My son with sensory issues please help

Kelley - posted on 04/19/2011 ( 24 moms have responded )

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I will start with a little bit of background. My DS will be 3 on Friday. He has never shown any sign of a speech delay or any delay for that matter. He has always seemed to be a sensory seeker such has he loves to jump off of pretty much anything that can be jumped off of, he loves to be tickled he will asked to be for that matter, he seems to be always moving one way or another, he will sometimes spin in circles over and over, he loves the feeling on his face of things that have a vibration of some sort such as toy cars the the wheels spin, electric razors, battery operated tooth brushes. He loves the vacuum and the blow dryer but is terrified of lawn mowers, garbage trucks, emergency services sirens. He doesn't seem to have a fear of what could hurt him or what is safe i.e he wants to just take off and run in parking lots and in stores. I have had family member tell me well that is because he is a boy that is almost 3. But I have a hard time believing that . He had an OT eval done last month. I had an eval done because with in the last 2 1/2 months he has started to have some other sensory concerns that kinda came out of no where. The new issues are he wants jeans on all the time even to sleep in and they HAVE to be blue and can't have a built in belt or a belt at all can't have cargo pockets and he will tell you so or he will freak out. He screams when I get his hair wet in the bath tub or even with a spray bottle. He screams and cries when you go to wipe is face or hands with something wet. He doesn't like his clothes to get wet or dirty even if it is a tiny bit. He want socks on at all times and they have to be folded down or ankle socks or he freaks. The therapist that did his eval last month her exact words after it were this poor little guys body and sensory system is a mess. He is doing OT for an hour 1 day a week. We are gonna do a 3 to 6 month trial to see if it helps and then go from there. There are lots of good things about him he is a very happy kid for the most part. He is a very lovable and social kid. I am not totally sure what is going on with him. I am hoping there are other mom's that have similar things going on and have some ideas. Thanks for reading this hope I didn't bounce around too much and it makes some sense.

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Teresa - posted on 04/20/2011

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kinda sounds like signs of sensory processing dysfunction. while that can be a part of autism, it can exist all by itself. the clothes, spinning, electric toothbrushes -- you say he is social and most kids with asbergers' aren't. take a quick look here: http://www.sensory-processing-disorder.c...

Jessica - posted on 07/06/2011

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propreseptive (sp?) sensory issues seems to be one of his problems. have him professionally checked out by SEVERAL professionals. Its taken 6+ pros to get to where we are now and we are still in the beginning.

Theresa - posted on 05/11/2011

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Hi Kelley, My DS turns 4 in September and your story sounds very familiar. DS was diagnosed with Aspergers in January. He also has a lot of sensory issues. So I totally understand. DS is also incredibly smart, which can make everyday a battle. Things have to be done the way in which it makes sense to him. I also have to structure sentences and instructions a certain way for him to understand. We are seeing a speech therapist in a few days for the first time. I send you my love and understanding and hope you get the answers and help you need. :-)

Shelley - posted on 04/26/2011

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We have many sensory things going on as well & just started using a sensory diet to try to regulate my son more he is either way up or way down middle ground is hard to get to. At school they use the sensory room alot with him.I have a little sensory hut for him with a ton of diffrent types of lights its a very calming place for him. His favorite thing to do that really regulates him & gets him to a very calm place is his bouncy ball & fast paced music infront of a mirror. We use weight as well not a vest yet as we are slowly going to work up to that there is alot involved to it We just tried a commpression vest but found a good strong hug every hour or so seemed to provide the same input. My son is almost 4 we are well in the diagnoses process for autism & will have our outcome on June 1st. Thankfully he goes to a special needs preschool & gets physio,o/t, & speech therapy. He also has severe receptive speech.

Tricia - posted on 04/26/2011

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My son has Sensory Processing Disorder and I can tell you that it sounds like your son probably does as well. Sensory issues are a big part of autism, but you don't have to have autism to have sensory issues. I would recommend reading, "Sensational Kids." That book was the most helpful to me when I was learning about SPD. Sensory issues can be very frustrating for a parent, but with OT and the proper "sensory diet" at home, you should see tremendous progress. We have also sought out Hyperbaric Oxygen Therapy and have seen tremendous results with that, although it is expensive and insurance will not cover it. Good luck!

