Mary - posted on 02/06/2011 ( 11 moms have responded )
I am posting here as i dont know what else to do. My daughter Miriam was 2 on 16th Jan. She has Microphthalmia (small eye) has contact lens in both eyes RGP's. She has PVL and CP. It has been two years of appointments and stress. We have fought hard to get the diagnosis (which we only got just before Christmas). I am overwhelmed with it all. I am so tired and feel like i am doing this on my own. Since we found out that she has this brain injury (PVL) our family have not been supportive at all.
I know that in the last two years i have struggles with the things that we have had to do, and offen feel like i cant go on. But of cause i do as there is no other choice. I really would love a break but no one is able to do her contacts so can not have anytime away. Also there is no one that is willing to have her for the day so that i can have a little bit of me time. She also has allergies so i am nervious about putting her into care as i dont really trust people to look after her the way she needs.
It is just a low day and all i really want to do is cry. I know that does not do any good in the long run but i just feel like i have been beten down. Sorry for moning. I know that i have it good compaired to so many people out there. I know i have no right in complaining. It is all just to much today.
You are the only people i can say this to as i know that you will understand what it is like.