Help with Potty training 5yr old autistic

Nadia - posted on 08/30/2011 ( 17 moms have responded )

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my son is autistic and non verbal and he is still not potty trained no interest in using the potty and i am getting so upset he is in a full day program at school for kindergarten and the teacher want to know some tips so she can help him at school but i have none because it has been difficult any suggestions will help

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Elizabeth - posted on 05/03/2013

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My case is a different one my 5yr old Autistic girl non verbal, is not potty trained,but wont go in her pull up or undies,like normal child she takes it off and finds a spot in the house (un occupied) and poops there or urinate,i have done the sitting her on toilet for a while but not been successful she seems nervous sitting on toilet,failed the potty too.
reading some of the above tips am gonna try out the use some games while sitting her on toilet.Keeping my hopes high that some day she will start using the toilet on her own is the order of my day!

Fran - posted on 09/21/2011

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I was able to get my son potty trained right before his 6th birthday. He is autistic and at that time (he is 10 now), he had no clue about his bodily functions. I had him in diapers so he'd go and thought nothing of it. His teacher was taking him to the potty with all the other autistic students in the class regularly (right before class started, right before recess, etc.) and said that he did go a few times. So, during the Christmas break, I put him on Potty Patrol. I went to the craft store, bought a paper card board to attach to the wall. It read "Zachary's Poopie in the Potty Chart". Every day, I would sit him down the time schedule that they had at school during the day and after school I had him go once he got off the bus, right before dinner, 1 hour after dinner, before shower time, and right before bed. If he tried and nothing happened he got a smiley face, and if he did go, I would give him a gold star sticker and 3 M&M's. We did this for a few months, yes it does take time but it is so worth it. I did not have him sit long either, we would count to 20 or we would say the alphabet. Good luck, I hope you can find something that will work for you.

Amber - posted on 09/21/2011

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my daughter is 7 we have been potty training for 3 years now.. in the process i have sucessfully train my 18 month old and 3 year old but my special needs daughter just forgets she will go pee in potty but #2 not yet so I try and keep her on a schedule in day with underware because if we put her in a diaper she will forget and just go but as long as she has underware she remembers except when she watches tv so i have to remind her if shes busy.. we taught her the sign potty so she just signs it when she needs to go. #2 is hard we dont have that anywhere near close but i believe it will come. i had to drop my complusiveness to have her trained and just take it for what it is just be consistant everyday I even give her miralax so that I have a set schedule of her pooping schedule. she has a little constipation so keeping her on that everday assures me she will go everyday.

Heather - posted on 09/17/2011

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Misty-Lynn: That is what my son's neurologist tells me too, but I don't buy it! Mainly bc my son WANTS to use the toilet. He asks to go often, but only succeeds rarely. I've had him running around bare in the backyard & he'll go and keep playing without even realizing it! However, he knows his waste is supposed to go in the toilet since when I tell him he's dirty he'll take the diaper & me to the bathroom & point to the toilet & cry. I'm not sure there is a label for it, but the drs. tell me it's lack of awareness like you. They say if he didn't feel it he would "leak" all the time, but I really don't believe that since I know he can't even feel the pain when he gets diaper rash. It's comforting to know we're not the only ones with this issue!

Misty-Lynn - posted on 09/16/2011

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Heather Ando: It is very interesting when you say your child has ascendents due to muscle control & sensation...my 6 yr old son is always going in his pants (1 & 2) without even making attempt to go to the toliet - which he knows very well how to do. Whenever he is asked as to why he does it he always claims the did not feel that he had to go. His pediatrician has been told his by myself and the staff at his school and he has always just gone on about it being lack of body awareness and that he is indeed feeling it and maybe just doesn't realize the process as to what he is feeling....no matter what we've tried nothing seems to help....is there an official name or "label" for this?

Amy - posted on 09/15/2011

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I used to get so frustrated at the fact that my autistic son wasn't potty trained. Everyone around me would say, "You can't make him. One of these days he'll just start going on his own." I finally came to a point where I just stopped obsessing over it because I knew he was aware of the concept and could go if he wanted. He was almost 5 when one day he just began going on his own! He still, however, has issues with #2 though....

