Down's Syndrome Child
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Alexis - posted on 09/27/2011
I am 27 and my youngest son who is 3months has Down Syndrome. I love connecting with other moms with kids with downs. I am on facebook and also have a mommies group on facebook called Down Syndrome Mommies.
Wendy - posted on 07/24/2011
Hi Melissa, I'm 32 and have 3 boys. My oldest is 10 and has Asperger's Syndrome, my other boy has DS and will be 3 next week, and my youngest is 7 wks. old. These boards are great for talking with people who are dealing with some of the same issues. I look forward to talking with you.
Marilyn - posted on 07/20/2011
I am a 52 year old mom with a 10 year old daughter with down syndrome. It's interesting to me that most of the other mothers here are quite a bit younger then me. I've been readingall the replys and I have a lot of other children and she is the most loving, most challenging (she has adhad) and never sits still, is stubborn but loves everyone, and she talks really well and reads. Let me know how I can help
Heidi - posted on 08/17/2009
hey there i am new on here and have a downs syndrome son who will be 4 in december i am 30 year old mother of three children and are loving every min and every little bit of help i have given my son to help both me and him through
Emylyn - posted on 08/15/2009
hi Melissa! I have a son with down syndrome named Zach. he is 1y/o & 4mos. He's our miracle baby, he had his operation in the heart last November ' 08. He's doing ok now & he's into early intervention program. He's the star in the family, funny& smart little fella! check more of his pics in my post.
Bonita - posted on 08/11/2009
Hello my name is Bonnie and my sons name is Andrew. Andrew is almost 17 months and has Downs. He was also born with 2 heart defects both now repaired. Andrew is truely a blessing to our family and fills our lives with love and joy. Would love to chat.
Anna - posted on 07/13/2009
Hi! I am a 46y/o mom of 4. My youngest is 6yrs old and has Down Syndrome. He is pure joy and I can't imagine not having him in our family. We are transitioning into school this year. I am excited and anxious. I don't know what the future holds but I will take it one day at a time. After reading all these posts I realize that I am not alone and there are so many families out there with Down Syndrome children. It is great to know that others also have the same joys and frustrations as I do. I would love to talk to anyone.
Kayla - posted on 07/13/2009
Hi I'm a 25 y/o mom of two. I have a 3 yr old little girl and a 9 month old little boy. My little boy has DS. We were told 4 hrs after he was born that they felt he had DS. He has been through a lot in his short little life. He had a severe heart defect which had to be repaired when he was just 4 weeks old. He has a few delays now but he is doing great. He is truly a blessing and I wouldn't take anything for him.
Lizelle - posted on 07/08/2009
Hi I'm Lizelle and Zani just turned 2 in May she is such a little blessing and healthy as a horse. We are starting a parent support group for the Germiston/Boksburg area soon so if there are any of you interested please let me know
Ginger - posted on 07/07/2009
Hi I am 36 y old and have two girls my oldest is 7 and has DS and I have a six month old. Kylee has has four open heart surgeries before the age of two, been airlifted three times, has had tubes put in ears twice, tonsils out and eye surgery and spent countless nights in the hospital. We are now having high thyroid levels and have ADHD and possibly is color blind. Her vocabulary has really improved over the past year and we finally got potty trained before x-mas of last year well except for some accidents. She has taught us so much about life and no matter how bad some days are I would not change her in any way. She can be so stubborn but she is the most loving child you will ever know. They truly are a blessing.
Ronda - posted on 07/06/2009
Hi Melissa, I have a 16 year old daughter with Down Syndrome. I can well remember when she was 1 1/2 and 2, there were so very many questions. Some of the questions get answered with time. But I can tell you that Caitlyn is the absolute joy of our lives. She is so very full of love. She loves everyone and everyone knows if they ever need a hug, just find Caitlyn and one will be given freely and with all the love she has. She adopts more people than I could ever imagine. And more than that she absolutely adores her 2 older brothers and 1 older sister. Enjoy all the fun as you grow with your child. And enjoy all the sunshine and joy that you will find all around you.
Tammy - posted on 07/05/2009
Hello, I am a 43 y/o new again mom. My youngest daughter (8 months) was born with Down Syndrome. She has two sisters 15 and 17, who are wonderful with her although she has already shown her strong willed nature. :) I have been a speech pathologist for 19 years with a specialty in working with children with developmental delays and severe behavioral problems. I have been so disappointed with the lack of knowledge and information given to parents of children with ds. My daughter started receiving her therapies (PT, OT and ST) when she was one month old... only because I asked. She is doing wonderfully, She is learning new skills everyday soley because of the early intervention. I am finding that most parents do not know to ask for therapies and the MD's do not understand the benefits of the early intervention process. Birth to three is the most critical time for learning and development. Some states are advocating that minimal therapy and parent training are sufficiant. I disagree. I do believe that parent training and home programs are critical, but they cannot replace the hands-on skill and knowledge of a professional therapist. Parent do have a choice. You can choose between public and private providers. Most state EI and Birth to Three agencies will not tell you that option. All I can say is that parents need to be the advocates for what their child needs. You are their "voice". No one knows your child or will care for your child like you do. I am new to this circle and am looking forward to chatting. I love being a mom to all my children. Iana (Eahana) , the "baby" is such a special blessing, It is hard for me to remember my life before she came into it. Her smile is enchanting.
