down syndrome baby boy

Maria - posted on 11/11/2009 ( 26 moms have responded )

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hi ... i have a 4 mo old w/ds ... any advice ... he seems to be pretty healthy ...

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Ashia - posted on 02/04/2010

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Hello Maria,
I hope alls well with your little one. I have a 5yr old son with DS. I remember a similar concern when he was about that age and we also had his lungs checked. Our doctor explained that it was reflux and easily remedied with Gaviscon reflux powders we mixed in his bottle. He also told us the main reason for the reflux is many Downs babies are not able to cough easily. I hope this helps. x

Maria - posted on 12/26/2009

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I'm back ... survived the holidays ... he's 6 mos now ... getting stronger ... not sitting up yet but he's found his hands and is kind of tracking ... eye dr said his eyes are fine ... but I'm not seeing good vision indicators yet ... his heart appt is in 2 wks ... to check the hole in his heart ... he is very healthy ... except he makes grunting sounds all the time ... lungs are fine ... does anyone else have a child with ds that makes silly noises?

Mary - posted on 12/16/2009

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Hello, I have a 15 yr old boy with DS. He is in high school this yr, and I don't treat him any diff than I treat my other two kids. He plays baseball with a reg team. and he bowls, loves to read beauty and the beast-yes he reads :) I am so proud of him and how far he has come. And his favorite movies are toy story-and monster house. Loves wrestling-John Cena. We are very blessed :)

Debbie - posted on 12/14/2009

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I have a nine mth old and he does too. Had a 5 wk hospital stay when he was 3mths but doing great. Noooo heart problems thank God.

Maria - posted on 12/13/2009

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hi i have a 8yr old son with ds my advice is get him to a specail needs place were you are able to learn and so is he the place which are school help you sign language and helping him take all the advice you can get it will help you in the long run . They are the most beautiful loving children you could possible have my son is 8 as i said he is now starting to talk more and more and repeat everything you say i was very lucky he had no heart problems he does have bowel but that is nothing we just have to work a little harder. I also found treating him no different to any other child helps as well i have 3 teenagers and he is no different to them but enjoy him.

Amy - posted on 12/12/2009

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Glad to hear he is healthy, Isaac my son with DS is now 9 and is so much fun, yes they do take work but you will find that he will meet every milestone you come up against. I never thought Isaac would sit up he did, never learn to crawl , he did never walk , he did actually they told me he would not walk till he was 4 or 5 he walked before his 2nd birthday,Potty training was tough but he made it around age 7 I think, and now he is learning to read. Just lots of PT especially now while he is a baby to strenghten his muscle tone and treat like any other child dont treat him like a disabled child you will be fine it does take patience though. Isaac is talking pretty good too but that is a challenge but he can tell some good ones. A happy lil boy most of the time. Good luck and enjoy. Anything else I will give you what I can

Jane - posted on 12/12/2009

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Congratulations on your beautiful son My first piece of advice to you is enjoy your son, he is so precious. I will tell you something a nurse told me, she said I must be someone very special for god to choose me to look after one of his special children.



Second piece of advice is get informed, find out as much as you can, then store it, remember your child is an individual and he will be what he will be. No two children are alike including our special children. You can draw on the information if and when you need it. And if you haven't done it yet, don't forget to put your claim in for DLA and Carers allowance, get it done early. If I can help you in anyway or you just want a chat email me on eidasgold@yahoo.co.uk, i will respond via email or, if you want a real chat I can call you. Jane

Shannon - posted on 12/11/2009

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Hi, first thing congratulations to you. My son Josh is 21. It has been one wild rideand I say that w/a smile. I can't even imagine my life without Josh. He has been a blessing in my family. What work best for myself and Josh is I never treated Josh as handicaped, I always treated him like any other boy, yes everything was a learning experience for him but I tried very hard to make it fun fro him. Just love him and be his voice.....God bless you...

Kay - posted on 12/10/2009

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The best advice I have is to love them because children with Down's are the most lovable children on Earth. My daughter is 37 working and living with 5 other women. My advice is to find a support group and start attending. I attended New Beginning when my daughter was first born.

Jennifer - posted on 12/09/2009

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hello,, i have a 10 year old baby boy with ds he also has type 1 diabetes. i love him so much he is my world!! i treat him as i would treat my other kids normal as can be and as if he dont have ds!!

