has special needs.

Sheliko - posted on 01/13/2014

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My name is Sheliko Diamond
I am 25 years old
I have Spastic Diplegic CP
I'm a male

I know what it's like...I know the struggle...I know the pain...I've faced it and still face it today...But, I'm here...Still fighting...For me, for US...For ALL with CP...If you need someone to be there for you...If you need someone to talk to, someone to listen...I'm here...

jaxasant@hotmail.com

Just one Email...I love you all

Linda A - posted on 01/12/2014

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Hello,

I have a 25 year old son who has left hemiplegia cerebral palsy. I remember feeling all alone when he was a baby. I took my son to Easter Seals three times a week back then for classes and socialization. No other child had the issues my son had and I struggled with my own feelings and how to be the best mom to my son. We have managed O.K.throughout the years and yet the biggest hurdles have been the unmerciful bullying Dan has sustained throughout his academic career. He worked so hard to graduate from college and is now struggling with finding work that focuses on his strengths. He is down right now and I'm reaching out to find help in this area.

If you ever need someone to talk to who really understands, please let me know. God bless.

Rachelle - posted on 01/07/2014

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My daughter doesn't have a cp diagnosis but she suffers from all the side affects of cp mildly. She is unable to raise her head up while on her stomach. She has tightening in her hands which are worse on the right side along with tightening in her right eyelid. She also has strabismus. She also doesn't try to stand. But doc says she has good muscle tone. They want to do an mri on her as well and I don't see the point in it. Whatever damage is done is already done. Doc says her issues appear to be neurological. We have already done ot and pt evals just waiting on paper work to be done so we can start. I feel like we are already doing what needs to be done to help her and the sedation is unneccessary. We are doing genetic testing on the 22nd. Her doc thinks the neuro issues could be in directly linked to a chromosomal disorder. Mentally she appears normal. She smiles coos communicates but she does appear to have a difficulty with some sounds. I stay hopeful and don't compare her to other babies. She is on a steady line of progression and that is what matters to us. ♡

Sarah - posted on 01/06/2014

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My daughter sounds similar to yours i feel exactly how you explain.its her left arm she wont grab with unless we help her and play with that arm..dr recommended we get a MRI..but both me and my husband are afraid to put her asleep..we were also told that either way shes going to get theropy for what is visibly wrong no matter what shows on the scan we know what we need to help her with...

Sarah - posted on 01/06/2014

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Hii.im a mother of my first..she is 10 months old she has been diagnosed with mild cp..she is a beautiful healthy girl ..she has weakness on her left side .she keeps her left arm in a fist most of the time.she doesnt crawl or attempt to stand..although at this age she should...ive come to thfact that she will be held back inthose areas..if any one would know of any exercises that uve tried and seen good results please let me know..we will be starting theropy soon..i have never heard of CP untile this..but i continue to have faith in god and healing to be done..feel free to comment on your
Similar experiences thanks! :-)

Nadine - posted on 01/02/2014

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hi I'm new to this post but read yours n your baby reminds me of my son Ezra. Ezra was born very premature at 25 weeks. but he wasn't diagnose with co till he was 8 months. we have done so much for him. he now walks with a gate trainer pretty good. but to get here we have taken him to dr park At st Luis masourie. children's hospital n did the dorsal Rhizotomy and the heel cord lengthening. he is doing gr8 now we also Changed his therapist being that we didn't see changes from him after a year. my son was on the g tube but I worked with him all day every day n made sure the nurses that came here was on top of their job. I made a chart for them to check off on how long n what therapy they did with him daily. I wanted to see results if I didn't see changed then we changed nurse the second nurse did her job n we got him off of the g tube in 3 months to a bottle with thicket. it is work but it helps him. I hope this helped

Laryssa - posted on 12/28/2013

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I know this is an older post but your daughter's condition sounds exactly like my daughter's condition. She is 13 months and doesn't use her left arm and hand, her left leg is affected slightly. Our Neurologist thinks it is CP but we can not get a dx until she has an MRI which is scheduled for next month. I am curious how is your daughter doing now?

