Hip Surgery?!?

[deleted account] ( 7 moms have responded )

My son is 6 years old and has C.P., he is going to have a Proximal Femoral Varus Osteotomy and a Bilateral Adductor Tenotomy. I was wondering if anyone else has a child who has had one or both of the procedures? If so how did your child react to the surgery? Was there anything special you did to help with the healing process? My son is wheelchair bound, so I was also wondering if anyone had trouble with wheelchair seating after surgery? Did you have to adapt the wheelchair for comfort? Really any extra advice would be great, or anything you notice that help your child's comfort level, or just kept them happy! :)

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Katrina - posted on 02/21/2012

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Kristi,my son who is 12 was due for hip surgery yesterday,but I canceled because I was having mixed feelings about the whole thing. My son is wheelchair bound also,not in any pain,PT at school says she dont recommend this for him becasue hes not in pain. I am jus confused on to get the surgery or not. What will our kids benefit from the surgery since they r wheelchair bound? Please get back with me Thanks!

Heather - posted on 09/09/2010

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I have a friend with twins that went through this and they are doing great and walking better than ever. My son is going to have to have it at some point. She told me the key to all of it is to make sure the surgeon knows what they are doing and has a high rate of it working. If it is not something they would normal do I would find a different surgeon. Hope that helps I don't know about the wheelchair as my son is not in one at this time. Good luck to all.

Jennifer - posted on 09/09/2010

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His surgery was scheduled for end of Oct, but I cancelled it and will be put on a 6m recall. I needed more time to research it myself! Keep us posted!

Kristi - posted on 09/09/2010

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I am very nervous about all of this. She has an adaptive stroller now so we will have to get the wheelchair for her while she was at home. I have been trying to do research on all of this but have not found many answers online about it. We won't be going back to the doctor before the surgery so I won't be able to discuss the specifics of all of it. I will keep you updated as I know more and you do the same. When is his surgery scheduled?

Jennifer - posted on 09/09/2010

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Hi! My son is 12 and wheelchair bound. He was scheduled to have hip adductor surgery and through advice from his PT and OT, they did not recommend this for him. They said what strength he does have to bare wieght and for some small steps in his gait trainer, this would all be lost. We decided not to do the surgery, but the dr says if we don't he will begin to get worse and need hip surgery. Good luck with your decisions and I would love to hear the outcome!
Jennifer

[deleted account]

Kristi,
I would love to keep in touch...I have yet to hear from anyone who has had a child go thru the procedure so I have been doing a lot of online research and we are going to learn as we go. We are not going to need to get a reclining wheelchair because he isn't going to be casted. His surgeon will be plating the bones back together and they will remove the plates once the bones heal. Aidan has a power wheelchair and with plates he will be able to sit in his chair almost immediately, so he will not be immobile for as long, even thought his therapy and standing will be really limited, he will still have some freedom and he is a very active boy! I am a little nervous about the cutting of his adductors...it can be so beneficial, but I have heard horror stories of cutting muscles as well!! Most of the people I spoke with had children who were ambulatory and were toe walkers, when they released the heal cord the child never walked again! I know it isn't the same procedure and Aidan isn't walking, but it is still a hard decision! How are you feeling about the procedures?

Kristi - posted on 09/08/2010

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My daughter is 5 and having pretty much the same surgery in February. She is having a Bilateral Acetobuloplasty, Bilateral Adductor Tenotomy, Bilateral Rectus, Bilateral Hamstrings and Bilateral Femoral Varus Osteotomy. They told me I would have to get a wheelchair that reclines. She will be in a Spica cast for 6 weeks. I don't have any advice as we are waiting to have our surgery as well. We need to keep in touch so we can help each other. I don't know anyone else that has gone through this.

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