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Krystin - posted on 04/25/2013

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My son is 4 and suffer from the absolute same problems. If you google or search for Sensory Prcessing Disorder, SPD, or Sensory Diet ideas it is full with alot of helpfull information on ways to help your son regulate himself throuh out the day to make it eaiser on him and you also. Autism Speaks by far has the best resources even tips for hair cuts, going to the denist, and lots of info if you want to increase treatment. In my opinion i would think about having his hours increased also. My son was diagnosed at two and he is four now and we still have a very hard time washing his hair, wiping his face, and hair cuts leave all of us crying because it upsets him soooo much. We have to stay strong it getts better. I never knew until now a other family who experiences the same challenges. I hope i helped out some. OH... always check Amazon if you are going to buy sensory brushes or anything like that. i don know how the company Mayer And Johnson can live with them self with prices like that. take care

Erin - posted on 12/22/2011

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That sounds exactly like my son! My son has other developmental delays, but his sensory issues are pretty intense. He doesn't notice messes though, at least not his diapers. He really dislikes being sticky, having things stuck to him, etc. He just recently started to lose his fear of vibrating toys. That took a long time. He loves,loves,loves light switches and seeing the lights turn on and off. Probably his favorite activity. My dad and I are going to build him a sensory board here soon. Basically, it's just a bunch of sensory things that you put on a board to keep them busy. It might help at least keep him in one spot. Inbox me if you ever have any questions.

Monique - posted on 12/22/2011

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Hi, my name is Monique and I have a 2 yr old that was just RXed withSPD. He will begin his therapy starting the 1st Tuesday in January. I totally understand what you are going through. My son also will only wear jeans and hates bathes diapers but just like yours his nickname is SMILEY. He is very happy but then there are those times. Ahhhh those fun fun times. If you ever want to chat or share stories please feel free to FB me netime. Monique

Kisa - posted on 12/12/2011

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you son sounds a lot like mine. My son is 5 now, he is a seeker of all areas. spins, crashes, things in mouth, always touching, fidgeting, but has some sensitivities too (noises, clothes). every kid is different and sensory diets are different based on YOUR son and what he NEEDS and changes over time. we are always learning and figuring out what our son needs currently. The best person to help you is an OT that specializes in SPD. SPD is NOT on the autism spectrum. kids can have SPD only with nothing else. All ADHD and autisic kids have sensory issues and our SPD kids can look autistic at times.
at age 2.5 my son barely made eye contact, could spin with the best autistic spinners and barely spoke. Now we are pretty sure he doesn't have autism but possible ADHD.
Keep pushing for your son to get the OT you NEED. You can;t do this without OT and learn the techniques that he needs. There are so many and we can tell you what worked for our kids but noone will know what works for your son until an OT gets to know him. Keep seeking help. (oopps, bad pun. :)

Sadie - posted on 11/23/2011

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This has helped me loads reading all the posts above as we are having simular problems with my son,iv seen my health visitor but been told that we now need see a dr to get him refered to a peadatrician so i can see it being a long waiting game? does anyone know if i can make an app straight with a ot? my son is 3yrs 4monthshe covers his ears at most places we visit i.e bowling,theme park,town,etc he hates lawn mowers,hand dryers,hammering,drilling,sirens,he gets really upset etc when there seems be alot going on and recently when he did a performance in school which was bit singing etc he got really upset as soon as he walked into the hall and saw all the parents. He wont speak to alot of people including children and dont seem to mix well,but when i mention things to school they say hes not mixing but we will get there etc. I just dont know what to do!!! He is also funny about foods and clothing.

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I have a 16 year old daughter with sensory processing disorder, and honestly, medication was needed to help her keep the sensory issues under control. We also use some great deep breathing and relaxation exercises. I recommend reading Sensational Kids by Dr. Lucy Miller, and Parenting a Child with Sensory Processing Disorder: a guide for parents with a sensory sensitive child by Chris Auer and Dr. Susan Blumberg (that's me!).