Cami - posted on 07/01/2009
Hi Melissa, I am a 43 year old mother of four. My youngest daughter is down's syndrome. She just turned seven a few days ago. Maybe we can be of some help to each other. Just added this circle of moms today, so it might take me a little bit to get up to speed. Looking forward to talking to you.
Marla - posted on 06/30/2009
Hello, I am a 39 y/o mom with an 18 year old daughter with down syndrome. She was considered the "running child" when she was smaller, but she grew out of that. My activities were limited, because she seemed to not care about any bounderies that I set. She is a joy to take places and share time with now. She is maturing nicely.
Mary - posted on 06/28/2009
Hi Im Mary, My daughter Lucy was born with Downs,she is now 18 and graduated from high school,she is doing fabulous... These kids we are blessed with will be a challenge but more so a total love for life,laughs,and unconditional love from them...Get your child signed up for school now...and your child will florish...If you live here in Minnesota we have a fabulous system for our children to start school at 2 and from there till they are 21.The teachers here are unbelievably fantastic.... Downs children do what all children do with the exception they are a little later in those mile stones... They will figure out anything they want with great ease...and they easily wrap their parents around their fingers quite early in life,ha ha...They are stubborn,and once they have any routine in their life,dont even try to change it,ha ha...I could talk all day about my lucy but you will find out what a blessing you have... God Bless
Serena - posted on 06/27/2009
Hi Im 32 with a 6 year old with down syndrome child. God gave special children to special people ! Never forget that this will be the hardest but most amazing journey you will ever take. Im saying this and my childs only 6. I am excited to find out what the next 6 years hold . Just love ur child and never give up .A little secret no matter what you do this child will never be mad at you this is real love.
Jodi - posted on 06/26/2009
Hi I'm Jodi and I have a son Brendan who is 11.. I couldn't ask for a better son.. there' not a day that goes by he doesn't have a smile on his face.. and makes sure you do as well... would be great to get to know all of you..
Cheryl - posted on 06/26/2009
I am a 24 year old mom with a 2 year old with down syndrome. Oh the things we've been through since she has been born. But she is the sweetest child ever. She is so smart even though she learns at her own pase. What I think is funny, is how she learns the things that are important for her. If I tell her no to something, she thinks giving me a hug will change my mine. Then I taught her to sign please, and that gets me every time! I am competely amazed by her everyday.
Joanne - posted on 05/27/2009
Hi, I'm a 40 y/o mom of a down syndrome little girl who just turned 2! She a great joy to our family. Just wondering if any DS moms kiddos are talking who around the same age. We do signs, but no verbal speaking yet.
Barbara - posted on 05/26/2009
Hi, I'm a 54-year old mother of a 31-year old son with Down syndrome. Sure, there were challenges along the way, but compared to the challenges of my "allegedly normal" younger son (smile), Michael has been a breeze! I believe in inclusive education, having been an advocate for 30 years, and I know the benefits of being educated alongside typical, non-disabled peers is far more beneficial for our kids. It's truly worth the effort (and "fight"), and the positive socialization and self-esteem that results is not possible in segregated settings.
Michael works in competitive employment, is a public speaker and certified Toastmaster, has an amazing spiritual life (filled with the Spirit, reads and understands the Bible, prays without ceasing) and loves his life! The school said he'd never read, but Mike proved them wrong. We are so thankful for his life!
I'm available to answer questions ... anytime. Michael has his own Facebook page -- check him out.
Sandie - posted on 04/07/2009
hi christina my little boy was diagnosed as soon as he was born because he had the line across the hand and that was all he is now 2 and a half he doesnt have many features, some days you can see ds in him but others you would think nothing, , my son is behind though, he has just learnt to sit, and has a low vocabulary, but knows loads of makaton, very easy to learn for you and child, i dont really speak of his ds because no one ever asks me about it, although he is 2 and a half i realy dont know much about ds, but if you would like to chat just send me a message
Christina - posted on 04/06/2009
i am 23 years old and have a son named rylan, whom was diagnosed 5 days after he was born. he is almost 10 months now and is doing AMAZING! i am truely blessed, but still like to talk about things sometimes also. rylans features arent that noticeable, so i have a hard time coming out and telling a lot of people. this circle of friends thing is gerat:)
Ria - posted on 04/06/2009
Hi. I'm a 31 yr old mother of my little comedian, Matthew. He's 18 months old, makes me laugh and has a very contagious smile. He can be trying at times especially since we're getting close to the terrible 2's. But I can't imagine life without him. Please contact me if you wish.
Margaret - posted on 04/04/2009
Hi im a proud mother of a beautifull Daughter Keisha who was born with Down Syndrome, She is now 23 yr old and such a treasure. Keisha has Diabetes1 also for the past 11 yrs and is my constant shadow and companion. Keisha was born just before my 21st birthday... So yes i was very young. But i wouldnt of wished my life without her she has taught our family sooo many things especially Unconditional love and patience... She has her own facebook page on here too. feel free to contact me.
