JUST TO SHARE

Mary - posted on 01/04/2010 ( 6 moms have responded )

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THE CREED OF BABIES WITH DOWN SYNDROME

FOUND ON A INTERNET WEBSITE 2 YEARS AGO



DONT KNOW IF EVERYONE HAS READ THIS BUT I DECIDED TO SHARE IT ANYWAY



MY FACE MIGHT BE DIFFERENT

BUT MY FEELINGS THE SAME

I LAUGH AND I CRY

AND I TAKE PRIDE IN MY GAINS

I WAS SENT HERE AMOUNG YOU

TO TEACH YOU TO LOVE

AS GOD IN THE HEAVENS

LOOKS DOWN FROM ABOVE

TO HIM IM NO DIFFERENT

HIS LOVE KNOWS NO BOUNDS

ITS THOSE HERE AMOUNG YOU

IN CITIES AND TOWNS

THAT JUDGE ME BY STANDARDS

THAT MAN HAS IMPARTED

BUT THIS FAMILY IVE CHOSEN

WILL HELP ME GET STARTED

FOR IM ONE OF THE CHILDREN

SO SPECIAL AND FEW

THAT COME HERE TO LEARN

THE SAME LESSONS AS YOU

THAT LOVE IS ACCEPTANCE

I MUST COME FROM THE HEART

WE ALL HAVE THE SAME PURPOSE

THOUGH NOT THE SAME START

THE LORD GAVE ME LIFE

TO LIVE AND EMBRACE

AND ILL DO AS YOU DO

BUT AT MY OWN PACE...........



MY SON KALEB HAS BEEN A BLESSING SINCE THE DAY I FOUND OUT I WAS PREGNANT I GAVE BIRTH TO A STILLBORN DAUGHTER MACKENZIE JADE THEN YEAR LATER KALEB AND AFTER ALL THE STORIES AND READING I BECAME SCARED OF WHAT WOULD HAPPEN WHEN KALEB GOT HERE BUT I FIND MYSELF THINKING I WAS RIDICULOUS TO BE UPSET AND NERVOUS CAUSE HE IS MY ANGEL BABY I LOVE HIM MORE AND MORE EVERYDAY ALL I SEE IN HIM IS WONDERFUL THINGS NOT DELAYS OR ANY OTHER TERM THAT DOCTORS AND RUDE UNEDUACATED PEOPLE LIKE TO USE I STILL WORRY FOR HIM AND HIS HEALTH BUT WHAT MOTHER DOESNT I WORRY EVERYDAY WHEN HE IS OLD ENOUGH TO GO TO SCHOOL AND OUT INTO THE WORLD WHERE SOME PEOPLE CAN BE SO CRUEL BUT I TELL MYSELF ILL BE THERE TO SEE HIM THRU TO EDUCATE HIM ON THOSE PEOPLE AND TO STEP UO AND EDUCATE OTHERS ABOUT HIM AND SO MANY CHILDREN LIKE HIM I CANT IMAGINE MY LIFE WITHOUT HIM AND YOU CAN NEVER SAY THANK YOU ENOUGHT TO THE PEOPLE THAT HAVE BEEN THERE TO HELP BY SUPPORTING E WITH LOVE A SIMPLE SHOULDER TO CRY ON OR THE MANY NEW PEOPLE THAT GIVE THEIR TIME TO SHARE STORIES TO ME WHEN I NEED AN ANSWER OR SOMEONE TO UNDERSTAND WHAT I FEEL THANKS TO ALL OF YOU!

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6 Comments

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Mary - posted on 01/07/2010

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thanks for sharing that exactly what i felt at first ready for a normal everything like everyone else i knew but didnt happen but i think i got a child even better than i could of imagined and i wouldnt change it for the world thanks for posting this put it in my book of favorite quotes/poems/stories really appreciate you taking the time to share it with me

Nicole - posted on 01/07/2010

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I have it on my profile so I copied it for you:

When you're going to have a baby it's like planning a vacation trip--to Italy. You buy a bunch of guide-books and make your wonderful plans. The Coliseum, the Michelangelo, David, the gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later the plane lands. The stewardess comes in and says, "Welcome to Holland!"

"HOLLAND!?!" you say, "What do you mean, Holland? I signed up for Italy. I'm supposed to be in Italy! All my life I've dreamed of going to Italy." But there's been a change in flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible disgusting place full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you will learn a whole new language. And you will meet a whole new group of people you never would have met. It's just a different place. It's slower paced than Italy, less flashy than Italy. But after you have been there for a while and you catch your breath, you look around, and you begin to notice that Holland has tulips, Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy, and they're all bragging about what a wonderful time they had there. And for the rest of your life you will say, "Yes, that's where I was supposed to go. That's what I had planned". And the loss of that will never, ever go away, because the loss of that dream is a significant loss.

BUT IF YOU SPEND YOUR LIFE MOURNING THE FACT THAT YOU DIDN'T GET TO ITALY, YOU MAY NEVER BE FREE TO ENJOY THE VERY SPECIAL, THE VERY LOVELY THINGS ABOUT HOLLAND.

By Emily Pearl Kingsley

Holland is a beautiful place that not many people are every lucky enough to see in thier life. I hope that this helps people understand better than I could what it's like to have a child with a rare chromosome syndrom. I thank God that he gave me Hannah to hold my hand while we walk through the tulips in Holland.

Mary - posted on 01/07/2010

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i cant say i have but i will be sure to look up holland and see what i run into thanks for the post sometimes kind words can remind you how lucky you are to be blessed and keep you trucking thru when u feel like u arent going anywhere with things i love him and i hope he always remembers that no matter where life takes him.

Nicole - posted on 01/06/2010

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God picked you because he knew that you would be the best mom for your son! You sound like such a good mommy!
That's a beautiful poem! Have you ever read (I think this is the name) Holland?

Mary - posted on 01/04/2010

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Quoting Kelley:

That is a lovely poem and you sound like a wonderful mommy. My son doesnt have Down Syndrome but does have a rare chromosome abnormality. He is special too. I love him to bits and wouldnt change him for the world.



thanks sometimes i think my little guy was given to me not only for me to help him through but for him to teach me to change me and  to get me thru things when i dont feel like i can after all look at all our children overcome or push thru troopers little heros to some well i could just go on and on about how much they bring to our lives but  im sure everyone would be tired of reading after awhile thanks again

Kelley - posted on 01/04/2010

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That is a lovely poem and you sound like a wonderful mommy. My son doesnt have Down Syndrome but does have a rare chromosome abnormality. He is special too. I love him to bits and wouldnt change him for the world.