Christine - posted on 12/27/2010 ( 11 moms have responded )
I am mom of a 4 year old boy with Down Syndrome. At 15 months, he developed pneumonia and went into respiratory arrest. He suffered significant hypoxic brain injury and as a result has several seizues a day despite being on 2 different meds. He is also tube fed. The type of seizures he has are infantile spasms which we were told are difficult to control-he has had several changes in medication doses which work well for awhile but they gradually return. Our neuologist has suggested a ketogenic diet. I am anxious to hear of any stories anyone out there may have!