Alice - posted on 09/12/2011

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My boys will also play with and occasionally eat their poop. The only thing that has saved me are some pajamas called Little Keeper Sleeper. They have three snaps over the zipper, which is in the back. i was cleaning up a horrible mess every night until I found this company. the weird thing is, my sons can use the computer, can talk a little, etc,. but they still think it's fine to get into their own poop. I think toilet training is going to be a long road in our family! One of the twins kind of has the idea, and the other one really doesn't want to do it.

Heather - posted on 09/12/2011

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Hi Nadia! I definitely understand your concern! I have a 7 yr old son with CP who is not trained yet, although his problem has to do with muscle control & sensation ( he cannot feel when he is going.) My son is also non-verbal & was in a verbal behavior/ ABA class at school with some autistic children.There is a VB toilet training program they used at school that worked for 2 of the kids in his class. I'm not sure what it's called, but you could probably google it since I've heard a lot of people have had luck with that. Good luck & I hope you find a method that works for your son!

Elizabeth - posted on 09/09/2011

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My son has ASD and was not potty trained until he was six. My son is now 7 and we still have issues and accidents. the only thing that worked for my son was to make it fun. Read to him while he is sitting on the toilet, or create a treasure chest full of goodies (toys/candy/what not) and every time he goes or at the beginning every time he sits and tries give him a reward. This is something that worked for me. But it varies for every kid, especially since there are different types of Autism and it affects each child differently. You can also talk to your Pediatrician to see if he/she has some suggestions. I hope this helps.

Catherine - posted on 09/09/2011

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My daughter is 5yrs old & is not potty trained as such. She is at school Mon-Fri where they sit her on the toilet on a regular basis. She has done two wee's on one day only & nothing since. I dont have time when at home as my 3yr son is quite a handful with his issues too. She will sit in it for hrs, play with it & even use to eat it for a long time. What do I do?!?

Takesha - posted on 09/08/2011

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I have the same problem my son is 5 yrs old with autism. He is non verbal as well and not potty trained. The biggest problem with him though is that he will sit on the potty for as long as you ask him to but as soon as he is off he will go in his room and go potty in his diaper. He will play in his poop and has eaten it on several occassions. I am at my wits end. They are trying to potty train him at school but it's not helping. If anybody has the answer I'm sure we could all use a little help with this one lol.

Mary - posted on 09/07/2011

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Teresa,
Hmm I am there with the daddy thing too...is this part of a "syndrome", I wonder :)

Teresa - posted on 09/07/2011

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my son is 8 and we are right there -- he'll go potty if you tell him to, or on a schedule; but if Daddy is watching TV & forgets to tell him to go, then mommy ends up changing a diaper. i can't seem to get him to care, he tells me "it just sneaked out" and he'll hug me and say he's sorry. if it was important to him then I really think he would have this.

Mary - posted on 09/06/2011

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Hi Nadia,
Have been there with my son and he also is in a full day program. The most important thing is to stay consistent at home with whatever they are doing at school. If they are putting him on the potty every 15 minutes then that is what you need to do. Do not give up. He will get it. My son is now nine years old and he is taken to the bathroom every hour and 15 minutes to go. He does not request it himself, but he will go on the potty and he does not have accidents (usually). It takes a lot of time and patience, stay with it. Autism is not easy.

Candi - posted on 09/06/2011

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Oh man do I hear you on this, although my kids are not autistic. One of my guys has cerebral palsy. Alice has good advice. Also, have the school district qualify him for a developmental therapist, and the developmental therapist should be able to give you a lot of advice on this. Developmental and occupational are the two therapies that help with potty training.

Alice - posted on 09/06/2011

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I have a book called The Potty Journey which has been a little helpful. I have six year old twins with autism -- one will use the potty if you time it right and the other hates the bathroom. There is also a book by Maria Wheeler, I think. I have had the best luck since I have started using just underwear for them in the daytime. My carpets are horrible, though. I use cookies as rewards, and try to make the bathroom an appealing place for them. I don't take them too often because they start to resent it and get angry. Hang in there, it is so hard when they are not motivated! But I think it will happen if you stick with it.

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