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I don't know how much I can help but my son who is now 35 has what was considered a mild form of Cerebral Palsy. He was born 3 months premature and of course I was told he probably would not live but thanks to modern medicine and some experimental drugs along with him being born at a teaching hospital he survived I thought that he was just slow because he was born so premature only weighing 2 lbs. 3 1/2 ozs. he did walk on his own until he was almost 2 yrs. he fell a lot and didn't climb like other kids and he always seemed to walk on his toes...one day I asked him to jump down off a step into my arms and he told me he couldn't he was 4 at the time. I kept saying yes you can but he said " I can't " I started questioning his doctor when he went in for his check up so he sent me to the Neuro Clinic and that is when I was told my son had Cerebral Palsy. So we were sent to the Ortho Clinic and to Physical Therapy, we got the AFO's and he go some what better but his gate was never normal and still isn't...other kids made fun of him all the way through high school. He had a heal cord lengthening around the age of 14 but he had other issues with his ears chronic otitis media, respiratory issues, vision, problems so he had mastoidectomy on both ears and new ear drums grafted we did one ear and then the other. he has a heavy perscription for eye glasses so we finally got him contact lenses. He is grown now has a son of his own but due to learning disabilities an emotional problems he has made bad choices is unemployed, he suffers all the time with tremors in his legs, has joint issues, low back pain his legs for under developed and he continues to have ear infections and hearing loss. He is just a mess and since his dad left us when he was still in the premie nursery he never really knew what it was like to have a full time dad just weekend visitation so he grew up to be angry, frustrated and I was accused of being over protective and maybe I was but I always tried to encourage him telling him he could do anything he put his mind to...now I don't know how to help him his wife kicked him out he has no self esteem, his son is 6 almost 7 and it hurts him to get down on the floor to even play cars with him. He is on some meds for depression but he doesn't seem much better to me he gets upset easily and his wife even though they are still married has moved on with someone else so he is trying to cope with that. I was a single mom until just 2 yrs ago when I remarried. My husband has been supportive of my son but my son gets combative and angry with me at times so my husband made him leave and I felt it best too, but it makes me feel bad that I don't know how to get him turned around emotionally or how to help him physically. He is on state medical insurance but it takes forever to see a specialist I hope when he see the neurologist in Jan. that they can get him some help for his pain. I know my son is probably a mess compared to what some of the other children mentioned on here, but it's been a long haul and it's still not over. I love my son very much he was my 5th premature baby the others didn't make it so having him was truly a blessing from God. I pray daily for God to help him find his way and to get the help he needs. Hang in there all you parents who are dealing with your special children.

Erin - posted on 12/16/2013

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Around five months I noticed that my daughter kept her right hand in a fist and only used her left hand for any activities such as reaching for items she wanted. I took her to the pediatrician and he recommended that we go to a developmental specialist. I was beside myself with worry and fear that I had done something wrong during my pregnancy. And two months later we finally were able to get in to see the doctor. I was not ready for the prognosis. My daughter was diagnosed with hemiparesis cerebral palsy at 8 months. The MRI shows that it was likely caused by a stroke in utero in the 1st or 2nd trimester.

She is now 16 months old and is doing very well. We have therapy weekly and just recently went through constraint therapy. It seemed to help and she is using her right hand more often, but only if we persist. She is now scooting on her butt to get around and my guess is that she will skip crawling and go right to walking, probably around 18 months.

I have struggled with how unfair it is that she has to go through this, while every other child can easily achieve milestones without special therapies. But at the same time, the damage to her brain could be far worse. I have found that writing down my feelings, thoughts and experiences has helped tremendously. I started a blog to track her journey and progress and to help me get out my feelings. If you wish to visit us you can find us at www.ourbeautifulbutterfly.blogspot.com.

