Marie - posted on 04/15/2009 ( 3 moms have responded )
To all my friends and family I have come to ask a request.. We have come up with more insurance roadblocks in Xander's care and as important as we know his needs are, it takes and arm and a leg to prove the needs of one little boy.. Xander is in PT and has come along way, but, he is at a plateau. He is unable to sit unsupported, reach for toys with out help, crawl, or walk due to L-1 syndrome which is a severe form of hydracephalus with various other symptoms that prevent him from developing physically and mentally on a pace as set by children without disabilities. He has had six brain surgeries over the this past Thanksgiving and New Years, and yet he is still surpassing all the specialists expectations for children with as many difficulties as he has.. He is a fighter..I have had to fight the insurance already for a head shaping helmet to prevent him from having a surgery where they cut apart the plates in his head set them and helmet him anyways.. We won that battle with alot of time lost for Xander as he can only wear it till he is 18 mos.. He will be turning 15 months and I would like to get him physically farther and need what they call a creepster crawler.. It is to teach him to bear weight on his hands and knees, basically to crawl.. All I am asking is that you reach out to others and see if anyone has a used one that their child has outgrown and is willing to pass on to the next child in need.. Please pass this on to all you can and help us get Xander that much closer to his goals.