Kendra - posted on 10/01/2011 ( 11 moms have responded )
My son Ethan, who is a twin, has OEIS complex (omphalecele, extraphy of the bladder, imperforate anus, and spina bifida) when he was 3 days old he undergone a surgery to repair his omphalecele (all his intestines were in a bag on his stomach) and to give him a colostomy bag (due to his lack of rectum). He must undergo his second surgery in November, he will be 10 months, to put his bladder back in and re-align his pelvis bone, which involves cutting the hip bones on both sides and pelvis bones on both sides and will have screws in for 6-8 weeks...this surgery is scheduled for over 12 hours straight and I am so scared for my lil boy...any advice to help cope with my fears and stay strong for my baby boy will really help me and my family!! thanks so much!!