Helen - posted on 12/11/2013

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My brother has ce palsy epilepsy and brain damage. We are 7 siblings . We moved to Africa where mum home schooled us in the mornings and we all did physio with Adrian in the afternoons. Holding him up moving his legs arms head for him daily. He is now 37 lives in own house works daily in tesco and lives independently. Support them physically have a rota for support and when it's not your turn turn off and renew batteries, once you have yourself programmed you will be in a better position to help your own child. Adrian joined main stream school and did well. He is short on common sense but epic at maths and a heart of a lion;)
Please contact if you want hicdeano@gmail.com
Helen

Tresca - posted on 12/07/2013

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This reply is to Veronica Harney. My little girl is 20 months and just got diagnosed with mild cerebral palsy. We live north of the metroplex and ate seeing a pediatric neuro in Denison tx. My daughter had hip dysplasia at birth and was treated at Scottish rite. Should I be taking her to their neurologist? We had great experiences with her hip Dr. Please feel free to email me at trescaj@yahoo.com

Amanda - posted on 12/07/2013

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My daughter is starting therapy with a certified Rolfer and they do a lot of pressure point therapy and stimulation of the muscles. I am hoping to see a lot of improvement with my daughter as well. The theory behind it makes sense and it seems to be perfect for anyone with muscle issues- CP or not.

Amanda - posted on 12/07/2013

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My daughter is 2.5 years old and has been diagnosed with a mild form of CP.
At least that is what they are saying for now. The EEG did not show anything "too abnormal" so we had to fly out to Anchorage from the village to have an MRI done. We are awaiting the results. However, her left leg turns outward a little and she stands on her toes with this foot. The right leg is fine. The orthopedic doctor says that her hips are fine and that she is growing at a symmetrical rate, but they did just cast her leg to try to promote the flexing of her foot. At this time she can not flex to 90 degree like most of us can. She does not really like sleeping in the cast either. We will take the cast off in two weeks and see how she has responded. She does not stand still. Not because she is a busy two year old, but because she can not balance. To accommodate her "tippy toe" leg she brings her right foot up onto its toes too. To accommodate this she constantly sways when standing. When she was first born she had a really hard time grasping the "suck, swallow, breath" concept and was literally starving herself. Though it was not intentional, she just couldn't get her muscles to work correctly. She also showed signs of apnea and had two severe cases of jaundice. (Which apparently is not a normal thing) She has almost no reflex/sensory reception in her left leg and the bottom of her left foot. Her right leg appears to have more, though it is not at normal levels either. She was born with a moderate case of torticollis and still show signs of it today. She did not start walking until she was 19 months old. Before then she would roll everywhere. When she wanted to go around something she would sit up, re-position herself and roll around the object. She does not really speak, there are a few muffled word that only a mother would understand, but we sign to each other most words so that it minimizes frustration for us both. She is in PT and OT but due to our remote location, we can only get these services every 2-3 months. However, we have a licensed Rolfer who can supplement while they are gone. We also see a speech therapist once a month. That is the only time they are able to get out here. All these services are offered by our Bristol Bay Native Corporation. I am not native, but I live in one of their rural communities so I am able to receive the help. It is very challenging. She often wakes up at night with leg pains and there is a fair amount of arching that goes with this. It is a learning process for us both. All I know is that God has given me a very special little girl and I would not trade her for anything!

Hanfuqishe - posted on 12/05/2013

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Just try the ‘Online ς-energy Paper ’ on Duosuccess hospital (http://www.Duosuccess.com/tcm/index.htm),it greatly helps.
There is also a forum on this website. Although it is based on Chinese, if you ask questions in English, many people will be very glad to help you.

Joe - posted on 11/26/2013

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hey im a father happily married with a 17 month old son precious angle at the moment. he has a lot of trouble with his right side, leg, foot, hand and arm.. he has not been diagnosed but we kinda have a feeling that its either mild CP or CP in general.. i would like more info on what to expect by his doctors ... please feel free to post anything

Thanks joe and martina.

Laura - posted on 11/24/2013

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My son is now 14 years old. He is a freshman in high school, a honor student, plays football,wrestling, and golf, has his black belt in Kung fu and speaks three languages. As you can tell I am sooooo proud of him. But especially this year I remember when my husband and I brought him home from the hospital.
They told us to love him and hope for the best predicting he would never walk and probably never talk. With countless hours of tears,stretching,therapy and seemingly endless hurdles popping up almost daily, he walked at 8 1/2 months and despite his stubbornness talked at 2 1/2 years.
It has never been easy, but we decided anything he wanted to do he could. And that is the attitude he faces life with. Grieve the child that is lost, love the child you have and give her the best gift ever the confidence to try anything knowing your there to help her back up to try again and again. It won't be easy, she will struggle and it kills you as a mom to see her fight and fail, but you have to fail to succeed.

