Jennifer - posted on 07/24/2012 ( 6 moms have responded )
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ok a little background on my lil guy he will be 4 in august he is autistic and has a ultra rare chromosome 18 abnormaility which only my husband and 4 children are the only ones know to existi with this disorder only 1 gene they are missing has been studied TGIF1 this gene when missing can casue the brain to not fully seperate into 2 halves wether or not my childrens brains are normal or not has yet to be determined they are looking at doing a cat scan of my almost 10 yr old in the near future but they have to be able to stay still so it will be a while before my 3 yr old can have this teszt done till then we only know this is a possibility also i have a nephew that is in the process of being diagnosed with seziure disorder they aren't at the bottom of his seziures yet other than they seem to be illness related with all this being said my son comes home from school seemily exhausted looks glassy eyed almost in his own lil world sometimes usually there are only a few days a week or maybe none in a week he isn't like this when returning from school i have been wondering for some time now if he dosn't in fact have some sort of seziure activity going on i have asked the drs only to be blown off like i am crazy he also seems to have staring spells he kinda looks past you or at something but not actually AT it for several seconds youcan wave your hand in front of his face talk to him but he dosn't respond then snaps back like nothing happend then last night my sister was putting him to bed and she freaked out cause he went completely rigid in her arms and tehn started smacking his lips like he was sucking on a bottle kinda she said it was his whole body and it lasted for 15 to 30 seconds and he seemed out of it afterward for about 2 min then was fine i mentiond this to the school where he goes they said it was funny i mentioned it cause he had a staring spell just about an hr before that today teh nurse couldn't get him to look at her she wasn't sure if it was him visually stemmin due to his autism or if it was something else but thought it was weird anyway now i have "episode logs that i am keeping at home and the teachers are to fill out at school to see if we can nail down a pattern they also said he seems to do this about 1 :00 to 1:30 most every day when they are getting ready to start getting to the bus he sleep s on the bus for an hr before getting home but when he gets off he just wonders around like he is totally exhausetd and then starts this glassy eyes staring stuff it buggs me to no end not sure if maybe he is just tired or if there is something else going on also may not be related but i have noticed when he is like this the frequency of his meltdowns and severe aggressive tendancies aso get worse does anyone else have any experience with this i am lost enough dealing with the autism and add now i am even more lost as to what to doabout this maybe i am just paranoid i need to know if i am doing all the right things or if maybe there is something else i can do tog et the dr to listen to us our dr is new to us we finally switched in april and he seems to be really good but he dosn't really know the kids yet any advise is appreciated
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