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I fostered a little boy that had obvious (but not diagnosed) SPD/Autism signs. He screamed each time I gave him a bath as if someone was hurting him. I usually wash the kids from head to toe but for some reason this one time I washed his feet first----he didn't say a sound! and kept on playing with the toys. I tried it againg the next time and again great results. This idea could work for some of your children...it's worth a try at least. I also need to do a better job of having a sensory diet for my son. He has some SPD signs and it is frustrating because we tested him through the school and he is "on the boarder line" and didn't qualify--yet the reports from 3 different people placed him in the severe area. I am feeling overwhelmed trying to look things up on my own and trying to do my best in knowing how to take care of his needs. Thanks for posting the website-I will take a look at it.

Erin - posted on 05/10/2011

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My son has sensory processing disorder as well. He was recently diagnosed because of his dislike of solid foods. I have intense trouble getting him to take much of anything solid. He's still on the bottle. He's got lots of other strange little quirks. He's very leery of new toys, especially ones that make loud or vibrating noises. It takes him sometimes weeks to get used to them. He doesn't like blankets, but he likes to have fabric to touch while drinking a bottle. He doesn't seem to care when his diapers are wet either. Toothbrushing is difficult. He's also very hyper and loves to explore. He's a very different child. lol. But he's in feeding therapy right now and we're supposed to be starting st, ot, pt and possibly behavioral therapy as well. We've got our hands full!

Leesa - posted on 05/06/2011

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Kelley, my DS will be 4 in august. We just got him started in ot in January. His sensory stuff stuff started showing right before his 3rd birthday. He is a sensory seeker, tactile seeker and has low muscle tone. He is extremely smart. His gross motor skills are off the charts but he is behind in his fine motor skills. He is always crashing into me, pressing his teeth into me, rubbing his face back and forth on my tummy or arm, bouncing his face on my arm, his social skills are getting better but he definitely has difficulty being social. I hate going to the grocery store or running any errands at all because it is all hit or miss as to whether it is going to be a good trip or a bad one. He wiggles so much during a hair cut it usually ends up being crooked everywhere! He doesn't mind getting his nails cut and he loves getting messy but he has to wash his hands a lot while he is getting messy. He loves showers and baths but needs a washcloth to wipe his face off. He loves to swim and is a dare devil! We are using deep pressure to calm but we have to sneak it in. He likes to be rubbed and I have learned to do joint compressions. I am slowly learning things to do. I haven't gotten a whole sensory diet down but I would love to have a schedule for each day like someone else mentioned! And I have to have patience. That is the only things that will work with kids who have spd. I saw someone mentioned sensational kids. That is an awesome book. I am reading How to Raise a Sensory Smart Child right now. It is a great book too. Those are my two favorites right now. I read Out of Sync Child but because my son is so young right now I really didn't see him and our problems in that book. My sister also has a son with spd. It really helps to have someone to talk to that has an older child who has been there and done that. People are going to stare at you when your child is having a melt down when you are out somewhere, you are going to feel like you are "that mom with that child", and you are going to get the crazy looks. But people don't realize that you don't always see the disability. Sometimes it is on the inside. SPD is a disability. Our children's brains for what ever reason don't process correctly. So don't let all those weird looks and people who don't know any better get the best of you. They just don't understand. As for feeling like you are "that mom with that kid" I have felt that way too and I know I am always doing what is best for my son and that is what matters. He is loved and I am helping him so he can be the best person he can be. I think all parents at one time or another feel that way no matter what is going on with their child. You will eventually learn to laugh about it. Life's challenges just make us stronger and better for them.

Jennifer - posted on 05/04/2011

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Teresa just wanted to a big thank you for the link on sensory disorders! that info helped me more than you will ever know i have been trying for years now to figure out what might be going on with my 4 kids who all seem to have some sort af a sensory issue i saw several things that fit each of my kids to a t most recently we couldn't figure out why my daughter would cover her ears in the lunch room and scream make them stop talking or complain the lights were too loud tell people to stop talking it because it was hurting her ( like physical pain) and she even tells people she hates them based on them having a mean voice she told her grandma she hated her for her voice alone i am going to take this info to her dr i think she def has auditory defense issues among others everything fits before your post i didn't even know it existed i passed this on to a friend of mine whos son has tactile defense and she was amazed at teh info she was able to uncover from this link you helped me immensly and wanted to thank you i now no longer feel like i am at a dead end rd i now have a new direction to explore to figure out what is going on with my children