Rekhakalidas - posted on 11/19/2013

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hai , gud morning . My child , now six years of age , is also having the same problem . she is affected with this , due to sheer negligence of doctor at the time of her birth. she was not supplied the necessary oxygen at the time of the birth. so , affected with spastic hemiplegia. we recognized the problem at her 11 th month. she is so pretty , that we could'nt digest or accept the truth. It has taken one year for us to digest the truth. Even to this day, we are unable to say this in words. we are giving all necessary treatment to her , at the same time , she is also trying a lot to do the same. In all other aspects , she is perfectly o k. she is studying 1 st class in her regular school. she is most intelligent in all other aspects, but , the only problem is this. Every time we pray god to rectify the problem , and give her well and good health . My only request to god is to give her good health , nothing else. I hope u all also request the same, to the god. Thank you, for , reading this with lots of patience.

Chardae' - posted on 11/15/2013

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Hello everyone I'm new to this site but I also have a daughter who just turned two yesterday with mild spastatic cp yes it is very hard but I love her to death she's my lil miracle baby she got stuck in the birth canal and I pushed for two hours then I was told that she wasn't coming down and there were three other ways to get her out I decided on a C-section she came out 6lbs 12oz 19 in long and she was blue apgars 2, 4, 2 I also stop breathing afterwards for about five mins C-sections take fifteen minutes mine took two hours smh my baby stayed in the nicu for 8wks they said she probably wouldnt make it after two days old she had three seisures back to back my baby was born at Catawba Memorial in Hickory Nc she was born on Nov.14 2011 she did not suck swallow or eat by mouth she did not know how to open her eyes and she did not know how to move I started doing pt with my baby on my own moving her legs arms opening and closing her hands moving here head back and forth opening and closing her eyes my baby started moving on Nov.20 she now moves around stands up and grasps things she is extremely strong and she can blow her nose make sound effects she's says huh uh at at and un huh lol she's full of life and very joyful she's feisty and hillarious she has therapy every day of the week and I love them at the moment she does not walk talk or crawl but I have never taken no for an answer she will do it one day her left side is stronger than her right side she is very tiny she weighs 17lbs15 1/2 oz and she is now two years old she eats through a g-tube now and its extra easy but I have never had the chance to feed my baby with a bottle never had the chance to breast feed I did pump and give her my breast milk for three months but it got tiring she is pleasure I love her to death I wouldn't trade her for the world and she's everything to me she wears the Afos and they have made a big difference in her life I do excercises with her when her therapist aren't around or when they can't make it I love my baby! There's nothing I wouldn't do for her she's my pride and joy does anybody have a story like this?

Jennifer - posted on 11/15/2013

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YES! To everything you said. Our daughter is now four and she has mild cerebral palsy - right hemiplegia/hemiparesis. Her entire right side is affected. She walked at 19 months (with some help from a walker) and she wears an AFO today....much of the time people say they never knew anything was wrong but I know she runs slower than most, falls more often than most, she tires quickly and can't climb extremely well...but we are so grateful.

Sometimes we felt guilty taking part in any CP related activities and getting any support b/c our child is considered mild but I guess it is important for people to know that CP has a huge spectrum. If a child happens to be mild they could see some good improvement quickly with the support and the experts will explain this to you. It is also important to look at your child to remind yourself that your idea of CP (maybe cognitive issues, behavioural issues and wheelchairs) may not be your reality...that is something that can bring comfort too.

This is the first time I have ever posted anything on this type of site but your story sounds like ours. Today we are going for our first botox treatment...I didn't like the idea at first but after reading and speaking with the doctors it sounds like some pain...for potentially a lot of gain.

