Jennifer - posted on 11/19/2008 ( 5 moms have responded )
My daughter, MacKenzie, born 5 weeks early, not breathing, had a stroke. I didn't find out until she was 9 mos. and the complications have been overwhelming. She is hemipalegic on right side, has partial complex seziures, multiple other delays and in the last few months been diagnosed with autisim. It is hard for others to relate, even family. There is not enough help, or if there is i have not found it. Our medical bills are through the roof, even when in network on a healthcare plan, i have to fight for everything she needs. The school systems are another issue and right now one of the biggest issues. I struggle to get my daughter the things she needs and she never understands why so many doctors and orthotics and now she is being teased and playing alone. It is killing me, so I thought i would try an online community with Parent's in similar situations.