Allyson - posted on 04/14/2012 ( 5 moms have responded )
My son is using a G-Tube, and he has had it since he was discharged from the NICU several weeks ago. We have had him on 3 bolus feeds during the day and a continuous feed at night at a much slower rate and we add more to it every 4 hours. At "feeding clinic" we were told to increase his feeds by an ounce every day, so we planned to give him an extra 10 mls at his three day feedings. Well, that hasn't worked. We can't get more than 5 mls at each feeding without him throwing up, so we go back down. We have for several weeks. Is that ok? He's putting on weight well, but I'm wondering if he is ever feeling full and satisfied as he grows. He doesn't seem fussy in regards to hunger, but I can't tell for sure because he has a tracheostomy, so he isn't able to vocalize his cries so I can't distinguish them apart.
Also, we are using a Kangaroo Joey pump, and sometimes there are little glitches or mistakes on our end where we gave it to him too quickly or didn't refill it on time, so we are always guessing when it comes to what to do next when those situations arise. For example: If he doesn't get enough, we try to give him more to make up for it but then it kind of gets in the way of the next feeding, and we don't want to overload him, so we just don't know what to do.
We also have forgotten in the middle of the night to put more in once or twice and wake up to realize he got less than he should have, and the guilt from that is incredible. Does anyone deal with this? I feel kind of stressed out all the time, and doctors don't really help me because they make guesses it seems too. I'd love some advice!