Shynowa - posted on 03/30/2009
Hey ladies -
just stummbled across this page so i thought i would write and say hi as i come from a small community with not to much support i too would love someone to talk to and relate with .. I am 22 i just had my first child on christmas day 2008 he is just turning 15 weeks old this week he is amazing he rocks my world i dont know already what i would do with out him i feel so blessed to have him .. While pregnant i took all the manditory tests and everything came back okay however when he was born due to being a month early they re did some of the tests and my son was tested positive with DS at first i felt overwhelmed like i couldnt do it and kept asking why me god why me i constantly thought for the first couple weeks what did i do wrong ??? But now being home and able to adapt to life with my new little miracle im overjoyed and feel so complete and content in my life i couldnt picture it any other way i know that in time things may get frusterating and hard and im not fully aware of all that is to come but i pray that all is a positive out come as i am just new at all of this .. I am from the Birtish columbia (canada) in the kootenay area if any one is from around there let me know as i know there isnt to much for support groups offered in my area so it would be nice to meet and talk with moms that have more expereince with these miracle children then i do ...
god bless you all and of course your beautiful children~
Danni - posted on 03/17/2009
Hi, I'm Danni, 36 with 3 girls and my youngest, Miss Abby has designer genes!!!! She was born with mitral valve regurg. and just now at almost 8 yo is on thyroid meds. She is a little spit fire and stubborn as all get out!!!! She definatly has a mind of her own, but let me tell you she is smart as a whip!!! All of our children have been beautifully blessed and they have blessed us!!! There are hard times, and the frustration level can get in overdrive, but it is so worth the ride, I wouldn't change it for the world. I read a post above about no one posting anything about the hardships of havin a child with DS. I have had them, I have wondered what she would be like if she didn't have DS. When she was born I literally ached and beat myself up because the thought had crossed my mind of what a horrible life she is going to have and would it be better if she wasn't here. I still feel like the lowest person for ever having those thoughts, but that is what misinformation and not being educated brought me. For those of us with more than one child, we learn that they are all more alike then different. We are parents traveling a different road but what we have to remember is that the destination is always the same!!!! I would love to connect with some moms and I am always here if anyone needs to talk and I am so glad to see moms with older kids here!!!!
Blessed be, Danni
Tonya - posted on 03/07/2009
Hello, I'm a 47 y/o mother of 2 children of my own..my son Alexander has Down Syndrome and he will be 16 y/o this April. He is absolutely fantastic. His 2 sisters think he's a pain in the butt...but I can't imagine life without him.
Wendy - posted on 03/07/2009
Down's Syndrome Child
Hi. I'm a 29 y/o mother of a down's syndrome child who will turn 2 in December. I would love to talk with other mothers of down's syndrome children.
Hi,my name is Wendy,I to have a daughter with down syndrome,her name is Courtney,she is 9yrs old.I wouldn`t trade her in for any ,quote``normal`` child.As hard as it can be some days the rewards out weigh the callenages.Always remeber that god only gives us what we can handle!!
Heidi - posted on 03/06/2009
Hello my name is Heidi and I have 3 children, my oldest is 11 and he has downs, an underactive frontal lobe and behavior issues. The last couple of years have been a struggle with it all, but we are hopefully moving on. He is a joy when he wants to be. He is also starting to go through puberty. We just keep hopping for good things. It is always nice to have people to talk to that understand what you are going through.
Kandi - posted on 03/06/2009
Hi, My name is Kandi. I live in Orlando, Florida.. I have five beautiful children, and my third son Tyler Carson, will be thirteen March 17th 2009. He has Dawn Syndrome. He was born with a heart deffect, and had open heart surgery at four months old. He did very well.. (better than I did.. lol) But at the age of eleven we found out that one of the holes that we thought had closed up on it's own had not, so he had to have another heart surgery in 2006. We also made it through that one... He is a very strong kid.
I love him very much. He is only 19 months younger than my second son, and sometimes it is sad to see them together and realize how close they "could have been". I have even caught his brother Chason crying..(when he was younger) because of the differences in them.. (they could have been close as twins...) Growing up so close in age.
But he is great with my twin daughters who are seven, and at this point are more at his age level than the boys are...
If you ever need to talk about anything, let me know..
I'm not your typical cookie baking, crafty mom.. So I sometimes see things in a different way. lol
Have a good weekend, and I hope to hear from you sometime!
Marina - posted on 03/04/2009
hey i am a 28 year old mother of a child with down syndrome who turned 2 in nov. like you i thought i was too young to have a child with downs. it was like i lived in my own world for weeks and now i don't even think about the diagnosis. our life is no different in fact it is better. i have recently started a support group in my area in pike county ky. support groups are very helpful. i have learned more from mom than from doctors or specialist. that is the key is to stay in contact with other mother. does your child have any other health issues. i am going to send you a friend request and since we are about the same age and our kids are about the same age we will keep in touch. my mattie started walking at 16 months and that surprised us. she is doing speech and OT right now. she is the joy of my life and keeps me laughing. she was definetly a gift from GOD