Duchenne Muscular Dystrophy

Sandii - posted on 03/19/2009 ( 5 moms have responded )

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Hi, I have a 13 year old son with Duchenne Muscular Dystrophy. I am an educator in this disease and wanted to know if anyone has a child with any form of Muscular Dystrophy?

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Rachel - posted on 03/21/2009

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hi there sandi, i also have a daughter with duchenne muscular dystrophy, she also has fsh muscular dystrophy too. my daughter was 3 when diagnosed and is now 11, she has been in her wheelchair for the past 4 years and is one of the most happiest klids i know and dosnt let anything hold here bac, how did your son cope with the transition from primary school to secondary

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Hi Sandii



Ryan is doin very well considering his condition. He is a great lad and never ever complains about anything, unlike me. I think life is so unfair but you would never hear him say anything like that. Hope to speak to you soon.



Michelle x

Sandii - posted on 03/21/2009

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Hi Michelle. Thank you for replying, how are you all going, how is your son? Sandii.

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