Karen - posted on 05/14/2011 ( 9 moms have responded )
Hi, I have 3 children aged 10yrs, 3yrs and 2 yrs.
All of my children have Ehlers Danlos Syndrome type 3, Hypotonia, Multiple allergies, Bowel problems, Vonwillebrands Disease.
My 10 yr old son also has Asperges and dyspraxia and is being assessed for paddymal epilepsy and photosensitivity epilepsy.
My 3yr old son has Global developmental delay, High functioning autism, bells palsy.
My 2 yr old daughter has floppy laryanx disorder.
I was wondering if there was anyone out there that has children with any of these conditions. I dont know anyone else who has Ehlers Danlos syndrome type 3 and i am new to Global developmental delay.
Just feel alone at the moment and feel like im flying blind trying to help my kids.