Kierra - posted on 12/02/2009

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love..love..love your baby ! i am 20 yrs old & i have a (4) month old baby girl with ds & she is truly a blessing. she's like a normal baby to me because she had no heart or gastrointestinal problems & her pt visits my house 2x a month and based on her evaluation my daughter is right on time with her age group. she rolls over, reaches for things with both of her hands, tracks well, looks around when someone is talking to her. she's amazing. the best advice i can give is to treat your baby as normal as possible. your baby has potential ! they said just because my daughter has ds she may not be able to do alot of things....they said she would be like a vegetable....but not so ! she is proving people wrong each & everyday ! babies are a blessing & i truly believe that God sends special needs kids to special people who he KNOWS will take care of them ! God bless ! =]

Yvonne - posted on 11/18/2009

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Congratulations! A beautiful baby to love! You will learn to enjoy every milestone more than you thought possible! I have a 20 year old with a severe seizure disorder and developmental delays. He is such a joy! Yes we have had some very challenging times, but he has taught me more than I could have ever taught him! Life's a journey! Enjoy the ride!

Calli - posted on 11/17/2009

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Congrats!! Our daughter is now 8 with DS, she is our oldest of 3 kids. She is in 3rd grade and doing amazing!! She reads at a 3rd grade level and is also taking some of the regular 3rd grade ss/science test and acing them!!!! They are so special and will melt your heart in so many ways, remember that they are a child same as your others and treat them the same way you treat your other children. We live in a small town and allow "T" to go to birthday parties, swimming, play t-ball, dance class all with her "normal" friends. They except everyone so well. We have learned how much our daughter can do and will do the same as her siblings. AND there will be challenges for you and them, but just take it one day at a time and before you know it you will be saying do you remember when we never thought walking or talking would come? hugs

Cyndee - posted on 11/17/2009

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I agree with Lisa; Love is the most important thing. I have a 10 year old daughter that is the light of my life!!!

Maria - posted on 11/16/2009

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I have to agree with everyone has said regarding DS. Our boy (4 mos) is a dear baby and is such a blessing in our family. My older sons love him and his dad is a proud papa! We have a PT and OT visiting him 2 x a month and he is doing well. We live in Maryland and the county has a huge support system in place ... we were supported from the moment he was born. The therapists come to our home and are quite professional. Our boy will do well ... no doubt ... it's amazing how he has changed our family dynamics ... we thank God for him daily! :)

Lisa - posted on 11/14/2009

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I'm a mom of a 20 year old down syndrome girl. I wouldn't change anything, I've had my good and bad days. Just love them and have patience with them. You're entering a whole new realm of understanding and view point on things.

Diane - posted on 11/14/2009

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Where do you live? State services vary. I belong to Mid-South ARC; it provides tons of information that you'll be able to use in later years regarding camps and services. Rest assured that your state very likely will provide family support services to cover respite care, medical reimbursement to cover your co-pays, tutoring, and more as needed. I wish you the best of luck and will keep you and your family in my prayers.

Diane - posted on 11/14/2009

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He is a child of God - love him! We adopted a severely autistic daughter two years before our next door neighbor gave birth to a baby with Down's. My daughter is 15 now, and our neighbor's child can do SO many things that ours will never be able to do. Be strong, use available resources (Early Intervention Services for now, state services for pre-school at the age of 3), and be your child's #1 advocate.

