How do you help a child with cerebral palsy take water?
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Roxie - posted on 02/20/2010
Hi everyone. My son has had his G tube since he was 17 months old and now he is 5 years old. He cant take any liquids by mouth due to aspiration. All his liquids go thru his G tube. We have had problems with constipation as a matter of fact a week ago. I took him to the ER and they gave him an enema and nothing happened. Then I gave him milk of mag, mirilax, suppositories, and an enema and nothing happened. I ended up taking him back to the ER because his heart rate started going up and he started running a fever. And found out that he was constipated all the way up to his ribs. Gave him another enema and mirilax and nothing worked. Then finally he had a BM. So now I give him mirilax and prune juice every other day.
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Mary - posted on 02/20/2010
yes, i agree. the best thing for my daughter was miralax. you can add it to juice, soup, basically anything because it dissolves and has no taste. it's great stuff. once your child starts moving a little more the constipation will get better:-)
Iridescent - posted on 02/19/2010
He honestly takes no fluids at all? For approximately a year now? It sounds like this is a major issue and he needs a serious evaluation from a GI team. A feeding tube might be the best solution since it's been a problem for this long. We also use Miralax for my daughter every day, but she does drink enough and still gets constipated.
Heather - posted on 02/19/2010
hmmm, does he have a g tube? How else does he have liquids? My son has CP-like issues as well. The gI doc thinks the low muscle tone extends to his GI tract and prescribed Miralax. We've been through a lot of laxatives and it's by far the best! very gentle. We had to do suppositories to get things moving, and then a little Miralax every day.
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