just exhausted or passive seziures? worried about my autistic 3 yr old

Jennifer - posted on 07/24/2012 ( 6 moms have responded )

150

26

ok a little background on my lil guy he will be 4 in august he is autistic and has a ultra rare chromosome 18 abnormaility which only my husband and 4 children are the only ones know to existi with this disorder only 1 gene they are missing has been studied TGIF1 this gene when missing can casue the brain to not fully seperate into 2 halves wether or not my childrens brains are normal or not has yet to be determined they are looking at doing a cat scan of my almost 10 yr old in the near future but they have to be able to stay still so it will be a while before my 3 yr old can have this teszt done till then we only know this is a possibility also i have a nephew that is in the process of being diagnosed with seziure disorder they aren't at the bottom of his seziures yet other than they seem to be illness related with all this being said my son comes home from school seemily exhausted looks glassy eyed almost in his own lil world sometimes usually there are only a few days a week or maybe none in a week he isn't like this when returning from school i have been wondering for some time now if he dosn't in fact have some sort of seziure activity going on i have asked the drs only to be blown off like i am crazy he also seems to have staring spells he kinda looks past you or at something but not actually AT it for several seconds youcan wave your hand in front of his face talk to him but he dosn't respond then snaps back like nothing happend then last night my sister was putting him to bed and she freaked out cause he went completely rigid in her arms and tehn started smacking his lips like he was sucking on a bottle kinda she said it was his whole body and it lasted for 15 to 30 seconds and he seemed out of it afterward for about 2 min then was fine i mentiond this to the school where he goes they said it was funny i mentioned it cause he had a staring spell just about an hr before that today teh nurse couldn't get him to look at her she wasn't sure if it was him visually stemmin due to his autism or if it was something else but thought it was weird anyway now i have "episode logs that i am keeping at home and the teachers are to fill out at school to see if we can nail down a pattern they also said he seems to do this about 1 :00 to 1:30 most every day when they are getting ready to start getting to the bus he sleep s on the bus for an hr before getting home but when he gets off he just wonders around like he is totally exhausetd and then starts this glassy eyes staring stuff it buggs me to no end not sure if maybe he is just tired or if there is something else going on also may not be related but i have noticed when he is like this the frequency of his meltdowns and severe aggressive tendancies aso get worse does anyone else have any experience with this i am lost enough dealing with the autism and add now i am even more lost as to what to doabout this maybe i am just paranoid i need to know if i am doing all the right things or if maybe there is something else i can do tog et the dr to listen to us our dr is new to us we finally switched in april and he seems to be really good but he dosn't really know the kids yet any advise is appreciated

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms

6 Comments

View replies by

Jennifer - posted on 08/10/2012

150

26

we are working on trying to get our dr to listen to us when i tell tehnm i think he may have a seziure disorder and get him tested my gut says it si i talked with his teachers since i asked them to start writing down every "episode "of these staring spells since then he seems to have at least one ever day if not more they are keeping a log of every time they notice one so i can bring them with me to his well child apt that is coming up i am hopeing this proof will be enough to convince the dr there is something wrong i do notice these episodes are more likely the more tired he is but the school says they could be stemin behaviour due to the autism as well part of the chromosome disorder they have can cause the brain to not fully seperate they want to wait till he is much older to run tests on that my oldest is likely to be getting those scans in the next year since he is old enough to stay till withought sedation also all these episodes seem to occur mstly after 1:00 in the afternoon right before he gets on the bus to come home is it normal for a child to have these around a certian time of day or are they more random in nature

Lisa - posted on 08/09/2012

3

0

Sounds like the absence seizures my son has now. He first had them at age 1.5 yrs. we controlled with meds and he was able to go off meds by age 5. His seizures returned when he turned 10 yrs...we think because of changing hormones. He's on meds, but stressors on the body can still trigger them. Caution with kepra, google side effects. It's not for everyone. There are many seizure meds to try. Tests can confirm seizures. Good luck!

Crystal - posted on 08/07/2012

5

0

Dear Mom,

I also have a son that used to have seizures until we got them under control. Don't know if you have them under control yet, but have your doctor to try Keppra. It has stopped them in their tracks.

Hope this helps,

Crystal

Autismomma - posted on 07/26/2012

5

0

I am not really sure exactly what you are asking but what caught my eye about your post was when you mentioned your son's lip-smacking. My son, who has autism and epilepsy, gets that glassy-eyed look and will often smack his lips right before he has a seizure. He has done it so many times right before a seizure that I go into overdrive whenever I hear him making any kind of sound that sounds even similar to that lip-smacking sound.

Reshma - posted on 07/25/2012

1

0

Seizure Disorder
A seizure disorder (also known as epilepsy) is a condition in which the neurons in the brain function abnormally, resulting in sudden, brief changes in how the brain works. These changes result in seizures, which involve convulsions, muscle spasms, and loss of consciousness. A person needs to have two or more seizures to be classified as having a disorder.
What Is a Seizure Disorder?
The term "seizure disorder" refers to a condition that occurs when clusters of nerve cells, or neurons, in the brain sometimes signal abnormally. When these brain cells are not working properly, a person's consciousness, movement, or actions may be altered for a short time. These physical changes are called epileptic seizures.

Seizure disorders are more commonly known as epilepsy and affect people of all nationalities and races.

What Causes It?
A seizure disorder can be caused by a variety of factors. Anything that disturbs the normal pattern of neuron activity -- from illness to brain damage to abnormal brain development -- can cause a seizure. The condition may develop as the result of abnormality in brain wiring, an imbalance of nerve signaling chemicals called neurotransmitters, or some combination of these factors.

Seizure disorders are not contagious and are not caused by mental illness or mental retardation.

Diagnosing a Seizure Disorder
Experiencing a single seizure does not necessarily mean that a person has a seizure disorder. Only when a person has had two or more seizures is he or she considered to have a disorder. Brain scans and electroencephalograms (EEGs) are common tests used to make a diagnosis.
Signs and Symptoms:

Seizures are classified in two main categories:

Partial seizures -- involve a part of the brain. They can be:

Simple partial seizures -- Symptoms may include involuntary twitching of the muscles or arms and legs; changes in vision; vertigo; and experiencing unusual tastes or smells. The person does not lose consciousness.
Complex partial seizures -- Symptoms may be similar to those of partial seizures, but the person does lose awareness for a time. The persona may engage in repetitive behavior (like walking in a circle or rubbing their hands) or stare.

Generalized seizures -- involve much more or all of the brain. They can be:

Absence seizures (petit mal) -- Symptoms may include staring and brief loss of consciousness.
Myoclonic seizures -- Symptoms may include jerking or twitching of the limbs on both sides of the body.
Tonic-clonic seizures (grand mal) -- Symptoms may include loss of consciousness, shaking or jerking of the body, and loss of bladder control. The person may have an aura or an unusual feeling before the seizure starts. These seizures can last from 5 - 20 minutes.


Read more: http://www.umm.edu/altmed/articles/seizu...

Sharlene - posted on 07/25/2012

3,896

239

Hi, My 9 yr old son has autism and when he was much younger he had seziures and put on med's for that and he also had the same glassy stare in his eyes. He went for head scans and one side of his brain was not active. He has not had a seizure for years now and yes mum your doing everything right just keep thinking positive and has the doctors or specialist said he would grow out of it and also is he in early intervention that might help if you can get some services for him. Good luck with the future testing with your family and I wish you the very best. And mum your doing everything right just take it easy .take care xx