Hello . . .I have twin boys and one has hydrocephalus and a congenital heart defect . . .

Teresa - posted on 03/24/2009 ( 4 moms have responded )

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I was just wondering if there was anyone else out there that has a story (experience) similar to mine. We found out we were having twins early in my pregnancy. At 20 weeks we found out that one of them had hydrocephalus and a congenital heart defect. The outcome was very much in the air for the rest of my pregnancy. I delivered them at 35 weeks and Jacob was transferred to the Children's Hospital in Denver CO within hours of birth (I delivered at a Denver hospital since we knew there were issues). The boys are now 20 months old. Keith is 26 lbs now and Jacob is 16 lbs. Jacob is at a 11-12 month developmental level. He is our little miracle. We have seen God move in a mighty way in his life. I am just needing to talk with someone who has had a similar experience. So I would love to talk to you if you're out there!!! Thanks --Teresa

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Becky - posted on 02/14/2011

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My son is now 11yrs, but was born at 30 wks. He has hydrocephalus and CP. He is in 5th grade with part time learning support. He's doing good.

Melanie - posted on 02/14/2011

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I also found out I was having twins very early on. I am 18 weeks and just found out today that my baby girl has a heart defect. They also suspect downs syndrome. I feel as if I am in a tornado. Very lost and trying to stay strong for the rest of my family. I will keep you and your family in my prayers.

Catherine - posted on 04/20/2009

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hi teresa, my name is cath and i have a 7 month old son who was born with a congenital heart defect (cavsd) he had it repaired 6 weeks ago and im hoping that he will start to get stronger now. As well as being born with the heart defect we also found out the day after his birth that he has downs syndrome. Ill be happy to speak to you soon if u wish. xxx

Christina - posted on 04/19/2009

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Well i have a daughter that is 19 months and is at the developmental level of a 4-6 month old for some things and 6-9 for others. She was born at 37 weeks c section due to a heart defect as well, hlhs,half a heart. if you have any questions just let me know!

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