[deleted account] ( 3 moms have responded )
My 7 year old son struggles with chronic encopresis and incontinence. It's not that he's been potty trained and regressed, he's just never been able to control his bowels. We've taken him to a GI specialist and he's done tests up the wazoo. The DR says there's definitely muscle deterioration and possible nerve damage but that it's impossible to know whether this is the cause of the encopresis or a result of his megacolon and years of off and on fecal impaction.
I am so frustrated. I feel like a failure as a Mom. My other 2 kids had no issues with potty training and I'm at my whits end. I'm so afraid he'll get teased at school because of the smell (he wears a diaper or pullup to 2nd grade and has absolutely no control over his BMs).
He was potty trained for pee for awhile, but then got lazy. I guess he figured since he had to wear a pullup anyhow why bother going to the bathroom to pee.
What do I do? Is anybody else going through this?
There are some emotional issues and other things (our marriage has been shaky and we were separated for awhile; now back together but still shaky). The DR said that sometimes upheaval and change in the home and school can affect this condition as well.
I heard about Hirschsprung's (? spelling) and it sounded similar to what he's gone through, but the DR said the only way to diagnose that would be a biopsy and he wasn't sure he wanted to try that. But we've been seeing the specialist for a year and a half already and no change that I can see.
Oh, sorry . . . for those that are lucky enough not to know what Encopresis is, it's a condition where a child has regular, accidental, usually uncontrollable bowel movements.
With involuntary encopresis, a person has no control over elimination of feces from the bowel. The feces is semi-soft to almost liquid, and it leaks out without the person making any effort to expel it.
My son's leakage usually occurs during the day when he's the most active, and seems to be almost continuous. He's even had it happen when he's in the shower and while he's sleeping.
He wears a diaper or pull-up 24/7. He is completely independent in caring for himself. He changes himself, cleans up after himself, etc. But I know he's tired of doing so and wishes his body would cooperate. And I so wish I could help him, but I don't know how.
He also has childhood apraxia of speech and didn't speak at all until around his 3rd birthday.