Nikki - posted on 04/28/2011

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Yes indeed. My son is 6 yrs old and I've had family members tell me has autism, something else wrong with him, besides a speech delay. THe specialist dr. said he was just a boy n not ADHD. So we went to a second opinion and found out he does have ADHD n sensory processing disorder. He just started going a month ago. I did not even knew that anything like this even existed. You child sounds alot like mine. He's a happy kid, but very doesn't understand fear. He's tried going outside several times without us. After his first attempt, we put a lock on the door up high. Ur not alone. I put my son on the adhd fiengold diet. I did talk to OT about it, it also does help with sensory also. The red dye, yellow dye, msg seasoning in foods, and aspartame. It makes there brain very active. If the Ot does stuff what u can do at home I'd do taht. I went out n got my son a stress ball, n putty. He just seems to want more. Its always more, More. Trying reading the Out-of-sync child book I don't remember the last name thoe. It helped me understand my son alot more. Good luck

Shelley - posted on 04/27/2011

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A sensory diet is basically diffrent activities that we do on schedule each day I plan each day out until bedtime routine is key. An o/t can be helpful & explain & show diffrent activiies The sensory hut is basically just a little tent that gives him a place to go to that is his & all the led lights touch lights & wild spin lights actually have a very soothing, calming effect on him basically an affordable alternative to having a sensory room.

Kelley - posted on 04/26/2011

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Shelley thank you. Also what is the Sensory Diet?? Also what do u include in his sensory hut?

Jane - posted on 04/25/2011

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my son is 12 now he has dyspraxia ASD and ADHD he has a lot of sensory problems he clenches his fist really tight all the time so he can stable himself dont give up on getting a diagnosis ny son was the same as yours showers were not possible cant wear different kinds of clothing but over the yrs he has learnt 2 cope good luck xx

Kris - posted on 04/22/2011

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I've known since my son was under 1 that things were "different". He is now 4 & we've been trying to get doctors to tune in the whole time. He definitely has sensory issues & we strongly suspect ASD. We've just started the process of evaluating for the ASD & SPD. If you want to read more about our story, check out http://metamorphosistohealth.blogspot.co... Not meant to be a plug, just attempting not to recreate a long story.

Kelley - posted on 04/22/2011

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I am going to talk to his pediatrician at his 3 yr check up. I want him to get as much help as possible. He is friendly but only to certain people and kids. Sometimes his version of being friendly is hitting and pushing kids and people. So hopefully his dr has more ideas.

Kate - posted on 04/20/2011

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My daughter will be 4 in june and she receives speech 4x a week, OT 2x a week, and just got a PT eval and we will find out if she will be getting it 2x a week on may 1st... she too has some sensory issues. some similar to your sons. For example she loves the bath but, if you wash her face she acts as if you are beating her every time,hates when the water gets poured over her hair to wash the shampoo out,hates her toe nails being cut,and toe nails being painted, She hates messy hands and needs them washed a million times a day, she loves spinning ,jumping , flipping, she hates when i do her hair, and is a very,very,very picky eater because of textures (mashed potatos,pudding, applesauce she will not touch or go near it actually makes her gag at the sight of them)... OT has helped a little bit in other areas but, for the most part she still flips out over things that are sensory related.

She also hated her ears being touched but, had to have tubes put it for ear infections and that was the only sensory issue i was able to help with . She has plugs for her ears for bath time and would kick and scream when it was time to put them in so i started making her kiss them goodnight and say thanks i will see you tomorrow to her plugs i know it sounds silly but it worked and now that is one less thing i have a struggle with when it comes to "grooming"



i really hope OT works out well for your son..good luck

ps. i have taking her to numerous doctors and so far no one has said she is autistic ..she is happy ,friendly.... she may possibly be PDD but, i just think that is doctors saying idk whats wrong with your kid.

Angie - posted on 04/20/2011

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Have you had your son tested for aspergers/autism? Sensory issue are a big part of autism. And many high functioning children with autism can tell you what they need or want. I have one daughter who will nothing but sweatpants and a son who thinks clothes are optional. Yet my oldest dd does not care about what clothes, she has other sensory needs that need to be met. Have you spoken to your son's pediatrician about these issues? He can recommend what testing might need to be done for your son.

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