Infant with Severe Milk Protein allergy & Severe Reflux

Alexis - posted on 10/19/2008 ( 14 moms have responded )

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Hi! I am a SAHM to a beautiful soon to be 5 month old baby girl who has been diagnosed with a severe milk protein allergy and severe reflux. Has anyone had to seal with these issues or is currently dealing with them? Any information or advice would be greatly appreciated b/c I am at my wits end! - Alexis

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Bea - posted on 08/19/2009

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my son now 7months has a milk allergy that causes him to be constipated and he also suffered from acid reflux which would cause him to choke on his spit up, stop breathing for a couple of secs and milk would come out of his nose. It was the worst thing to see! After putting him on Alimentum, his constipation went away and so did the reflux BUT only for the first 2 weeks of being on the new formula and he went right back to having bad reflux. I caved and began giving him prevacid. I hated that I had to give him medicine and it made him have diarreah. After about a week of medicine I discovered an article that talked about the NEW DHA/ARA stuff they are putting in formulas and the adverse affects being reported by parents.



When I wrote to voice my concerns, I received a response and they suggested for me to try a formula without DHA/ARA to determine if it was indeed the cause of my son's problems. INDEED IT WAS. After the FIRST day of trying the new formula without Martek's DHA/ARA in it it was an immediate change. My son to this day is acid reflux free and meds free.



Now all we focus on is helping him meet his milestones. He is a much happier baby, he sleeps through the night now and we just enjoy every day we have with him.



I suggest you research about Martek's DHA/ARA and switch to a formula that does not have their DHA/ARA in it. If you would like to know what formula my son is on, please contact me.

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Jennifer - posted on 06/05/2011

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Hi,
I have an almost 5 month old baby girl who has not officially been diagnosed with milk allergy, but who has moderate reflux problems. She has never had a normal yellow seedy stool, and gets constipated when I introduce formula. Her stools are green mucosy and watery unless I introduce solids. When I drink milk, she tends to vomit more. I want to continue breastfeeding, but I think I might be a lost cause, because I would have to be so strict with my diet. The next step for me is trying elecare formula, and if her mucosy stools and irritability go away, I will have the diagnosis of milk allergy too. I just hope at some point she will be able to take milk in her diet, because life without milk products is torture for a little kid...

Heather - posted on 08/24/2009

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Quoting Bea:



Quoting Heather:

My son was just diagnosed with something called Eosinophilic Esophagitis which can frequently be misdiagnosed as reflux. It's a certain type if inflammation in the esophagus brought on by a food allergy. take a look at APFED..org This is a more recent discovery and not a lot of Dr's know about it- My son has been on reflux meds since birth and has a dairy allergy too. He's 5 now!






How do they diagnose them? Do they just do blood work?





 



Hi Bea,



 



The dr did an upper endo to check for reflux damage. They have to take biopsies to see what the damage is, and they discovered the eosinophils in the biopsy. They're cells that are normally present in the stomach, but when there's an allergy issue apparently they migrate into the esophoagus and cause inflammation. Hope that helps!

Bea - posted on 08/24/2009

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Quoting Heather:

My son was just diagnosed with something called Eosinophilic Esophagitis which can frequently be misdiagnosed as reflux. It's a certain type if inflammation in the esophagus brought on by a food allergy. take a look at APFED..org This is a more recent discovery and not a lot of Dr's know about it- My son has been on reflux meds since birth and has a dairy allergy too. He's 5 now!



How do they diagnose them? Do they just do blood work?

Heather - posted on 08/23/2009

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My son was just diagnosed with something called Eosinophilic Esophagitis which can frequently be misdiagnosed as reflux. It's a certain type if inflammation in the esophagus brought on by a food allergy. take a look at APFED..org This is a more recent discovery and not a lot of Dr's know about it- My son has been on reflux meds since birth and has a dairy allergy too. He's 5 now!

Misty - posted on 08/23/2009

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All 3 of my children had it at birth. My 1st is 4 and outgrew the throwing up part and is on Lactaid milk and is lactose intolerant, my 2nd one is 3 and has a g-tube and takes Prevacid and can drink milk but only so much and my 3rd is 1 and getting better but is in special formula called Neocate and on Prilosec. Try feeding her smaller amounts at a time start with 3 ounces and if she seems to do ok for a couple days then go to 3 1/2 and so on. If 3 is too much then try 2 1/2 and so on. It will also help to put some rice cereal in her bottle, make sure you burp her every ounce and feed her while she is up right. These things helped for us. I wish u good luck !!

