Communities

Mothers of Special Needs Children

All Communities > Mothers of Special Needs Children > Duchenne Muscular Dystrophy Clinical Trials

Duchenne Muscular Dystrophy Clinical Trials

Kayla - posted on 08/07/2011 ( 2 moms have responded )

3

0

My 8 year old son was diagnosed with DMD when he was 5, he's currently on Predisone and has been for 3 years, he doesn't really know the extent of his illness, we explain stages to him when as we go through them. 2 days ago he was asked to participate in a Clinical Trial for Exons Skipping. At the moment they're testing safety and tolerability.. My Husband & I are a bit skeptical at the moment... What would you do?

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms

2 Comments

View replies by

Gwendolyn - posted on 09/02/2011

2

0

Our 15 year old has never qualified for any of the trials or we would have participated. You never know it may be the cure!! I would definitely participate.

Andrea - posted on 08/29/2011

2

9

I have a 13 yr old with duchenne, when he was younger they didn't offer any that he was eligible for,but I would've participated, recently I was asked for him to participate but he's not interested, he knows the extent of his disease and because of his age I can't make him participate. I would do it because in the long run it's going to help many people with this disease, if no one participated they wouldn't get very far in finding a cure someday.

Want to find out the opinions of this community?

Add Poll