Sheryl - posted on 07/05/2011 ( 158 moms have responded )
Hello everyone! I have a 14-month-old daughter with Spastic Hemiplegic with right side weakness. She has been diagnosed for about a month. We are riding a roller coaster of emotions. One moment we are "She is great, she is fine" the other moment we are "Why can't this go away!". It is a tough transition to our new normal.
She has trouble with her right hand, arm, and leg. She can grasp a little bit with her right hand, but it is difficult. She isn't walking yet, but is pulling up and trying to cruise. We have been going to OT for a few months now and with that work, she is able to pull her thumb out and crawl!!!! We are also going to PT, while we have not seen results yet, it has been helpful. We are just hoping that with prayer, love, and support she will be the very best that she can be.
This new world feels a little lonely. My husband and I would love to hear of other families who have a mildly affected child with CP.