I put our daughter in gymnastics, ballet...anything I could to help strengthen her. Dance recitals can be a little emotional b/c people laugh thinking she has no challenges and I can sometimes feel my daughter stands out. I have to admit I also have fears that some little friend will one day bring her attention to how she walks a little differently....I will just die if someone is mean to her.

I love our daughter so much! Good luck with your journey...my message might be a little all over the place...it was tougher to write than I thought...I hope it helps. You are not alone but I will tell you that sometimes friends and family have no idea and will say dumb things like "she will be fine...you just have to get her on a bike or make her run in sand"....know that you are her best advocate...your choices for her can make a real difference!

Joanne - posted on 11/09/2013

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hi my name is joanne and my daughter kate has just been diagnosed with mild cp she is 7 yrs old. it only affects her left leg and left arm ,she is in a main stream school and has physio she wears a splint all day and is about to wear one through the night ,i am just shocked that we have only just found out as i thought she was just a bit clumsy and never thought it could be cp,would like to kmow if anybody else has been diagnosed at such an age?

Sue - posted on 11/05/2013

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Carol, I am very interested in your post. I have a grandchild who has CP and is only affected at the left leg. Her left hand/arm seems completely unaffected, she has good fine motor skills, etc. She is nine now and still her various doctors are amazed that her hand/arm are fine. Many say they have never seen that in a CP patient and call other docs in the hospital to observe. Have you found that to be highly unusual as well? Sue

Ilona - posted on 11/03/2013

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I have a 9 year old girl with same. Her right hand isn't much use but she still manages to look after her pony and does everything she sets her mind to. I am sure your child will be able to do the same one day. Its up to you to make sure she uses her week side. Remember, use it or lose it. Good luck.

Adell - posted on 11/02/2013

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Benji Kuroda,

I just emailed you. I have a son age 14 with Mild-severe CP. Let me know how i could be of assistance?

Eileen - posted on 10/30/2013

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Hi, I have a 13-yr-old son with left hemiplegia. He is a triplet and my other two children are unaffected. He has other medical problems, doesn't grow properly and is on growth hormone, severe food allergies, asthma and eczema but he goes to normal school and does well - above average. He can't use his left hand too well and his left foot is on his toes, turned in and weak but there are few things he can't do. He has trouble with rock climbing and piano playing - but so do I!! He wants to be a doctor but I worry they won't take him in medical school because of his left hand, but I'll fight them if they won't.
I too feel very sad sometimes. I remember when he was smaller everything was so easy for my other two children but so hard for him and a little piece of my heart would be carved out every time I saw him struggle. However I keep reminding myself that I am so lucky to have him. He is loving and cheeky and has at times showed remarkable determination to overcome obstacles and I love him just as I love my other two children.

Isabel - posted on 10/09/2013

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I have a daughter with cerebral phalsy . Deaf she can't walk or talk. Her leg are cross to they operated her legs it made it worst . She opens her legs to much. She used to walk wile I hold her .after her operation she doesn't walk anymore . Her legs doesn't Stay together. I'm said cause it took away the walking for her.

Benji - posted on 10/06/2013

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Hi all,

I am a product design student in the Los Angeles area and am currently working designing a interactive gaming system for children/adults with cerebral palsy. We are looking into the opportunity of motion sensing and multiplayer interaction so as to encourage movement and social activity with others. If anyone knows anyone willing to do a face to face wether it be parents as well as adults we'd love to get their thoughts on our ideas so that we can design something truly helpful :). Feel free to email me at benjirenzo@gmail.com.

Shelby - posted on 09/27/2013

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I am 21 years old, And I to have CP mild case but still CP. I have weakness on my left side Hand Arm and also weakness in my left leg.. Nobody really can tell unless you really look at it or when I get tired I tend to Limp a little more than usually. My arm is bent I can not fully straighten it out. my hand is just a hand lol I mean obviously it's a tad bit smaller than my right hand but can't really grab anything with it

But My father was an amazing person who always took me to therapy .. My mom thought it was cruel but my father wanted to take my "Good Arm" and tape it down so I couldn't use it and basically make the brain work on its own and do everything with my weaker side .. Picking up toys grabbing the remote and then when it's started looking good to untape my "good arm". Basically making both sides of the brain work evenly.

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