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Meningicocle & meningitis survivers with learning difficulties.

Sharon - posted on 07/26/2009 ( 3 moms have responded )

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Hi my son, now 9, was rushed to hospital at the age of 2 with what the doctor had diagnosed the day b4 as chicken pox but was in fact meningicocle and meningitis. We spent 10 days in isolation and 6 days in intensive care in R.C.H. I am lucky to still have him. He was one of the lucky ones as i am told so very often. He is a happy, polite and very outgoing boy. He has all him limbs, no physical scars so we are very lucky. However he does not do well at school with keeping friends, learning new things, concerntrating, sitting still, making eye contact, thinking things through, hearing, staying focused, and the list goes on. We took him to the youth child mental health who, after 9 months, diagnosed him with a range of sensory disorders. I'm just wondering if there are any other mothers or fathers who have been here and done this or who are going through it. It would be lovely to compare notes and to just vent about the school system who want to help out when it suits them or any other issues that we are yet to come across.

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Jeanette - posted on 09/24/2009

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my daugther who is now 5, at 5 days old developed bacterial meningitis. They could not guarantee her life. She spent 8 days in hospital on IV anitibiotics and another week on oral antibiotics. Again, she is physically fine, but she too from day one has shown signs of "developmental delay" to which they have deemed her two years behind an average kid her age. The school is very reluctant to do anything even though I have a file about 2 inches think stating every test and specialist that she has been too. She has been diagnosed with ADD, asmatha, developmental delay all to which are directly caused from the meningitis. So frustrating, but I have a great paediatrician and she follows her well. I hope you have the same.

Sharon - posted on 08/05/2009

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Hi Jenise, thanks for your reply. I am sorry to hear about your daughter but as we know we are lucky to have them still. I have told the school the situation and they put him in a tutoring style program but it was to help him at the time of the NAPLAN testing. (when the schools reputation was on show) but now that the testing is done he has yet again been left behind. He is seeing the guidence councillor once a fortnight to help him interact with other children but that doesn't help with his school work. He is most frustrated with the school work so you can imagine how much fun homework is. The school have told me not to bother doing the homework with him as it is too hard and he gets upset. I asked for grade 4 work to do with him at home but they will not give it as it will confuse him more. I will figure something out for him. It will take time. Your daughter is lucky to have good friends and teachers that are understanding. I think as it is not physical with my son it is not as easy for teachers, children and the public to be sympathetic or understand. Thanks again for your help.

Jenise - posted on 07/30/2009

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Hi there, my daughter had meningacockle when she was 18 months old, she lost her right leg though it but i am very lucky to have her as well. we were told it was chicken poxs to then 4 hours later we were on our to starship childrens hospital. she is now 6 &1/2. she had trouble keeping friends when started school but now everyone likes her because she explained to them what had happened and why she lost her leg. have you tried talking to the children in your son class at school?? that might help a little.

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