Maddy ~ age 11

Kimberly - posted on 11/04/2008 ( 2 moms have responded )

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This is my daughter, Maddy, who has Cornelia deLange Syndrome. She is the light of our lives!

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Kimberly - posted on 11/04/2008

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It's pretty rare. :) Maddy is both physically and mentally handicapped. She has upper limb differences, doesn't walk, talk, or eat by mouth, but is the sunniest child you'll ever meet. She's basically like a baby in her physical abilities (can sit if placed in position, can stand with assistance) and communicates with adaptive sign language at about an 18 month level. She attends a Life Skills classroom and is in the 5th grade this year ~ in Intermediate School. :)

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