Goldenhar Syndrome?

Cindy - posted on 11/09/2009 ( 5 moms have responded )

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Does anyone else have a child diagnosed with Goldenhar syndrome? I have a one year old son who was diagnosed with Goldenhar in July.

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Michelle - posted on 04/04/2013

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my son raymond was born on jan 5 2010 i was told he has goldenhar syndrome i have been though so much with him now he is starting to not walk right can anyone help me on what to do to help him

Michelle - posted on 06/16/2012

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My 2 1/2yrs old boy has Goldenhar syndrome its affected only his right side!

Celine - posted on 02/05/2010

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hi my son is diagnosed with goldenhar he's born in belgium on the 12th of august 2009 .. xxx

Catherine - posted on 01/26/2010

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My 20 month old son has Goldenhar syndrome. He has multiple issues including profound hearing loss, developmental delays, and a trach and G-tube. But he has a wonderful personality and is a joy to know. Although he has had surgeries before for other reasons, he will have his first facial surgery 3-3-10. I would love to talk further. Add me as a friend on facebook to see pictures.
Catherine
Catherineleeann@mikrotec.com

Misty - posted on 12/25/2009

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My son is a 4month old twin. He was diagnosed in October. He has a mild case of Goldenhar syndrome. His involves the first and second brachial arch on his right side. e has ears not buds with his right ear having an h profile and a missing earlobe. We were recently referred to a plastic surgeon because of his palate and tounge.

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