Debra - posted on 04/26/2009

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My daughter had severe projectile reflux. I changed her formula to Carnation Good Start and she was put on Prilosec. The Dr.s said it would probably last till her 1st b-day and it did stop aroung there. Hang in there!!!

Krysti - posted on 04/25/2009

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My son (who is now almost 3) had severe reflux and milk protein allergies when he was younger...we weighed down his formula with cereal, which I'm sure you do..its usually the first step..Also put pillows under the crib mattress to elevate the head of the crib. So she can sleep with her head higher than her stomach..that helped A LOT for my son. Aside from that, there really isn't anything else to do except surgery..but for surgery it has to be REALLY bad..It sucks..it really does. I'm sorry. Luckily it should stop soon..my sons STARTED getting better at about 6-7 months..OH also, trying feeding more FOOD rather than formula..because of my sons reflux he started solid food at 3 months..because he could hold that down better...Good luck!

Kristina - posted on 04/24/2009

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Hi, I have a child that has a milk protien allergy that we found out when he was 51/2 mos old........he is now 15 I hope for all of you thata your children grow out of it like they say they do. first it was at 5 then puberty well he is there and is still as allergic as ever. I even took him to a childrens hospital where they are very well known to things like this and they did a scratch test on him and his reaction was so bad they brought in like 6 Drs to look and see......he was about 10 then and I knew I had to sopp up my tears and realize this is going to be life long for him. he is welll adjusted with his allergy. he doesnt like being different but I do all I can to make things just like everyone else has. even for school I found ways to do things for him. you moms out there have it better than I did as they didnt have to label high allergens on foods back then that they do know. I wish all of you the best and if you ever have questions please dont hesitate to ask. I got alot of help when he was young. every new food I fed him I was in a panic afraid he would go into anaphylaxis on me. best to all of you moms!

Melanie - posted on 02/10/2009

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Hello, We found out that our little girl has severe Milk and egg protien allergies at 7 month. Consider it a blessing that you found out early because you have time now to learn before she starts solid foods.  I dont know what kind of formula that your allergist put her on or are you nursing. I nursed Lilly until she was 7 months because I would have had to stop completely eating everything with the protiens in it. So I put her on neocate formula they also told us that it would be good because the less contact she comes into with the protiens the more likely she might be to out grow the allergies.



What type of information or advice are you looking for exactly, I completly understand your frustrations, and anything I can help you with I will be glad to help you Write me back with any questions.  Also if you wan to join there is another community that I am the administrater of it is on the circle of moms but it is called  Milk and Egg allergic Kids.



I hope that I can help you and look forward to talking to you soon,



Melanie

Molly - posted on 02/10/2009

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HI,



My 7 month old has a milk protein allergy and we first found out when his diaper rash would not go away at 6 weeks. I was drinking milkshakes to fatten him up to his birth weight. I have cut all milk and milk derivatives (whey, casseine) out of my diet and it has made his reflux go away. Every once in a while I splurge and he pukes the entire next day. I am hoping this gets better, I miss ice cream and grilled cheese sandwiches!!

Melanie - posted on 11/11/2008

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My daughter doesnt have reflux problems but she allergic to milk and egg protiens, She is anaphlaxic to both and it is very difficult. She was diagnosed at 7 months and has been a rough road but getting better and easier to figure out what she can and cant have. My best advice get a Great Allergist, Ours is the best and I dont know what I would do with out him or his receptionist....

Good Luck.

Alexis - posted on 10/20/2008

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I am sorry to hear it is so bad. I feel your pain. Good luck at Duke! My daughter had pyloric stenosis surgery at 7 weeks so I feel for you. Can I ask about his feeds - I feel like all she will take is 2 -3 oz. at a time. Of course the Drs. say to extend but that hasn't changed anything. Were your sons feeds like this?

Laurie - posted on 10/19/2008

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My son also has severe reflux. we have exhausted all our resources and are going for a consultation at Duke this month. We are going to have the Nissin surgery to hopefully put an end to his suffering. I have tried to put this off as long as possible hoping to find a easier cure. But sadly we have not. We have tried diet change, medicines, alternative medicines. Nothing has worked. It is a terrible thing for a little one to have to endure.

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