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Nicole - posted on 04/20/2010 ( 4 moms have responded )

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Hello everyone. My name is Nikki and I have five children with only three of my boys living with me. Anthony is twelve, Chris is four and Tyler is 2. Both Anthony and Chris are disabled. Anthony is receiving speech services and is emotionally disabled and is receiving services for his behavior. Chris, although not formally diagnosed as he is only four, is being treated for ADHD and bi-polar tendencies. Chris has undertaken a sensory profile and classically fits this as well. Since this has not been added as a "diagnosis" in the manual, he does not receive "treatment" for this, however, the special needs pre-school he attends is addressing this to some degree. Up until September of last year, I was a single mom who worked full-time, barely making it with my three children. I was involved with a wonderful man to whom I am now married. When I was laid off as a result of attendance (doctord appointments and therapy), it became imperative that I devote my energy in getting all the help I could for Anthony and Chris. We have since moved out to the country and I am with the boys all the time. It has not been easy and there are times I feel like I am going to lose my mind. I do not have much family that is close and the ones I do have are not a great support group. The techniques given to me by Chris's therapist work at times but not on a regular basis. He is on two medications that are no longer helping. I have an appointment coming up with a new doctor to have him looked at. Until then I continue to give him this medication. Anyway, I suppose I'm looking for a support group and friends that share the same experiences. Thank you for allowing me to share my story.
Nikki

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Renee - posted on 04/23/2010

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Nikki Welcome i'm Renee.My oldest Nigel 12 has Osteogenesis Imperfecta(brittle bone disease),mild Cerebral Palsy,severe ADHD,Bipolar and Intermittent explosive disorder.Feel free to msg me if you need to.I hope you get the support you need.

Stacy - posted on 04/22/2010

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I know the one thing a person needs is a shoulder to lean on and sometimes just vent.It's hard when your own spouse or family understand the daily struggles of living with a child with disablity. Your strong at times and need to rember you are a wonderful person!!!

Iridescent - posted on 04/20/2010

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Hi! I hope you get some support here that you need. I hate how hard it is to try to keep a job, no matter what your training, when you have sick children that require your time and attention and work resents that. It is honestly very hard. My job took a big hit as well last year and they knew when they hired me that I'd have to miss all days my daughter is hospitalized as well as a full week every 2-3 months for her appointments in the cities. It's not an optional issue; if we miss them, she could die, and if she's not hospitalized for illnesses, she will die. Work seemed to think I was kidding or something when they hired me, then got mad when I'd missed my 8th day in a year (I was working full time, filling in all kinds of shifts, yet that wasn't enough. I was also trading shifts and doing all I could to work even when my daughter was ill and hospitalized). I ended up having to quit and found out I qualify to be paid to provide the care at home for my daughter, because she requires 24 hour nursing care and I'm an RN. It was a Godsend.



It sounds like you're doing all you can for your family. Living in the country is excellent! And even though it's frustrating, consistently being there for your children also helps them a lot.

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