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Does anyone have a child with Prader Willi Syndrome?

Andrea - posted on 04/11/2009 ( 4 moms have responded )

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Jill - posted on 04/14/2011

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My son is 14 months and he has PWS by deletion. There are some great pages on facebook - PWS Exchange, I am a fan of someone with Prader Willi.... How old is your child?

Kimberly - posted on 04/13/2011

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My daughter Calleigh has PWS by deletion she will be 2 on May 16th

Nicole - posted on 05/22/2009

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Have you checked out unique's facebook page it's for children with rare chromosome disorders and they may be able to put you in touch with parents of kids in your area

Cheryl - posted on 05/22/2009

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My Daughter Alyssa has PWS> she is 2 now.. started a goup for pws if you want to join.

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