Looking for other parents of children with Apraxia

Kathie - posted on 03/15/2011

Was wondering if others had behavioral problems with your child with apraxia? They say its because he is frustrated but Im not sure what to do about it. How do you punish a child who is just frustrated?

Michele - posted on 02/03/2010

My 5 year old son has verbal appraxia. He started speech therapy when he was 2, yet did not speak his first word till he was 33 months. I read various books and as a result started giving him fish oil. It has been shown to improve brian function and has had remarkable results with autistic and appraxic kids. My son is now 5 1/2. He still receives speech therapy twice a week. My best advise is to show patience and lots of praise! Your child needs extra time to process what he wants to say. And when he does, you need to celebrate the words, even if they aren't exactly right!

Jeanne - posted on 02/02/2010

Hi,



I have an 11 yr old son with severe Dyspraxia / Apraxia of speech. I also belong to the list server that lisa Geng runs. It is wonderful has some very helpsul and wonderful people on it. Very informative and friendly. Go check it out..

Cherish - posted on 01/21/2010

My youngest son is 7 and has apraxia,as well as severe autism.
He does not really speak but he has a device made by PRC that is like a computer that talks for him!!!

Dawn - posted on 01/03/2010

I have a child with this speech disorder.. have you looked at CASANA online .. you can google the organization.. where do you live? Dawn

Shel-leanne - posted on 01/02/2010

My daughter is in the process of being diagnosed, its a relief to finally know what it is she has. I have found the following website very useful www.speech-language-therapy.com

Shel :-)

M - posted on 01/02/2010

Theres a Yahoo group called Apraxiakids which has over 8000 members--lots of info. its currently being moved from Yahoo to Big Tent. you could find it on Big Tent under Cherab.The founder of both is Lisa Geng. She also has a group on FB for Apraxia kids. My 8yr old has severe apraxia.

Becky - posted on 01/01/2010

Jack also gets speech therapy twice a week. His speech therapist let us borrow a "workbook" for Apraxia that is like a story book, but also has pages of just practicing various sounds and info about how to get your child to make those sounds. Jack loved it and really started talking more after we started reading it. He still has trouble with lots of sounds and has to really think to get some words out, but he has made a lot of progress.

Traci - posted on 01/01/2010

My son Brendan, has speech apraxia and sees a speech therapist weekly. He also sees a physical therapist every two weeks.