Mary - posted on 11/14/2009

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I HAVE A SON WITH DOWN SYNDROME HE JUST TURNED 3 FRIDAY THE 13TH. AS I READ IN A PREVIOUS RESPONSE GET EDUCATED BUT DONT LET IT SCARE YOU YEAH THERE IS ALOT OF THINGS THAT CAN GO WRONG BUT NO MATTER A CHILD WITH DS OR ONE WITHOUT ALL CHILDREN ARE DIFFERENT. MY SON HAS BEEN EXTREMELY HEALTHY. WE HAVE BEEN TRULY BLESSED NOT ONLY WITH HIS GOOD HEALTH BUT ALSO WITH HIS PRESENCE. KALEB HAS SIGNIFICANT DEALAYS IN HIS SPEECH, MOBILITY, AND COGNITIVE ABILITIES BUT YOU KNOW HE'S HERE AND HE'LL LEARN THOSE THINGS ON HIS TERMS AS IVE LEARNED THE PAST 3 YEARS. START EARLY WITH LEARNING ITS OK IT HELPS I WISH I DID MORE THAN I DID. KALEB CAME A YEAR AFTER I DELIVERED MY DAUGHTER A STILLBORN AT 38 WEEKS AND I SPENT SO MUCH TIME HOLDING HIM AND PROTECTING HIM FROM EVERYTHING THAT I DIDNT SEE CLEARLY. HE IS MY ANGEL BABY I CANT HELP IT. TRY ANYTHING THAT INVOLVES MUSIC ITS SO GOOD FOR THEM AND ENCOURAGES THEM. KALEB LOVES IT. WHEN HE LD ENOUGH STARTS SIGN LANGUAGE IT HAS BEEN GREAT EXSPECIALLY WHEN KALEB STARTED GETTING FRUSTRATED BECAUSE HE COULDNT TELL ME WHAT HE WANTED. FIND A GROUP TO GET INVOLVED IN CLOSE TO YOU. THE GROUP I AM INVOLVED WITH HAS QUITE AN AGE VARIATION AND THEY ARE SO NICE ABOUT GIVING IDEAS. ALOT OF THE CHILDREN HAVE HAD HEART SURGERY AND OTHER SURGERY AND EVRYTIME YOU SEE THE MOTHERS YOU THINK WOW HOW STRONG THEY ARE TO GO THRU ALL THAT. I FEEL LUCKY TO HAVE COME INTO CONTACT WITH THEM ITS GOOD TO HAVE SOMEONE TO TALK TO FACE TO FACE. AND AS TERRIBLE AS IT SOUNDS WATCHHIS MILESTONES IF YOU THINK HE IS BEHIND AND ARE COONSERNED ASK KALEB HAS BEEN IN PHYSICAL THERAPY SINCE HE WAS 4 MONTHS OLD THEN ADDED OCCUPATIONAL AND DEVELOPMENTAL LATER AND THE LAST YEAR HE HAS HAD SPEECH NOT ONLY IS IT TO HELP HIM BUT HE ENJOYS THE TIME WHERE HE IS THE CENTER OF ATTENTION AND GETS PRAISE FOR DEEDS WELL DONE. SORRY I TEND TO JUST SAY ALOT WHEN IT COMES TO KALEB AN HOW PROUD I AM OF WHO HE IS, WHAT HE HAS DONE SO FAR, AND WHAT I BELIEVE IN MY HEART HE WILL ACCOMPLISH IN HIS FUTURE. YOU ARE TRULY BLESSED AND HOEPFULLY NO MATTER THE SITUATION YOU'LL HAVE THAT TO REMEMBER. IF YOUD LIKE TOKEEP IN CONTACT MY E-MAIL IS mary_feith@hotmail.com

Darlene - posted on 11/14/2009

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I HAVE A DOWNS SON AS WELL.... he's 4 yrs old now...... there's not much you can do besides love them and watch him grow. The most important thing is you have to have patients, He's a BLESSING to you from God !

Brooke - posted on 11/13/2009

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i have a 6 month old with down syndrome. he recently underwent open heart surgery. the best advice i can give you is to educate yourself and get involved with your local organizations: early on, maternal infant support, local isd. there are understandably alot of complications that children with downs can run into.

Cynthia - posted on 11/12/2009

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HI There My Name Is Cindi An I have A 13 month Old Son wit Down Syndrome.It's Nice To Find someone Who Know Wat Your Going Throw As A mom.If You Have Any Question i would Love to Answer Them We Have Been Throw A Lot My Son michael He Was Very Sick At Birth.Well Hope As Is Well Enjoy Your little Angle.Cindi

Trisha - posted on 11/12/2009

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Hello! I am a mom of a 4 year old son with Down Syndrome. He has also been very healthy and does quite well. Everyone will tell you how happy he will be and how he will become the joy of your life. I can easily say the same thing. But there are harder things to say, too. I would be happy to talk to you. My email is tmgreiner@hotmail.com

Maria - posted on 11/12/2009

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He is my rock solid love baby ... he is so blessed by many who love him and we feel the same way ... I can't wait to see what he takes on in life ... the world is his ... as long as he gives and receives love ... he is complete ... who's to say that we're not missing a gene ... and he's got them all ... :)

Ghina - posted on 11/11/2009

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hi dear ,1st of all congratulations 4 your baby boy.god bless him.as i am a mom of 11 years old boy.i know what r your feelings now.NOTHING 2 worry about he ll be just fine a very nice & cute angel living in your house.All u have 2 do is 2 love him &work with him.BEST WISHES

Lisa - posted on 11/11/2009

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LOVE him. I don't have much experience with downs but know that a little love goes a long way.

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