Rhea - posted on 08/28/2009 ( 25 moms have responded )
I have a 13 month old boy that was diagnosed with a very rare chromosome disorder. He doesn't smile much nor can he walk or even crawl. I am wondering if anyone has any suggestions on how to respond to someone when they say "Oh, is he sleepy?" or "Is he walking yet?" I am still wrestling with the idea that I will have to take care of him the rest of my life and it often brings up harsh feelings when strangers make statements like that. I guess I just need some help on what to say. My mind goes to "He's mentally retarded" but I don't want to be mean, it is not like the person was trying to be mean. Please help.