Need to talk to moms that has a child with Tetralogy Of Fallot w/ Pulmonary Atresia

Amy - posted on 08/04/2009 ( 6 moms have responded )

6

21

My son is having his second surgery at 6 years old and will have a tube put in between the right ventrical & the pulmonary artery. I was wondering if anyone knows how successful this sugery is. I just need some support from moms who have a child with Tetralogy because it is so hard to deal with.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms

6 Comments

View replies by

Brittany - posted on 05/13/2010

5

10

my son is almost 3 and having his 3rd open heart surgery.

Michele - posted on 08/16/2009

2

3

Amy,

Karen is nearly 3 and had only 1 surgery at 5 months. The repair was excellent and she only needs yearly follow-ups! She is healthy and fun and full of life. We ar eso blessed. Take good care!

Amy - posted on 08/16/2009

6

21

Quoting Michele:

My daughter had the surgery and is perfectly healthy! Stay brave and strong and keep the faith!



Thank you for your understanding. How old is your daughter and how many surgeries has she had. God Bless you & your family. Love & Hugs Amy

Amy - posted on 08/16/2009

6

21

Quoting Bonita:

Hello my name is Bonnie and my son Andrew was born with Downs and TOF & AV Canal defects. When he was about 15 days old he had a BT Shunt and at 6 months old he had his full heart repair. He is doing great. In his teens he'll need a new pulmonery valve. I know the fears you face and with lots of love, support, prayers and faith you can get through this. Google Mended Little Hearts and American heart Heros for more support and answers. Good luck and God Bless



Thank you so much. It is nice to know there are other moms out there that understand what I am going through. I really appreciate your comforting words,  prayers & information.  God Bless  you & your family. Love & Hugs Amy

Michele - posted on 08/13/2009

2

3

My daughter had the surgery and is perfectly healthy! Stay brave and strong and keep the faith!

Bonita - posted on 08/11/2009

12

16

Hello my name is Bonnie and my son Andrew was born with Downs and TOF & AV Canal defects. When he was about 15 days old he had a BT Shunt and at 6 months old he had his full heart repair. He is doing great. In his teens he'll need a new pulmonery valve. I know the fears you face and with lots of love, support, prayers and faith you can get through this. Google Mended Little Hearts and American heart Heros for more support and answers. Good luck and God Bless