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Catherine - posted on 01/26/2010
My 20 month old son has Goldenhar syndrome. He has multiple issues including profound hearing loss, developmental delays, and a trach and G-tube. But he has a wonderful personality and is a joy to know. Although he has had surgeries before for other reasons, he will have his first facial surgery 3-3-10. I would love to talk further. Add me as a friend on facebook to see pictures.
Misty - posted on 12/25/2009
My son is a 4month old twin. He was diagnosed in October. He has a mild case of Goldenhar syndrome. His involves the first and second brachial arch on his right side. e has ears not buds with his right ear having an h profile and a missing earlobe. We were recently referred to a plastic surgeon because of his palate and tounge.