I have a child with down syndrome. Does anyone else have a child with this?

Frances - posted on 09/27/2009

Heart problems with my son also. Doctor gave him until the age of 16.

Judie - posted on 09/27/2009

I sure hope Nicholas makes it that far,he was given a 5% chance of being born alive and with the multiple heart problems etc they didn't expect him to make it this far but he is getting stronger every year, or so it seems to me, although he does seem to be getting a lot more croupy coughs and chest infections and they are lasting longer and more trips to emergency,but he's a real battler and I believe I'll have him a lot longer yet :)
ohhh! and hoping his next milestone is sleeping more than a few hours a night :)

Frances - posted on 09/27/2009

Hang in there. My son is now 37.

Judie - posted on 09/27/2009

Nicholas is nearly 9 (hyperactive/autistic/down syndrome) and prefers to talk in other languages but sadly I only know english and sign but just recently he has really started to improve,he seems to learn and say more words if there is music to them,he never ceases to amaze me with how he seems to remember the words to so many songs,his favourite songs at the moment are The Banana Boat song and G'day,G'day,lol.
We're also finally getting somewhere with toilet training,a whole week now with no dirty or wet pull ups,wooo hooo,so exciting

Frances - posted on 09/27/2009

Quoting Nicholle :

I have a child with down syndrome. Does anyone else have a child with this?

I have a six year with Down Syndrome (the love of my life). I was just wanting to share some stories with the other mothers who may have children with the same thing.

My son is now 37 years old. Please ,never give up with talking ,social skills,etc. Worth every minute of hard work getting him to where he is today.Very independent person. The love my life.

Lucy - posted on 09/26/2009

i have an 8 yr old daughter thats ds and she is in second grade learning to read and working on tracing her letters she is wonderful to have around.

Teresa - posted on 09/26/2009

my youngest of three is 19 months old and has downs and we wouldnt change him for all the money in the world he is such a loving little boy a joy to have.

Judie - posted on 09/26/2009

My son is 8 and hyperactive/autistic/down syndrome with multiple medical probs but lively as all hell when not sick and ALWAYS happy-go-lucky

Karien - posted on 09/26/2009

I have a son of 3.5 years with ds. His name is Kallen and I also have 3 other boys- 16, 12 and 9 years. I wouldn't choose my life any other way. I have joined a forum where I get a lot of information from other parents- some of there children also has autism- it is www.downsyn.com

Joyce - posted on 09/26/2009

I have a 8 year old son with Down syndrome. He is in the 2nd grade. Evan is non-verbal, but we have just purchased an augmentative device called a Go-Talk for him to use at school. So far it has been a great success! I'm looking forward to reading everyone's stories.

Amy - posted on 09/26/2009

Hello, I have a son with DS who is 8 years old. I would love to share stories as Matthew is the social butterfly in the house and keeps us on our toes!

Keli - posted on 09/26/2009

My littlt girl Amber-Star (5 months) has DS she is the most beautiful, funniest, cutest baby in the world if i dont say so myself lol!! She is reaching her goals and smashing through them. We are so very lucky as Amber has had no heart problems although her thyroid is a little high its not caused any problems, she has a little problem with her intestines/bowels but we have been reasurred it will rectify itself. Our little girl is fighting fit and ready for anything she is so spoilt, not because she has DS just because shes our little STAR x x

Shannon - posted on 09/25/2009

My boyfriends little boy has Downs..he is also 6..he has had 2 open heart surgeries and we found out in March that he has Leukemia. He is doing well though--thank God..very scarey

TYTYGFVFJ - posted on 09/25/2009

YES MY DAUGHTER WAS 11 W/DS AN I MISS HER SOO MUCH SHE PASSED IN JULY AN SHE ALSO CHANGED MY WAY OF LIVING AN THE WAY I SAW LIFE I WISH I COULD HAVE ANOTHE CHILD W/DS I TAKE ONE ANY DAY.

Michelle - posted on 09/25/2009

My son has down syndrome and was also diagnosed with austim 3 years ago. The specialists said they were surprised he lived, butsince he was a twin, his sister helped keep him alive in utero. He is 8 years old now, but is like a one year old mentally. The doctors told us this year that they dont expect him to ever speak.. He is a challenge everyday.. but he is a blessing :)

Nicholle - posted on 09/24/2009

Aren't they the most precious things in the world!!! He has changed the way I look at life and the way I live my life. We have had our ups and downs but when you wake up every morning to that sweet smiling face its a great start for the day!

Stefania - posted on 09/24/2009

Hi, I am a mother of a Girl with DS. She will be two in October. We still do not have so many stories as you all, but it would be nice to talk about.

Melissa - posted on 09/23/2009

Yes, my son will turn 3 in December and I'd love to exchange stories!

Melissa - posted on 09/23/2009

Yes, my son will turn 3 in December and I'd love to exchange stories!