Samantha - posted on 07/13/2011 ( 1 mom has responded )
Hello there! My daughter was just recently diagnosed with Noonan Syndrome. I am awaiting the blood work to confirm it. It sure would explain a lot of things, so it's kind of a bittersweet feeling. She has pulmonary valve stenosis and is very small (17 lbs at 16 months old) and has low motor tone in her mouth. She also has no teeth yet. Curious if your child has Noonan when they got their first tooth. I've taken her for x-rays and it looks like they are all there. Thanks.